Topic : What it is like living day to day with chronic pain:

Created on : Thursday, October 20, 2005, 07:22:22 am
Author : katlover

My therapist advised me to keep a diary to help me to recover from major depressive disorder associated with chronic pain, several injuries from an accident I was involved in almost six years ago, the resulting traumas to my body, learning to accept who I am right now and carry on with my life they way it is rather than the way it was.


I believe that in sharing our stories with each other it can help others and in that way we can help ourselves. No man or woman is an island completely alone and separate.


I have had chronic pain for almost six years now. Constant burning pain in and around the left knee, some burning pain in the right knee both resulting from permanent nerve damage, muscle pain from myofacial pain syndrome, arthritus pain in every joint, back & hip pain from damaged discs in my lower back and the very real physical pain from major depressive disorder.

 

This picture is what my back looked like the day after I had the trial surgery for a spinal cord stimulator implant done on 7/12/04. It was successful and the real implant surgery was done on 8/4/04. I use a remote device to turn it on when the pain in my left knee drives me crazy. And it also blocks some ot the back pain from the discs and some of the pain in my hips. The leads were placed at T-10. Unfortunately, this surgery has caused some urinary incontinence. Jerry Lewis also had this sugery last year and he is doing very well. I hope he doesn't pee his pants though!


It has been a nightmare and a learning experience all at the same time. I feel like these years were stolen from my life some of the time. The rest of the time I am pushing myself to feel better and LIVE my life. I have been successful at this most of the time. But I tell ya there are days............................


 


Nancy

 


 


 


 

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November 7, 2005, 4:08 am

Worried:

But after a beautiful weekend with Deb less so. But I have today to find some money to pay the electric bill because tomorrow is shut off day. I am heading to social services at 8am. 

 

Deb and I went gem mining and to the Circe Solei (sp?) last night. What a great weekend it was. And for the most part I was able to keep up with her. We found some semi precious gem stones and a lot of stuff that is just pretty.  

 

I feel well rested and the pain is about a 2 and I haven't taken the first pain pill yet. This is good. Last night my feet hurt a lot from all the walking and climbing up and down the creek bed. I did okay with that too. Just had to take my time and I wore a very good fitting pair of boots. So that made the difference.  

 

So except for a day here and there or an hour or so here and there my pain has been at a manageable level. Makes life a lot more enjoable. 

 

Today could be the day. The day I get the response from Social Security about my application for disability. I am so nervous right now because so much depends on my acceptance. It sucks being this dependent on someone else's decision.  

 

Okay got to go. Today is an eventful day and I will report back later. 

 

Nancy 


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