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August 17, 2005, 1:32 pm PDT

Thank you

Quote From: k2lnd2

It's always easy for me to share fun, upbeat and encouring stories, but this is one that hits the heart.  Writing about it has helped me, and I'm willing to share it to help others who may be dealing with the same situation. Sorry if it's lengthly. 

Thursdays with Daddy

 

As I approach the nursing home doorway, I can’t help but wonder, is it me he can’t wait to see or is it just the food I bring that causes him to wait by the doorway for my arrival every Thursday?  Sometimes the workers say he’s been waiting since first thing in the morning.  Funny, he can’t seem to remember much, but he always knows when it’s Thursday. But Thursday’s are reserved for Daddy and despite the pain and hurt, I owe it to my father to visit him because he waits and after all he’s done for me, he deserves at the very least one day a week of my time.

 

 

 

My father is only 59 years old and yet he has the mind and body of a 90 year old.  What exactly is it that ravishes his body?  Well, there are so many things there is not one thing to blame in his situation.  Whether mental, physical, job or war related, this is our circumstance; this is our life and one that we trust God will get us through and I’m feeling the need to share it to help others, somehow. 

 

I don’t have horror stories about growing up; my father and I didn’t always get along. Mom says it was because we are so much alike, looking at him now, I hope we’re not so much alike that this someday will be my fate.  I hate the pain I go through just watching him and now I feel even guiltier when I think about my own pain, how selfish of me.  What about him? Somehow I think he knows he’s stuck in a body and mind he can’t control.  I know my father had a zest for life, he loved to do things and loved food, well, he still loves food, but everything else is somehow lost between a world of assumptions of what’s going on and his reality.   

 

Dad seemed to be sick ever since the late eighties.  It started out with mini strokes I believe and then some Army related health issues and eventually another diagnosis of a mental illness, bipolar.  With all of dad’s medical issues, it was such a shock to our family in 1998, when mom suddenly got sick and within 30 days she died of cancer that she never knew she had.  Mom was the glue that held our family together; she was my dad’s caretaker and life support. Now I had to step in, at 28 years old and raising my own family, I had to have dad come live with us.  I became the parent to my father while parenting my own kids.   A responsibility I didn’t realize at the time that I was unequipped to take on.  

 

 

The next couple of years are a blur to me.  Such mixed emotions, grieving a mother I loved, learning I didn’t have father anymore either, not in the sense that I needed one.  I was angry but couldn’t really blame one person. Life still has to go on.  I gained so much weight during this time.  Finally there came a time when dad had to go into assisted living.  To protect myself from my own guilt my husband and I decided to put him in one 3 hours away.  Out of sight out of mind, at least that’s what I tried to do at first, but in reality that just created more guilt on my part. And an even lonelier world on his.  What was I thinking? He already lost his wife.  After my mom died, I moved him to a brand new state and now, after living with us for 3 years, I moved him 3 hours away?    I was upset that it even had to come to that, but after those years of living with my father, I really got to see the decline that my mother tried so desperately to hide from us or she was in denial herself.  I didn’t want to deal with it anymore.  But people aren’t exposable and even when it hurts, you have to take the hurt and love the person.  It took me a couple of years to realize that but when I finally did, I had to take drastic measures to move him back closer and the one thing I promised myself I wouldn’t do, was actually the best thing for him; a nursing home.  (I remember writing late one night writing to the Dr. Phil show about the guilt I felt over that). 

 

 

It wasn’t easy getting him in, the stress nearly got me to the point of denying I was his daughter. I honestly don’t know how an elderly person can understand when it’s time to put their spouse in a nursing home. The Medicaid red tape and stipulations were so stressful, my husband eventually took on most of the battles.  But finally after hiring a paralegal, still not understanding the processes, he’s been in a nursing home since March.  He now is only 10 minutes away from my home and I made a promise to myself and to him that I will visit him at least once a week. We set aside Thursdays for Daddy. And although dad is on ground up foods because the medications he’s been on for the last 10 years have rotted all of his teeth and he has esophageal problems, the home lets me bring him a special lunch every Thursday because that brings a joy to his life. I wheel him outside to our own little area where he has lunch. The nursing home grounds people planted marigolds in our little area that we visit every Thursday, and they had no way of knowing that marigolds are what my dad planted at our home when I was growing up every spring.  I think it’s God’s way of reminding me of the past where Dad did so much for me growing up and reminding me of the joy of my childhood.  As for the joy of the food, yes he loves it, but the reality is he waits for me. It’s easier for me to think he loves the food more than me.  But my dad loves me so much and even though it’s tough watching him on his bad days when he puts the straw up to his forehead instead of his lips to drink, he remembers that I come to visit him every Thursday.  It’s amazing how a father’s love surpasses all understanding and even overrides an illness that causes him to forget simple daily living activities; he still remembers I’m his daughter.  He doesn’t know what year it is and at times thinks Jimmy Carter is president, but he knows I’m his daughter.  I’m not kidding myself, I know someday that may not last either, but for now I have Thursday’s with my dad and I thank God for showing me how much I mean to my father that I can fight through the hurt of seeing him in this condition to give him the most precious thing he holds onto, which I can’t believe is me. I’m not kidding myself, some mornings I cry before I go to visit him because it hurts so much, but it would hurt even more if I didn’t go.  I'm not saying it's always easy, sometimes my Thursday mornings are filled with crying so much before I have to go and I just pray for God to give me strength to do what's right. 

