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November 22, 2005, 7:59 pm PST

Bright, intelligent young adults

Quote From: kafm48

Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.  

  

But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.  

  

He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends.  He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.  

  

Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.  

  

My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry. 

  

No insight. Michael was still in deep denial. He only took  his medications while in residential treatments which never lasted  more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel  and now look.  

  

He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him? 

  

But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.  

  

His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't  see it. The doctors keep saying no insight, no insight, no insight......................................... 

  

But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him. 

  

I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.  

  

I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.  

  

I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year  maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore.  Money talks, money finds the best facilities, the best  psychiatrists. I am a only a teacher my husband is self employed.  

  

I was forced to drop Michael  from my state school system insurance  because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.   

  

I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach  them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find  them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?  

  

I am so afraid for Michael .  My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's  insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.  

I just submitted my message on my nephew.  I was reading the message board and came across your letter.  When I took my nephew to the doctor and then to the mental health clinic when he was diagnosed with schizophrenia, I was told that this mental disorder affects usually bright, intelligent  young men and women.  For whatever reason they cannot handle the pressure and this is what happens.  It is such a shame because most of these young people are so intelligent and have such a bright future ahead of them and then this happens.  We are in the same situation with my nephew.  He doesn't want to take any medication because he doesn't like the way it makes him feel.  He, too, took drugs in college and I asked the doctor if this could be a result of the drugs (mushrooms) and he said no.  I worry all the time not knowing what he could do if he has an episode.  He has already had several within the last few months where he just goes berserk, talking to himself, waving his arms, trying to climb telephone poles, etc.   

  

As you stated, all we can do is pray for for them.  I pray each day for a miracle and I'm not giving up. 

 
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November 23, 2005, 1:47 pm PST

11/23 Schizophrenia

Quote From: kafm48

Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.  

  

But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.  

  

He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends.  He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.  

  

Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.  

  

My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry. 

  

No insight. Michael was still in deep denial. He only took  his medications while in residential treatments which never lasted  more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel  and now look.  

  

He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him? 

  

But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.  

  

His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't  see it. The doctors keep saying no insight, no insight, no insight......................................... 

  

But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him. 

  

I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.  

  

I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.  

  

I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year  maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore.  Money talks, money finds the best facilities, the best  psychiatrists. I am a only a teacher my husband is self employed.  

  

I was forced to drop Michael  from my state school system insurance  because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.   

  

I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach  them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find  them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?  

  

I am so afraid for Michael .  My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's  insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.  

micheals mom dont give up hope but it sounds like  youll have to find a strucual home for him until he can accept what he has.  I was 21 when i became sick my mom has menttal illness hers is worse she never grew up. anyway I was allways afraid i was going to get hers but i didnt i got major deepresion . im working on my self but dont let him give up on his dreams. He needs to find a whole new way you cant go back to the old . its kinda like AAA people place and things same thing only we need to deal with our problems every day and walk through them or we dont deal well good luck.
 
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November 23, 2005, 6:42 pm PST

Another mother's story &

Quote From: kafm48

Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.  

  

But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.  

  

He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends.  He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.  

  

Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.  

  

My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry. 

  

No insight. Michael was still in deep denial. He only took  his medications while in residential treatments which never lasted  more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel  and now look.  

  

He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him? 

  

But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.  

  

His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't  see it. The doctors keep saying no insight, no insight, no insight......................................... 

  

But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him. 

  

I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.  

  

I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.  

  

I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year  maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore.  Money talks, money finds the best facilities, the best  psychiatrists. I am a only a teacher my husband is self employed.  

  

I was forced to drop Michael  from my state school system insurance  because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.   

  

I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach  them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find  them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?  

  

I am so afraid for Michael .  My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's  insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.  

I, too have a son who was diagnosed with schizophrenia. I know and share your fear of losing your beautiful child. It is a concern I struggle with daily. I will add your son Michael to my prayers , and maybe God will hear our combined pleas and give our boys some peace, and their mom's too !  : ) 

 

My son  is living in a low income apartment, subsidized  by the mental health facility we turned to after he was arrested, and ordered to get treatment. I don't know if he would be alive without the medication. I just hope he continues with it.  

 

I noticed that you mentioned your son's first psychotic episode came after doing mushrooms. This really struck a chord with me, because it's so similar to what happened to my son. He was partying a lot, probably self medicating, and then he tried mushrooms too. That was when it got scary. It makes me curious about the connection....  but it's like the chicken or the egg theory.  Do they start abusing drugs because they have symptoms, or do the symptoms begin after drug abuse? 

