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November 3, 2005, 2:57 pm PST
You need a support system
Quote From: zander22Quote From: nichelle81
OK, first of ALL... until recently I did not know what my daughter had. Second of all, your son is ONLY 21 months....you have NO clue what the future holds for you with a child who has that disorder. Savannah has terrible fits of rage, violent outbursts, and screams bloody murder when she doesnt get her way. DEAL WITH THAT!!! you havent seen anything yet. Im a 24 year old SINGLE mom with 2 spoiled little brats. I try to do the best I can. I DO spoil them sometimes because I love them, but its taking its toll! NO ONE who knows me will EVEN watch my one year old. (she was born a mamma's girl and a screamer!) IM ALL ALONE. I went to Dr. Phil for help because OBVIOULSY I felt I needed it!!! Can I get SOME credit?! People dont air their dirty laundry JUST BECAUSE! Do you think I want the whole world to think Im a jerk?! NO, but I DO Know I need help with dealing with my daughter. I cant handle it by myself. Dont come down on someone that had the nerve to even come forward! its a good thing! I HAD THE "BALLS" TO SAY ON NATIONAL TV WHAT EVERY OTHER FRUSTRATED PARENT IS THINKING, AND I WASNT SCARED!!!! be a jerk if you want, but i think I just opened up a whole can of worms...youll see. TUNE IN!!!!
I'm disgusted that you called your daughter a brat. I was only 18 when my son was born. He also have this disease that your daughter have. I am a single mom, too. No, it is not easy. I almost gave up.....but it is my responsiblilty because I bought my son into world. So I've learned in hard way. I've learned alot of patiences and control of my son.
At least, I don't spank him with belt or smack across his face. I don't call him names. Do I think he is fault? Your daughter's? No. Your daughter did not ask you to bring her into the world, you did. I am not here to pick on you but you have absoultly no excuse to be abusive to your daughter.
hello, I just want you to know that there are other people that are in your shoes and it stinks! Prader Willi is not like many other dissabilities, IT IS A CONSTANT STRUGGLE! Yesturday I was interviewed by our local newspaper and the one thing that I said was that I could not immagine doing this alone. How can you work to support your family? Who will babysit? I am very fortunate to have a good support system and get weakly breaks. I also have a loving husband. I hope that you have a service coordinator and that you recieve respite. There are homes that she can go to once a month for a night or wk. end. There are people that can come into your home to help. This is called Respite and Res-Hab. How is your school district? Is your daughter placed in an appropriate setting? My heart goes out to you! We have a 13 year old daughter with PWS and even with my awesome support system, I find myself leaving the room in tears because I do not think that it can get worse! I am sure that people have offered help to you and I will as well. My name is Jeannie and I live in western Ny where we will have the national conference next year. I hope that you can come, you will meet and find never ending friendships there. We are a family and we need to support one another in good and bad. My e-mail is jmd287@adelphia.net , please feel free to send me a line and we can talk more about all that can be offered to you. Many Blessings, Jeannie
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