Quote From: kafm48Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.
But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.
He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends. He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.
Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.
My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry.
No insight. Michael was still in deep denial. He only took his medications while in residential treatments which never lasted more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel and now look.
He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him?
But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.
His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't see it. The doctors keep saying no insight, no insight, no insight.........................................
But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him.
I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.
I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.
I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore. Money talks, money finds the best facilities, the best psychiatrists. I am a only a teacher my husband is self employed.
I was forced to drop Michael from my state school system insurance because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.
I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?
I am so afraid for Michael . My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.
I just submitted my message on my nephew. I was reading the message board and came across your letter. When I took my nephew to the doctor and then to the mental health clinic when he was diagnosed with schizophrenia, I was told that this mental disorder affects usually bright, intelligent young men and women. For whatever reason they cannot handle the pressure and this is what happens. It is such a shame because most of these young people are so intelligent and have such a bright future ahead of them and then this happens. We are in the same situation with my nephew. He doesn't want to take any medication because he doesn't like the way it makes him feel. He, too, took drugs in college and I asked the doctor if this could be a result of the drugs (mushrooms) and he said no. I worry all the time not knowing what he could do if he has an episode. He has already had several within the last few months where he just goes berserk, talking to himself, waving his arms, trying to climb telephone poles, etc.
As you stated, all we can do is pray for for them. I pray each day for a miracle and I'm not giving up.