 

After all the mistakes I have made with him and the hurt in taking care of him and not wanting the responsibility, he loves me and I still bring joy to his life.  This is one of the most difficult challenges in my life but working through this and seeing how much my father loves me despite an illness and despite myself is one of the greatest gifts my father can give me, I only wish he understood how much it meant and how much he means to me. 

 

 

If your in a situation too, look for your marigolds.  If your trying to take care of your loved one by yourself, sometimes the best care is lettign someone else take care of them so you can just enjoy your love one.  I visit with Daddy now, not be his caretaker, I was too emotionally involved if that makes sense to anyone. I hope my story can help, it's helped to put it on "paper."

 

 

 

"Romans 8:28"

Your story hits on all the same emotions I have about being the care taker.  I didn't realize how difficult it would be.  And I don't think others know the sacrifices we make with our families to have the time to do this.  Somedays I feel like nobody really knows how much time I spend doing laundry, banking, personal things.  Even though their basic needs of food, meds, supervision are being met, there are still other needs than only the family can provide.  Most people don't even bother to stop by and say hello cause they think she doesn't remember any way, but she knows for that moment in time. 
 
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July 11, 2006, 7:56 am PDT

When a Family Member Gets Sick

Quote From: k2lnd2

It's always easy for me to share fun, upbeat and encouring stories, but this is one that hits the heart.  Writing about it has helped me, and I'm willing to share it to help others who may be dealing with the same situation. Sorry if it's lengthly. 

Thursdays with Daddy

 

As I approach the nursing home doorway, I can’t help but wonder, is it me he can’t wait to see or is it just the food I bring that causes him to wait by the doorway for my arrival every Thursday?  Sometimes the workers say he’s been waiting since first thing in the morning.  Funny, he can’t seem to remember much, but he always knows when it’s Thursday. But Thursday’s are reserved for Daddy and despite the pain and hurt, I owe it to my father to visit him because he waits and after all he’s done for me, he deserves at the very least one day a week of my time.

 

 

 

My father is only 59 years old and yet he has the mind and body of a 90 year old.  What exactly is it that ravishes his body?  Well, there are so many things there is not one thing to blame in his situation.  Whether mental, physical, job or war related, this is our circumstance; this is our life and one that we trust God will get us through and I’m feeling the need to share it to help others, somehow. 

 

I don’t have horror stories about growing up; my father and I didn’t always get along. Mom says it was because we are so much alike, looking at him now, I hope we’re not so much alike that this someday will be my fate.  I hate the pain I go through just watching him and now I feel even guiltier when I think about my own pain, how selfish of me.  What about him? Somehow I think he knows he’s stuck in a body and mind he can’t control.  I know my father had a zest for life, he loved to do things and loved food, well, he still loves food, but everything else is somehow lost between a world of assumptions of what’s going on and his reality.   

 

Dad seemed to be sick ever since the late eighties.  It started out with mini strokes I believe and then some Army related health issues and eventually another diagnosis of a mental illness, bipolar.  With all of dad’s medical issues, it was such a shock to our family in 1998, when mom suddenly got sick and within 30 days she died of cancer that she never knew she had.  Mom was the glue that held our family together; she was my dad’s caretaker and life support. Now I had to step in, at 28 years old and raising my own family, I had to have dad come live with us.  I became the parent to my father while parenting my own kids.   A responsibility I didn’t realize at the time that I was unequipped to take on.  

