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Replies to '01/17 Extreme Disorders'

 
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January 16, 2006, 5:06 pm PST

Hangon

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

Please hold on and watch.  I know how you feel and that's why I wrote Dr. Phil.  The message board is taking up my life right now but that's OK because maybe WE ALL CAN GET HELP.  Alex is AS as well as ADHD and has Mood Swing Disorders. 

  

Schools do not have the training and the facilities to work with us.  We have been a bit luckier but I battle with the school system weekly (sometimes daily).   

  

After the show you will know where to turn, if not, please contact me through the message board again and I will be there for you. 

  

Please know there is light at the end of the tunnel but the tunnel is long...............................We still have not started the new treatment yet and we are awaiting the next stage. 

  

With loving thoughts.  Karen 

 
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January 17, 2006, 2:53 pm PST

Help In Texas

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

Check out the Parent Training and Information Center website at www.partnerstx.org for Texas.  Partners Resource Network has free information and resources for families of students with disabilities. We are a not for profit organization and have regional coordinators that cover the various Education Service Center regions in Texas.  There are 3 projects with offices that have toll free telephone numbers. 

  

Each state in the United States should have a Parent Training and Information Center and/or Community Parent Resource Center.  These centers can assist with IDEA (Individuals with Disabilities Education Act), disability information, local resources, preparing for school meetings, reviewing IEP's (Individual Education Plans), just to name a few. 

  

I am a parent of a 16 year old son who has had too many diagnosis to list. We suspect Aspergers or Pervasive Developmental Disorder. I am a Regional Coordinator for Partners Resource Network and previously worked in the classroom as a Special Education Teacher. 

  

I have been through many ups and downs and continue to persevere because my goal for my son is that he become a productive adult with his gifts shining.  Talking to others with similar experiences helps each one of us to know that we aren't alone and that our paths may be rocky, but there are others who understand and are compassionate. 

 
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January 17, 2006, 3:42 pm PST

01/17 Extreme Disorders

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

my son is 18 now.   i feel for everything you wrote, the middle school was our nightmare. we never knew what trigger buttons would push my son back then.   but distracitons, loud noise, rude children, teachers who thought he was a brat or needed discipline led to a decline in my sons self esteem, that im not sure i can help him to overcome. so fight for your son.  my son was misdiagnosed until 17 with adhd and treated like the 1/3 of other boys in the school, no respect. if i could go back, i would fight more for alternative optionsfor schooling from your own school. they have to give these for children with disabilties. be persistent. remind you child how smart he is and ask him where he has the problems with learning, hearing it? writing it down. understanding?  have him tested  for auditory  and what ever else his psch may suggest.  but keep pushing. i'm still fighting for, against and sometime with my son on a daily basis.  but a year ago for mothers day my son gave me  a card that read...thanks for not giving up on me when i did.  remember that. because no matter how he may not seem to aknowledge what you do.   he knows and it will help.  good luck and god bless your family
 
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January 17, 2006, 6:19 pm PST

School System

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

Hi, My Grandson has many issues. He is in a small self contained classroom for emotional disabilities. Your child is entitled to addition help from the school. They could put a 504 plan in place or an I.E.P. (individual education plan). There are many websites you can find information on about IDEA,504, and IEP's. Your child has a neurological disorder and  the school should be working on a behavior plan as well as a support system for him at school. you might try.(http://www.wrightslaw.com/idea/pubs.htm), (http://www.behavenet.com/capsules/disorders/asperger.htm) 

http://www.nimh.nih.gov/nimhhome/index.cfm, 

(http://www.edweek.org 

http://www.ed.gov/news/newsletters/extracredit/subscribe.html.  

TheExceptional Education Department- for his school 

I hope I haven't been overly pushy but most parents don't know their children with special needs can get more help. The schools aren't forthcoming with the information, we have to dig for it. Also contact the Aspergers Information Center in your state.  

 


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