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November 3, 2005, 6:29 pm PST
Could your daughter have it?
Quote From: wiseant Today, after watching the Dr. Phil show, was the first time I had ever heard of PWS. I started to wonder if it was possible that my 13 year old daughter could have this disease because she seems to have an obsession with food and would eat constantly if I did not limit her. She is overweight and nothing seems to deter her desire to eat. I have had her tested to see if she had a thyroid problem, something I have, and was told that she was fine. The difference in her behavior compared to the children on the show is that she doesn't become quite so angry and upset when she is denied food so I'm wondering is there a degree of severity? In other words, could someone, say, have a trace and is this something that developes over time or do the symptoms present themselves early in a child's life? I hope this isn't a silly question but I'm so worried about my daughter. She is close to 200 lbs. We have a membership at a gym, she plays sports but is not very active otherwise. Also, she doesn't have any of the developmental issues the children on the show have. That's why I'm asking if it's possible there could be a trace of the disorder without it being full blown. Any comments will be appreciated. It's possible, but doubtful. I say this because if your daughter had PWS, she would exhibit some of the other 'symptoms' that were not even mentioned or were glossed over in this show. For example, at birth she would have been 'floppy' and gotten 0 apgars for muscle tone. It would have been difficult to impossible to get her to eat as a baby. She would not have been able to walk most likely til the age of at least 2. ANd that's just the muscle tone issue. There's lots more. But there are degrees of severity to anything, including PWS. And I do know a woman who was not diagnosed until she was 16. So if you still think it's possible, ask your doctor to give your daughter a blood test and make sure he/she gives the "methylation" type test for PWS. If they give the "FiSH" test, the chance to miss the diagnosis is 30%. I speak from experience.
Good luck.
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