 

 

The next couple of years are a blur to me.  Such mixed emotions, grieving a mother I loved, learning I didn’t have father anymore either, not in the sense that I needed one.  I was angry but couldn’t really blame one person. Life still has to go on.  I gained so much weight during this time.  Finally there came a time when dad had to go into assisted living.  To protect myself from my own guilt my husband and I decided to put him in one 3 hours away.  Out of sight out of mind, at least that’s what I tried to do at first, but in reality that just created more guilt on my part. And an even lonelier world on his.  What was I thinking? He already lost his wife.  After my mom died, I moved him to a brand new state and now, after living with us for 3 years, I moved him 3 hours away?    I was upset that it even had to come to that, but after those years of living with my father, I really got to see the decline that my mother tried so desperately to hide from us or she was in denial herself.  I didn’t want to deal with it anymore.  But people aren’t exposable and even when it hurts, you have to take the hurt and love the person.  It took me a couple of years to realize that but when I finally did, I had to take drastic measures to move him back closer and the one thing I promised myself I wouldn’t do, was actually the best thing for him; a nursing home.  (I remember writing late one night writing to the Dr. Phil show about the guilt I felt over that). 

 

 

It wasn’t easy getting him in, the stress nearly got me to the point of denying I was his daughter. I honestly don’t know how an elderly person can understand when it’s time to put their spouse in a nursing home. The Medicaid red tape and stipulations were so stressful, my husband eventually took on most of the battles.  But finally after hiring a paralegal, still not understanding the processes, he’s been in a nursing home since March.  He now is only 10 minutes away from my home and I made a promise to myself and to him that I will visit him at least once a week. We set aside Thursdays for Daddy. And although dad is on ground up foods because the medications he’s been on for the last 10 years have rotted all of his teeth and he has esophageal problems, the home lets me bring him a special lunch every Thursday because that brings a joy to his life. I wheel him outside to our own little area where he has lunch. The nursing home grounds people planted marigolds in our little area that we visit every Thursday, and they had no way of knowing that marigolds are what my dad planted at our home when I was growing up every spring.  I think it’s God’s way of reminding me of the past where Dad did so much for me growing up and reminding me of the joy of my childhood.  As for the joy of the food, yes he loves it, but the reality is he waits for me. It’s easier for me to think he loves the food more than me.  But my dad loves me so much and even though it’s tough watching him on his bad days when he puts the straw up to his forehead instead of his lips to drink, he remembers that I come to visit him every Thursday.  It’s amazing how a father’s love surpasses all understanding and even overrides an illness that causes him to forget simple daily living activities; he still remembers I’m his daughter.  He doesn’t know what year it is and at times thinks Jimmy Carter is president, but he knows I’m his daughter.  I’m not kidding myself, I know someday that may not last either, but for now I have Thursday’s with my dad and I thank God for showing me how much I mean to my father that I can fight through the hurt of seeing him in this condition to give him the most precious thing he holds onto, which I can’t believe is me. I’m not kidding myself, some mornings I cry before I go to visit him because it hurts so much, but it would hurt even more if I didn’t go.  I'm not saying it's always easy, sometimes my Thursday mornings are filled with crying so much before I have to go and I just pray for God to give me strength to do what's right. 

 

After all the mistakes I have made with him and the hurt in taking care of him and not wanting the responsibility, he loves me and I still bring joy to his life.  This is one of the most difficult challenges in my life but working through this and seeing how much my father loves me despite an illness and despite myself is one of the greatest gifts my father can give me, I only wish he understood how much it meant and how much he means to me. 

 

 

If your in a situation too, look for your marigolds.  If your trying to take care of your loved one by yourself, sometimes the best care is lettign someone else take care of them so you can just enjoy your love one.  I visit with Daddy now, not be his caretaker, I was too emotionally involved if that makes sense to anyone. I hope my story can help, it's helped to put it on "paper."

 

 

 

"Romans 8:28"

I am so glad that you are spending Thursdays with your Dad.  My Dad passed away 5 years ago and I miss him terribly.  He died 7 years after 8 by-pass surgery and  7 years of life after that to be taken so quickly.  I know in my heart that he would have been a horrible long term patient so am glad it was quick though.  There were so many things I wanted to tell him but never found the time to tell him.  Whether he remembers or not ,tell your father  your feelings so that you are not left with---"I wish I'd told him that.  I am unsure whether Dad knew how much I loved him.  I told him the day of his surgery but he was pretty out of it.  As I wrote that I remembered telling him I loved him at the end of phone conversations so hopefully he remembered. 

  

My grandmother had Parkinsons Disease and Alzheimers.  With her being widowed at 62 and passing 30 years later herself she became SOOOOOOOO difficult to be around.  She was unhappy for so long that no amount of visits or phone calls was ever enough.  She'd driven everyone away. After my visits with her I had felt better but she'd call my mom right away and complain about me and my children. I did not deal with it well but my mom was ALWAYS a great support in this.  Grandma would drive to the grocery store and forget how to get home.  She would not remember that mom and I lived close by and just cry.  On a couple of occassions the police from this small town got her home.  Grandma would then lock herself in the house for days afterward.  I know she was afraid ALOT of the time.  After Dad died and I moved 1hour away Mom couldn't do it anymore.  She called her older sister for help and in that 30 years my aunt finally came to help.  She took Grandma to Texas and she ended up in a hursing home after surgery.  Six months later- Grandma had passed away. This brought about alot of hard feelings between my mother and her siblings which is another story. 

