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November 27, 2005, 1:24 am PST
More Info Needed
Quote From: dkhurstI would like to start by saying my 14 year old daughter has had ear infections from 5 months old until about 3 years old. She had her first and only set of tubes when she was two. She has had several audiology exams and her hearing has deteriated for the last 7 years. She has worn digital programmable hearing aides for two years now and in Sept of 05 she had her hearing checked again which by the way is checked yearly, and she has 85% loss in the higher decible ranges. I wanted to know if anyone else has this condition and what has taken place in your course of treatment. I know we face the possibility of her losing her hearing at any time and we ( my daughter and I), life could be worse. God willing she will not have any further hearing loss but it's out of my control all I can do is pray. Thank you for reading my post and god bless all of you. Have you done a stimulation test to show definite deficiency of GH while other endocrine work was normal. Is it possible that the growth hormone deficiency is not the cause of short stature in MGS patients but possibly it contributes to the severity of growth deficiency later on in life and hence affects their ultimate height? If growth hormone supplementation was started, but it is too early to draw conclusions, consider that it is important to regularly check growth hormone, including performing Clonidine stimulation tests in patients with MGS, on regular bases in the first years of life before puberty. This may be too late since there are quite a few hormones added to meat products for quicker growth in animals. I assume that this action was done, but there has not been any details included as to what has been done.
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