 

Anyway, thanks for openly sharing your story, and for letting another brokenhearted mom share a little too. 

 

 

 
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November 24, 2005, 9:14 pm PST

11/23 Schizophrenia

Quote From: kafm48

Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.  

  

But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.  

  

He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends.  He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.  

  

Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.  

  

My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry. 

  

No insight. Michael was still in deep denial. He only took  his medications while in residential treatments which never lasted  more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel  and now look.  

  

He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him? 

  

But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.  

  

His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't  see it. The doctors keep saying no insight, no insight, no insight......................................... 

  

But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him. 

  

I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.  

  

I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.  

  

I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year  maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore.  Money talks, money finds the best facilities, the best  psychiatrists. I am a only a teacher my husband is self employed.  

  

I was forced to drop Michael  from my state school system insurance  because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.   

  

I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach  them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find  them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?  

  

I am so afraid for Michael .  My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's  insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.  

Michaels biggest problem is isolation and lonliness at not having anyone who can understand him. I my self am 42 years old and have suffered from Chronic Paranoid Schiz for over 15 yeats. I 

  

It can be pure hell. 

  

Check out these links for better understanding and ideas and try to get your son on social security. 

  

http://www.freedom-center.org/ 

  

http://yoism.gaiahost.coop/zp/ 

  

Unfortunately Zuzu 's place is no loger open, but there is an effort to create other such places 

modeled after the Sotoria Project. 

 

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January 13, 2006, 8:26 pm PST

I have a Michael, too

Quote From: kafm48

Hello, I'm sure my story is not unique, but I want to say it. I need to say it. Get it out. The last 3 years have been a living hell. Right now, our 20 year old son, Michael, is in short term residential treatment for paranoid schizophrenia. He has been unable to attend school or work since his senior year in high school. It's been 3 years. He got accepted to FSU on a Bright Future Scholarship the summer before his senior year. WE were so proud so happy. He was happy.  

  

But as quickly as the excitement came, it disappeared just as quickly. A month later, he broke up with Emily, the love of his life that summer and slowly spiraled into a deep, deep depression. He turned to alcohol and drugs to self medicate and starting experimenting with harder drugs. He stopped getting up for class, followed me around the house sad and in despair. He wouldn't seek medical help and I was at a loss to reach my beautiful, gifted child. His first psychotic episode happened while visiting friends at FSU and using mushrooms that fall. He came home talking of aliens and being taken up in space ships and speaking rapidly and incoherently. His father and I hospitalized right before Christmas.  

  

He was angry and resentful and embarrassed. He was in denial. All the things in his head were now real to him and we were the enemy trying to ruin his future in college, and with his relationships with his friends.  He was being left behind and he didn't understand why. Everyone now thinks he is crazy. The football player, wrestler, community service award recipient, Calendar Couple, honor roll student etc. etc. etc. was gone.  

  

Now, his life was involved with lawyers for a DUI, a BUI, a drug paraphernalia charge, probation, home schooling, a 3 month stay in a dual diagnosis center in South Florida, another stay in the hospital, a 3 1/2 month stay in another local SRT unit. We went to AA together, we went to family therapy, we went individually to therapy.  

  

My husband and I separated. I filed for divorce. I needed to protect my 2 younger sons. They told me either Michael left or they were. They thought he could change if he wanted. They wanted their older brother back. Not this person that scared them, embarrassed them, made their mother cry. 

  

No insight. Michael was still in deep denial. He only took  his medications while in residential treatments which never lasted  more than a few months. He didn't need the meds, he gained 40 pounds, he hated the way they made him feel  and now look.  

  

He stopped. No more Geodon, no Zyprexia, no more drugs period except the Zanax that quiets his panic attacks but is addictive and harmful in the long term. It is the only drug he wants or takes and it scares the hell out of me. Why do the doctors give it to him? 

  

But, we are the ones with the problem, Michael believes he has no addictions to alcohol or Zanax. He has no mental illness, if everyone would just let him be, he would be fine. But, he has spoken in tongue, he gets messages from the TV. He reads the Bible for hours at a time. He can find no rest, no peace, no sleep, no happiness. He is trapped in his body and mind. He feels ugly and unloved.  

  

His dream for the future are distant memories. He has days he thinks he can go on to college, days he can make a difference in the world, but morning comes and his demon keep him locked up inside his fears and paranoia. He can't break outside the paranoia to move ahead and he can't  see it. The doctors keep saying no insight, no insight, no insight......................................... 