I wish my Grandmaother would have created some memories with my children.  Your children are getting to know Grandpa, spending their day together and listening to his voice.  They can also feel the love between the two of you. WHAT A GREAT LEGACY!!!!!!!!!! 

 
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January 31, 2007, 11:49 pm PST

I understand

Quote From: k2lnd2

It's always easy for me to share fun, upbeat and encouring stories, but this is one that hits the heart.  Writing about it has helped me, and I'm willing to share it to help others who may be dealing with the same situation. Sorry if it's lengthly. 

Thursdays with Daddy

 

As I approach the nursing home doorway, I can’t help but wonder, is it me he can’t wait to see or is it just the food I bring that causes him to wait by the doorway for my arrival every Thursday?  Sometimes the workers say he’s been waiting since first thing in the morning.  Funny, he can’t seem to remember much, but he always knows when it’s Thursday. But Thursday’s are reserved for Daddy and despite the pain and hurt, I owe it to my father to visit him because he waits and after all he’s done for me, he deserves at the very least one day a week of my time.

 

 

 

My father is only 59 years old and yet he has the mind and body of a 90 year old.  What exactly is it that ravishes his body?  Well, there are so many things there is not one thing to blame in his situation.  Whether mental, physical, job or war related, this is our circumstance; this is our life and one that we trust God will get us through and I’m feeling the need to share it to help others, somehow. 

 

I don’t have horror stories about growing up; my father and I didn’t always get along. Mom says it was because we are so much alike, looking at him now, I hope we’re not so much alike that this someday will be my fate.  I hate the pain I go through just watching him and now I feel even guiltier when I think about my own pain, how selfish of me.  What about him? Somehow I think he knows he’s stuck in a body and mind he can’t control.  I know my father had a zest for life, he loved to do things and loved food, well, he still loves food, but everything else is somehow lost between a world of assumptions of what’s going on and his reality.   

 

Dad seemed to be sick ever since the late eighties.  It started out with mini strokes I believe and then some Army related health issues and eventually another diagnosis of a mental illness, bipolar.  With all of dad’s medical issues, it was such a shock to our family in 1998, when mom suddenly got sick and within 30 days she died of cancer that she never knew she had.  Mom was the glue that held our family together; she was my dad’s caretaker and life support. Now I had to step in, at 28 years old and raising my own family, I had to have dad come live with us.  I became the parent to my father while parenting my own kids.   A responsibility I didn’t realize at the time that I was unequipped to take on.  

 

 

The next couple of years are a blur to me.  Such mixed emotions, grieving a mother I loved, learning I didn’t have father anymore either, not in the sense that I needed one.  I was angry but couldn’t really blame one person. Life still has to go on.  I gained so much weight during this time.  Finally there came a time when dad had to go into assisted living.  To protect myself from my own guilt my husband and I decided to put him in one 3 hours away.  Out of sight out of mind, at least that’s what I tried to do at first, but in reality that just created more guilt on my part. And an even lonelier world on his.  What was I thinking? He already lost his wife.  After my mom died, I moved him to a brand new state and now, after living with us for 3 years, I moved him 3 hours away?    I was upset that it even had to come to that, but after those years of living with my father, I really got to see the decline that my mother tried so desperately to hide from us or she was in denial herself.  I didn’t want to deal with it anymore.  But people aren’t exposable and even when it hurts, you have to take the hurt and love the person.  It took me a couple of years to realize that but when I finally did, I had to take drastic measures to move him back closer and the one thing I promised myself I wouldn’t do, was actually the best thing for him; a nursing home.  (I remember writing late one night writing to the Dr. Phil show about the guilt I felt over that). 

