Quote From: nichelle81OK, first of ALL... until recently I did not know what my daughter had. Second of all, your son is ONLY 21 months....you have NO clue what the future holds for you with a child who has that disorder. Savannah has terrible fits of rage, violent outbursts, and screams bloody murder when she doesnt get her way. DEAL WITH THAT!!! you havent seen anything yet. Im a 24 year old SINGLE mom with 2 spoiled little brats. I try to do the best I can. I DO spoil them sometimes because I love them, but its taking its toll! NO ONE who knows me will EVEN watch my one year old. (she was born a mamma's girl and a screamer!) IM ALL ALONE. I went to Dr. Phil for help because OBVIOULSY I felt I needed it!!! Can I get SOME credit?! People dont air their dirty laundry JUST BECAUSE! Do you think I want the whole world to think Im a jerk?! NO, but I DO Know I need help with dealing with my daughter. I cant
handle it by myself. Dont come down on someone that had the nerve to even come forward! its a good thing! I HAD THE "BALLS" TO SAY ON NATIONAL TV WHAT EVERY OTHER FRUSTRATED PARENT IS THINKING, AND I WASNT SCARED!!!! be a jerk if you want, but i think I just opened up a whole can of worms...youll see. TUNE IN!!!!
Nichelle,
I watched the show yesterday keeping an open mind. We all know commercials for programs are done to draw people in so I took them at face value. I am a mother of a child with PWS. She is the one of 3 joys in my life. She had a late diagnosis of PWS and yes there was a point of denial for me also but then you realize you have to do what is best for your child and make the contacts you need for support and help.
I understand how frustrating the behavior issues can be but the first thing you have to do is get stability in the house and work with the schools, doctors, dieticians etc. Each of our kids are at different levels when dealing with behaviors. You need to understand that alot of the behavioral outburst are impulsive and may not be able to be controlled if your daughter is not given the tools to try and control them. My daughter had huge behavior issues starting around the age of 3. She would drive me crazy but never once did I hit her or talk down to her. I worked with the school to start behavior management programs. It started with something as simple as earning stars for the day. I provided the teacher with little trinkets from the dollar store that my daughter could earn. Each year has gotten better. At the age of 11, we still use a behavior chart and she is starting to self assess her behavior. She does get some special privileges for good behavior for an extended period of time. We also acknowledge that there will be rough periods and that changes in routine can cause rough periods. The kids in her class were told about the PWS last year and are very understanding. They even help her stay in line when she starts having issues.
Although we still have a long way to go to completely understand PWS and why some are more affected than others, we have come along way. There are alot of things we can do now to make sure our kids and adults are in the best health possible. Please, Please work with the National association and your local association (if you have one) to get support. Work with the doctors, schools, etc to get Savannah on a track to a wonderful life. And there is nothing wrong with seeking help for yourself too. We all have our bad days and trials. The hardest part is going to be changing behaviors that are already in place. Please take Dr Phil's advice and go to the garage and scream or hit a pillow when the frustration becomes to much. I am not perfect by any means but we as parents must learn to cope with our frustrations in order to make it easier for our kids.
Remember....You are not alone. You have a whole national network of people who understand. I will keep you and your family in my thoughts and prayers.
Melissa