  

But he has times during each day, he hugs you, says "I love You", helps you, smiles at you. He still loves football, the news, music, good food, fishing and friends. He reads voraciously. His conversations are speckled with wit and intelligent, caring, a glimpse of the past. Then the demons step in and push everyone away. No one knows what to say, it is so hard to hear the crazy stuff you simply stop talking, stop calling, making eye contact actually doing anything and everything that may upset him. 

  

I would gladly trade places with my child. Any mother would change places. I do not want to give up hope, but I am tired and scared Michael won't come back to us healthy and whole.  

  

I don't know where to turn anymore for help. I read, and read, and research and talk to agencies and professionals and no one can help us find a safe place for Michael.  

  

I believe his only chance at a healthy life is to go into a long term residential facility with a structured day and medicine supervision. Perhaps a year  maybe longer i hope not but, he is no longer on my insurance and is now on Medicaid and there is no where or no one who wants to help anymore.  Money talks, money finds the best facilities, the best  psychiatrists. I am a only a teacher my husband is self employed.  

  

I was forced to drop Michael  from my state school system insurance  because he wasn't a college student and was living with his father at the time.Thank God, we have since reconciled and I have come to understand that it is not our fault, we did not cause this and we need each other to hold on to because no one else could live through what we do each day. No one could love this child as we do and no one will fight for his recovery if we don't.   

  

I am a teacher specialist/trainer, I have a degree in psychology and i spend my days offering parents and teachers hope for their children with disabilities. I can teach  them about behaviors or ADD/ADHD or learning strategies or brain research in learning. You name it i will find  them help, I will teach a class, I will develop a power point, I will put on a family conference for hundreds. But I can't help my own child........and what happens to Michael when his father and I are gone?  

  

I am so afraid for Michael .  My heart is broken and aches but I will not give up. I believe in the power of collective prayer. I want to believe in miracles. Please pray for Michael's  insight into the illness, please pray I locate a transitional home for him that takes Medicaid, please pray for my younger sons that they will find the courage to forgive.  

Your story was so similar to mine.  My Michael is in jail right now...again.  He is 30 years old and was diagnosed six years ago with bipolar disorder, later schizo-affective disorder.  He has had several arrests, involuntary hospitalizations, and suicide attempts.  He has tried all kinds of medications but frequently chooses to self-medicate with alcohol and street drugs. He is delusional and paranoid, doesn't sleep much, can no longer focus on any activities.  He also has poor hygiene.  He is often angry and sometimes violent. 

  

His brother tries to be supportive and sympathetic but ultimately feels Michael is choosing to act the way he does.  As a family, we do few things together anymore as Michael becomes very stressed around other people.  We are so consumed with his problems, we sadly pay little attention to his brother.  We do not get together with extended family for holidays because we can't leave Michael home alone and we can't impose him on others. 

  

We too live in Florida and can find few resources.  After one of his arrests, he was found incompetent and sent to the state mental hospital.  It was wonderful!  He was safe yet treated by mental health professionals.  He improved greatly but, when found competent, was returned to jail.  Upon his release from jail, we found a group home but they closed a few months later.  The social service agency provided no referrals or alternate placements for Michael.  Although they had some subsized apartments available, there is a one to three year waiting list.  He moved back home with us but  resents what he considers our "control" over his life. 

  

We had applied for Social Security Disability and were so relieved when he was approved.  Then we learned his payment would be too high for him to qualify for Medicaid which was all I really wanted anyway!  In September he became eligible for Medicare and we chose a supplemental plan that had prescription drug coverage but they only covered generic drugs, not the ones that had been keeping him well in the hospital.  He rapidly decompensated when the drugs didn't work. 

  

One of the most difficult things for me during the last six years has been navigating all the bureaucracies involved in trying to keep my son safe -- insurance companies, medical professionals, law enforcement, court systems, social service agencies, and, of course, DCF and Social Security.  I have little energy for my own life anymore and feel like I am always dealing with one crisis or another.  Friends and relatives mean well but they do not understand the reality of living with a mentally ill person or fighting to get them help.  Last week, I snapped at a friend who asked me why I didn't just put him in a hospital!  Where???  Most people out there do not realize all the obstacles the mentally ill and their families face. 

  

Reading your post and some of the others actually helped me.  I have often felt like I must be doing something wrong or I would have "fixed" Michael by now.  These posts let me know that many others out there are going through the same thing. 

 


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