 

 

It wasn’t easy getting him in, the stress nearly got me to the point of denying I was his daughter. I honestly don’t know how an elderly person can understand when it’s time to put their spouse in a nursing home. The Medicaid red tape and stipulations were so stressful, my husband eventually took on most of the battles.  But finally after hiring a paralegal, still not understanding the processes, he’s been in a nursing home since March.  He now is only 10 minutes away from my home and I made a promise to myself and to him that I will visit him at least once a week. We set aside Thursdays for Daddy. And although dad is on ground up foods because the medications he’s been on for the last 10 years have rotted all of his teeth and he has esophageal problems, the home lets me bring him a special lunch every Thursday because that brings a joy to his life. I wheel him outside to our own little area where he has lunch. The nursing home grounds people planted marigolds in our little area that we visit every Thursday, and they had no way of knowing that marigolds are what my dad planted at our home when I was growing up every spring.  I think it’s God’s way of reminding me of the past where Dad did so much for me growing up and reminding me of the joy of my childhood.  As for the joy of the food, yes he loves it, but the reality is he waits for me. It’s easier for me to think he loves the food more than me.  But my dad loves me so much and even though it’s tough watching him on his bad days when he puts the straw up to his forehead instead of his lips to drink, he remembers that I come to visit him every Thursday.  It’s amazing how a father’s love surpasses all understanding and even overrides an illness that causes him to forget simple daily living activities; he still remembers I’m his daughter.  He doesn’t know what year it is and at times thinks Jimmy Carter is president, but he knows I’m his daughter.  I’m not kidding myself, I know someday that may not last either, but for now I have Thursday’s with my dad and I thank God for showing me how much I mean to my father that I can fight through the hurt of seeing him in this condition to give him the most precious thing he holds onto, which I can’t believe is me. I’m not kidding myself, some mornings I cry before I go to visit him because it hurts so much, but it would hurt even more if I didn’t go.  I'm not saying it's always easy, sometimes my Thursday mornings are filled with crying so much before I have to go and I just pray for God to give me strength to do what's right. 

 

After all the mistakes I have made with him and the hurt in taking care of him and not wanting the responsibility, he loves me and I still bring joy to his life.  This is one of the most difficult challenges in my life but working through this and seeing how much my father loves me despite an illness and despite myself is one of the greatest gifts my father can give me, I only wish he understood how much it meant and how much he means to me. 

 

 

If your in a situation too, look for your marigolds.  If your trying to take care of your loved one by yourself, sometimes the best care is lettign someone else take care of them so you can just enjoy your love one.  I visit with Daddy now, not be his caretaker, I was too emotionally involved if that makes sense to anyone. I hope my story can help, it's helped to put it on "paper."

 

 

 

"Romans 8:28"

Let me start by saying that your message was in no way too lengthy. In fact, your message touched me so much, I just had to respond. It is, unfortunately, nice to hear that there is someone else out there who can understand what I am going through. My mom who was a single parent raising 3 girls, has been very ill half my life. Living on borrowed time the last few years.  It's never an easy thing to watch a parent, who is supposed to be a child's tower of strength, suffer so much. There are so many health issues that she's has often been told that she's one of God's miracles to still be alive today.

There was a time I was very religious, but the last few years, my faith has failed me. How can I hear my mom's cries and see the pain in her eyes and believe it's a blessing for her to be here?

 

You know there was a time growing up that I was angry with her for never being around. But you know what? As I grew up, I realized working 3-4 jobs at a time  to provide for me and my sisters was no easy task. She talks about the regrets she has about not being there for the most important times of our lives. And I believe her. I see it in her eyes.

 

And now to become dependent on a child? You see, my mother has become a burden to my sisters and have chosen to distance themselves from her. I of course, like you, I owe it to her. She is my mother, my best friend. There is not even a second thought about my caring for her. My only regret is not being able to take away the pain she feels and to heal all the hurts that she's felt all her life.

 

I admire you that Thursday is Dad's day. I wish more people could feel as we do for parent's only come once in a lifetime. At a young age, I denied my mother. I was even embarrased of her. I'm not sure if at some point in a child's life we all do that, but I did. I regret every minute.

 

But I am proud to say I love my mom. she's my best friend I can only hope that I've become half he person she is. Through all the pain, and all the not  knowing if she'll wake up in the morning times, she's the one who will mask it all and make everyone around her laugh and see the best in life.

 

Sometimes I find myself angry that I'm the only one taking mom to Dr. appointments, running her errands, buying her groceries visiting with her when I have my own things going on.Sometimes I find myself wondering does my mom really love me? Have I made her proud enough? But then I see her eyes light up when she see me, and I hear her tell her Doctors "You  can't do anything until my strength is with me" , that's how I know my mom loves me.

 

How do you do it though? Try not to cry in front of your parent so they can feel comforted in your strength? Sometimes I don't feel I can do it anymore, but then who else will.

 
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September 23, 2007, 8:02 pm PDT

thursday's with daddy

Quote From: k2lnd2

It's always easy for me to share fun, upbeat and encouring stories, but this is one that hits the heart.  Writing about it has helped me, and I'm willing to share it to help others who may be dealing with the same situation. Sorry if it's lengthly. 

