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Replies to 'Staying Sick or Exaggerating for the Payoff?'

 
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February 14, 2006, 10:56 am PST

Chronically, clinically and documented

Quote From: emuposs

Hi all,  

  

Im a lady in Australia currently suffering from Vestibular Neuronitis.  I have been off work since feb 2004.  I have manage to get back to work in August 2005 but now Im back with issues of ill health and viability of continueing work.   

  

Vestibular Neuronitis is where you have constant vertigo.  You move slower to minimise the spinning, sometimes you fall over, you sometimes have brain fog and unable to think quickly.  All though we look normal our inside world is a spinning mess!!!   Its not something you die from but it does disrupt our lives.  Im worried I will get the sack from too many miss days at work.  Its hard to go catch the bus when your world is spinning and you feel like your drunk 24/7.  I should state I don't drink alcohol and I don't take drugs.   There is not much the doctors can do for it and apparently your own body gets used to it or something.   

  

I had a friend who loved being in hospital gaining attention and doing stupid things to get herself in hospital.   Thankfully she has stopped this, but I think it stems from something missing in her own life that she feels/felt the need to do it.   

  

Im just here to let you know that going through a chronic illness and that from the outsider we all look normal.  Doesn't mean something is not happening.    

  

My spinning life is hell.   Work, income, friends, family are all an issue.   

  

Take Care 

Blessed Be 

Emuposs.  

Hello out there , first let me tell you, I was healthy and productive , happy and a shop a -hollic until, my first documented infection, this was just a simple nail puncture. I love working in the garden on my days off from 2 jobs and three teenagers and three grandchildren. I love life still do, still try to do normal things like shop and paint and will try to dance.  

  

After the infections, before I got the nail infection that spinned off into my body, I got bite by a Lyme in fected tick, I have seen the best in other state, I have a positive Lyme titer every time other than when they have me on IV anitboitic. I have fevers on and off, chills , pain and swellling in the joints, my ANA is high a blood test 160 -200, along with Sediamentation Rate over 10 times the normal level 105, check with you favorite physician. I have Lymphempia rare from Chemo CD3 CD4 CD8, that was only to protect me from developing because I had high multi-pre cancerous growths in my breast both of them, and they recommended removing them, that was an easy choice not, I just wanted to suffer for the attention. Having had JRA and  now RA . the MRI not me, show such bad decaying that I am in need of replacement of both knees, it has been painful for years, but my immune system would not allow for surgery, and anti- inflammatories and steroid caused more problems.  My MRI shows my should is seperated, and frayed and torn at the rotator cuff, have you ever experieinced any of these pains. I have had so many operation, feared for my life, and very alone, know one can save you if something goes wrong, avoiding them could have for sure meant my life. I live with a port in my chest, that is painful, a cavity that an implant failed, and scar tisuue that feel like my chest has been riped open again.  

  

I lay in bed at night praying for relief, and reminding me that I am not alone. I live alone though I have family. I have had sevral life threatening surgeries, and each time, I came home too a emty house. Do you know what a drain is, well I had 6 of them hanging from the tissue in my chest. I had too call someone to empty them, I could not reach the two under my arm pits.  

  

Do you know what it is like to have arthritis pain, stop talking them , you are judging. It is usually coming from someone that has a problem with self, that is you have a disorder known as the ME syndrome. You probably forget that person is the one, that got up in the middle of the night to care for you, when you were puking, and sick. They picked you up when you were hurt, every break a bone, it hurt, who was loving and caring too you.  

  

It takes time from your life, it takes emotion, it takes a loving heart. Maybe you so not like the feelings that are generated from her complaining. In most cases, most no one wants too suffer, no one wants to complain, it is humilating, it is like begging.  

  

Just maybe if you checked in on her, brought her flowers, or send a card telling her you are praying for her, you love her and you stop judging her, you may find she might be frighten. Pain is a signal in the body that something is wrong.  

  

Not to say all are terminal, but buddy do you know as a Cancer Advocate how many, complained, were judged by their family and friends and spouses and are dead from the underlying problem, and all the test and hospitalizations did not find it.  

  

I lost two very close friends, both were being brushed of as hypocondrac, they had cancer both, rare forms.  

  

It is better to love and be compassionate, I have a friend she is mildly special needs, she is a teacher aid, she was living in abusive situation with her family. She was suffering chest pains, she was convienced, she was dying of cancer or heart failure. Short story, I got her to move out of that situation, it was the stress, the muscles in her chest tighten up so much, she suffers real chest pains, they are real. The resolved with the change or resolution to the issues, it happens now every time she is put up against a wall. I am training her to leave the situation, bring in a mediator or do not go back, deal with the situation in a different way if you can.  

  

Love, kindness, and recalling your needs in the past, she is human she has the same. Offered to go and listen to her doctor, they do not just cut some one open for nothing, they have peer review and the HMO watch very closely. Stop now, before you make her depressed, you can do that and not even mean too. Judge not less you want too be judged later. When I am looking find maybe I am on a medication that is working now, or remission, or just striving to live , before life passes me by, like the rest of the world. Do that mean I am not chronically ill, "I wish".  

We have dream and asperations too.  

  

Say a pray for you and her and I will too.  

Extreme 206 

 


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