Thursdays with Daddy

 

As I approach the nursing home doorway, I can’t help but wonder, is it me he can’t wait to see or is it just the food I bring that causes him to wait by the doorway for my arrival every Thursday?  Sometimes the workers say he’s been waiting since first thing in the morning.  Funny, he can’t seem to remember much, but he always knows when it’s Thursday. But Thursday’s are reserved for Daddy and despite the pain and hurt, I owe it to my father to visit him because he waits and after all he’s done for me, he deserves at the very least one day a week of my time.

 

 

 

My father is only 59 years old and yet he has the mind and body of a 90 year old.  What exactly is it that ravishes his body?  Well, there are so many things there is not one thing to blame in his situation.  Whether mental, physical, job or war related, this is our circumstance; this is our life and one that we trust God will get us through and I’m feeling the need to share it to help others, somehow. 

 

I don’t have horror stories about growing up; my father and I didn’t always get along. Mom says it was because we are so much alike, looking at him now, I hope we’re not so much alike that this someday will be my fate.  I hate the pain I go through just watching him and now I feel even guiltier when I think about my own pain, how selfish of me.  What about him? Somehow I think he knows he’s stuck in a body and mind he can’t control.  I know my father had a zest for life, he loved to do things and loved food, well, he still loves food, but everything else is somehow lost between a world of assumptions of what’s going on and his reality.   

 

Dad seemed to be sick ever since the late eighties.  It started out with mini strokes I believe and then some Army related health issues and eventually another diagnosis of a mental illness, bipolar.  With all of dad’s medical issues, it was such a shock to our family in 1998, when mom suddenly got sick and within 30 days she died of cancer that she never knew she had.  Mom was the glue that held our family together; she was my dad’s caretaker and life support. Now I had to step in, at 28 years old and raising my own family, I had to have dad come live with us.  I became the parent to my father while parenting my own kids.   A responsibility I didn’t realize at the time that I was unequipped to take on.  

 

 

The next couple of years are a blur to me.  Such mixed emotions, grieving a mother I loved, learning I didn’t have father anymore either, not in the sense that I needed one.  I was angry but couldn’t really blame one person. Life still has to go on.  I gained so much weight during this time.  Finally there came a time when dad had to go into assisted living.  To protect myself from my own guilt my husband and I decided to put him in one 3 hours away.  Out of sight out of mind, at least that’s what I tried to do at first, but in reality that just created more guilt on my part. And an even lonelier world on his.  What was I thinking? He already lost his wife.  After my mom died, I moved him to a brand new state and now, after living with us for 3 years, I moved him 3 hours away?    I was upset that it even had to come to that, but after those years of living with my father, I really got to see the decline that my mother tried so desperately to hide from us or she was in denial herself.  I didn’t want to deal with it anymore.  But people aren’t exposable and even when it hurts, you have to take the hurt and love the person.  It took me a couple of years to realize that but when I finally did, I had to take drastic measures to move him back closer and the one thing I promised myself I wouldn’t do, was actually the best thing for him; a nursing home.  (I remember writing late one night writing to the Dr. Phil show about the guilt I felt over that). 

 

 

It wasn’t easy getting him in, the stress nearly got me to the point of denying I was his daughter. I honestly don’t know how an elderly person can understand when it’s time to put their spouse in a nursing home. The Medicaid red tape and stipulations were so stressful, my husband eventually took on most of the battles.  But finally after hiring a paralegal, still not understanding the processes, he’s been in a nursing home since March.  He now is only 10 minutes away from my home and I made a promise to myself and to him that I will visit him at least once a week. We set aside Thursdays for Daddy. And although dad is on ground up foods because the medications he’s been on for the last 10 years have rotted all of his teeth and he has esophageal problems, the home lets me bring him a special lunch every Thursday because that brings a joy to his life. I wheel him outside to our own little area where he has lunch. The nursing home grounds people planted marigolds in our little area that we visit every Thursday, and they had no way of knowing that marigolds are what my dad planted at our home when I was growing up every spring.  I think it’s God’s way of reminding me of the past where Dad did so much for me growing up and reminding me of the joy of my childhood.  As for the joy of the food, yes he loves it, but the reality is he waits for me. It’s easier for me to think he loves the food more than me.  But my dad loves me so much and even though it’s tough watching him on his bad days when he puts the straw up to his forehead instead of his lips to drink, he remembers that I come to visit him every Thursday.  It’s amazing how a father’s love surpasses all understanding and even overrides an illness that causes him to forget simple daily living activities; he still remembers I’m his daughter.  He doesn’t know what year it is and at times thinks Jimmy Carter is president, but he knows I’m his daughter.  I’m not kidding myself, I know someday that may not last either, but for now I have Thursday’s with my dad and I thank God for showing me how much I mean to my father that I can fight through the hurt of seeing him in this condition to give him the most precious thing he holds onto, which I can’t believe is me. I’m not kidding myself, some mornings I cry before I go to visit him because it hurts so much, but it would hurt even more if I didn’t go.  I'm not saying it's always easy, sometimes my Thursday mornings are filled with crying so much before I have to go and I just pray for God to give me strength to do what's right. 

 

After all the mistakes I have made with him and the hurt in taking care of him and not wanting the responsibility, he loves me and I still bring joy to his life.  This is one of the most difficult challenges in my life but working through this and seeing how much my father loves me despite an illness and despite myself is one of the greatest gifts my father can give me, I only wish he understood how much it meant and how much he means to me. 

 

 

If your in a situation too, look for your marigolds.  If your trying to take care of your loved one by yourself, sometimes the best care is lettign someone else take care of them so you can just enjoy your love one.  I visit with Daddy now, not be his caretaker, I was too emotionally involved if that makes sense to anyone. I hope my story can help, it's helped to put it on "paper."

 

 

 

"Romans 8:28"

  even though your dad is in the nursing home.  he knows that you are there, and holds the time together you have special to him. my dad died several years ago from a farming accident at the age of 79 years old.  during the time before his untimely death my husband, his kids, our son, and i lived 1,600 miles away.  it was not that i didn't have the funds to visit my dad and mom.  but my husband he forbid me to see my dad.  when my dad died it was quite a shock.  and of course my husband made it looked like he was really concerned all that time! my husband has also passed on six years ago to cancer. there is always something special about a father's love for their daughter and daughters.  i would give anything to see my dad again and tell him, how much i loved him.   bring him the sweets that he always enjoyed, laugh about silly things that the family pets did.  in my case there is no age limit in the parent's children, the loss of a parent hurts.  so please take this time and treasure every minute with your dad.  at least you have a very understanding husband.  may god bless you and your family

 
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June 10, 2008, 11:03 am PDT

can relate

Quote From: k2lnd2

It's always easy for me to share fun, upbeat and encouring stories, but this is one that hits the heart.  Writing about it has helped me, and I'm willing to share it to help others who may be dealing with the same situation. Sorry if it's lengthly. 

Thursdays with Daddy

 

As I approach the nursing home doorway, I can’t help but wonder, is it me he can’t wait to see or is it just the food I bring that causes him to wait by the doorway for my arrival every Thursday?  Sometimes the workers say he’s been waiting since first thing in the morning.  Funny, he can’t seem to remember much, but he always knows when it’s Thursday. But Thursday’s are reserved for Daddy and despite the pain and hurt, I owe it to my father to visit him because he waits and after all he’s done for me, he deserves at the very least one day a week of my time.

 

 

 

My father is only 59 years old and yet he has the mind and body of a 90 year old.  What exactly is it that ravishes his body?  Well, there are so many things there is not one thing to blame in his situation.  Whether mental, physical, job or war related, this is our circumstance; this is our life and one that we trust God will get us through and I’m feeling the need to share it to help others, somehow. 

 

I don’t have horror stories about growing up; my father and I didn’t always get along. Mom says it was because we are so much alike, looking at him now, I hope we’re not so much alike that this someday will be my fate.  I hate the pain I go through just watching him and now I feel even guiltier when I think about my own pain, how selfish of me.  What about him? Somehow I think he knows he’s stuck in a body and mind he can’t control.  I know my father had a zest for life, he loved to do things and loved food, well, he still loves food, but everything else is somehow lost between a world of assumptions of what’s going on and his reality.   

 

Dad seemed to be sick ever since the late eighties.  It started out with mini strokes I believe and then some Army related health issues and eventually another diagnosis of a mental illness, bipolar.  With all of dad’s medical issues, it was such a shock to our family in 1998, when mom suddenly got sick and within 30 days she died of cancer that she never knew she had.  Mom was the glue that held our family together; she was my dad’s caretaker and life support. Now I had to step in, at 28 years old and raising my own family, I had to have dad come live with us.  I became the parent to my father while parenting my own kids.   A responsibility I didn’t realize at the time that I was unequipped to take on.  

 

 

The next couple of years are a blur to me.  Such mixed emotions, grieving a mother I loved, learning I didn’t have father anymore either, not in the sense that I needed one.  I was angry but couldn’t really blame one person. Life still has to go on.  I gained so much weight during this time.  Finally there came a time when dad had to go into assisted living.  To protect myself from my own guilt my husband and I decided to put him in one 3 hours away.  Out of sight out of mind, at least that’s what I tried to do at first, but in reality that just created more guilt on my part. And an even lonelier world on his.  What was I thinking? He already lost his wife.  After my mom died, I moved him to a brand new state and now, after living with us for 3 years, I moved him 3 hours away?    I was upset that it even had to come to that, but after those years of living with my father, I really got to see the decline that my mother tried so desperately to hide from us or she was in denial herself.  I didn’t want to deal with it anymore.  But people aren’t exposable and even when it hurts, you have to take the hurt and love the person.  It took me a couple of years to realize that but when I finally did, I had to take drastic measures to move him back closer and the one thing I promised myself I wouldn’t do, was actually the best thing for him; a nursing home.  (I remember writing late one night writing to the Dr. Phil show about the guilt I felt over that). 

 

 

It wasn’t easy getting him in, the stress nearly got me to the point of denying I was his daughter. I honestly don’t know how an elderly person can understand when it’s time to put their spouse in a nursing home. The Medicaid red tape and stipulations were so stressful, my husband eventually took on most of the battles.  But finally after hiring a paralegal, still not understanding the processes, he’s been in a nursing home since March.  He now is only 10 minutes away from my home and I made a promise to myself and to him that I will visit him at least once a week. We set aside Thursdays for Daddy. And although dad is on ground up foods because the medications he’s been on for the last 10 years have rotted all of his teeth and he has esophageal problems, the home lets me bring him a special lunch every Thursday because that brings a joy to his life. I wheel him outside to our own little area where he has lunch. The nursing home grounds people planted marigolds in our little area that we visit every Thursday, and they had no way of knowing that marigolds are what my dad planted at our home when I was growing up every spring.  I think it’s God’s way of reminding me of the past where Dad did so much for me growing up and reminding me of the joy of my childhood.  As for the joy of the food, yes he loves it, but the reality is he waits for me. It’s easier for me to think he loves the food more than me.  But my dad loves me so much and even though it’s tough watching him on his bad days when he puts the straw up to his forehead instead of his lips to drink, he remembers that I come to visit him every Thursday.  It’s amazing how a father’s love surpasses all understanding and even overrides an illness that causes him to forget simple daily living activities; he still remembers I’m his daughter.  He doesn’t know what year it is and at times thinks Jimmy Carter is president, but he knows I’m his daughter.  I’m not kidding myself, I know someday that may not last either, but for now I have Thursday’s with my dad and I thank God for showing me how much I mean to my father that I can fight through the hurt of seeing him in this condition to give him the most precious thing he holds onto, which I can’t believe is me. I’m not kidding myself, some mornings I cry before I go to visit him because it hurts so much, but it would hurt even more if I didn’t go.  I'm not saying it's always easy, sometimes my Thursday mornings are filled with crying so much before I have to go and I just pray for God to give me strength to do what's right. 

 

After all the mistakes I have made with him and the hurt in taking care of him and not wanting the responsibility, he loves me and I still bring joy to his life.  This is one of the most difficult challenges in my life but working through this and seeing how much my father loves me despite an illness and despite myself is one of the greatest gifts my father can give me, I only wish he understood how much it meant and how much he means to me. 

 

 

If your in a situation too, look for your marigolds.  If your trying to take care of your loved one by yourself, sometimes the best care is lettign someone else take care of them so you can just enjoy your love one.  I visit with Daddy now, not be his caretaker, I was too emotionally involved if that makes sense to anyone. I hope my story can help, it's helped to put it on "paper."

 

 

 

"Romans 8:28"

Thanks for writing. I know that mental illness is and will continue to be a part of my life. Several of my husband's family members suffer from depression, as well as my husband (from time to time). My son also seems to have a lot of friends with bipolar disease; so 'it' is all around.
I think I related to your story as well because my dad has been in a nursing home for 10 years. He had a stroke and was 73, so it was not as startling as your dad's illness at 59. I have to say that the place where my Dad is, has a lot of compassionate people, so I feel very fortunate that he can be there. My mom visits him every day; thank God she is doing okay health-wise, even though she is 83.
As the oldest daughter, I feel like I will soon be taking care of Mom, when she gets to a point where she can't take care of herself and her home. She is really already there, but she can do the "basics", so she gets by. At her age, taking care of a home all by yourself is not easy. We are a family of 5 children, so we are again fortunate to be able to share the 'help'., which makes everyone's life a little easier.
I just want to thank you for sharing your story. I know that just being able to share it with someone lightens the load. And thanks to Dr. Phil - this is a good place to do that! My thought is that whatever happens to us prepares us for the next part of our lives, so even though you are young to be handling such responsibilty (I am 54), I feel sure this experience will be a blessing to your life as you go on. What a tremendous gift you are giving your Dad; and it is so wonderful to know that he knows. I feel like one day, he will bless you from heaven.
 


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