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Replies to '01/17 Extreme Disorders'
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January 17, 2006, 2:56 pm PST
 Quote From: karen_kiki Isn't it amazing how many people think they know how we should parent our children. Our special needs children are unique in that they may show symptoms of the syndrome and yet at other times look and appear as TYPICAL as any other child/person.
We too have been at outings where people have commented on Alex's behavior and I want to shake them and scream at them and tell them not to judge. Until you have lived in my home and see what day to day life is all about you will never understand.
Keep doing what you think is best for your child. Keep reaching out to others for help and don't give up. I will continue to search even beyond what Dr. Phil and his staff may be able to provide. I want Alex to have the best life he can have and I want to see him make a difference for others as well.
I look forward to the day when I don't have to panic every time I see the Mood SWINGS.
With prayers to you and yours....I look forward to working with you and others to make AS a household name so we can find the answers for our children and ourselves.
KIKI I and my wife have lived with an AS child for 14 years. So I can speak from experience and say first of all that i am slightly confused by what I saw on the screen. I watched your segment twice now the second time with my wife. Screaming at a child with AS does nothing but escalate that anger,second we noticed that some of his actions and interactions with Dr Phil did not seem to match with AS, such as good eye contact and expressing his feelings. With our son we cannot drag an emotional response out of him. When asked a question relating to emotions he cannot come up with the words to respond. It sounds like your son has social interactions at school our son has no friends and very limited social interactions and does not want to seek out those social interactions even when encouraged to do so.
I hope the brain scan he has will help definitley diagnose him because I suspect that if he has AS it is not trully the major problem in his life. I am also dissappointed that Dr Phil did not discuss any of the treatment or support you and your family has received because that would have been more helpful than scaring people about AS by showing the clips that were shown. I blame Dr Phil for that one. However, I was shocked by the screaming matches that took place between you , your husband and your son. I can honestly say that we have never had such screaming matches in our house. Which is not to say that our son has not had extreme out bursts, He has , in cluding inflicting wounds on his brother that required medical treatment and varying from screaming at the top of his lungs to not saying a word for hours because he did not want to respond to us.
With the help of an outstanding child psychologist and therapist (whom he trusts) and an appropriate pharmacological solution properly administered and understood by our son he has come to a point in his life where the outbursts now limited in frequency and duration and severity. It does not sound to me that you have found that kind of help and support as yet and it is my sincere hope that you find through the help of Dr Phil.
Sincerely Craig S. Wolfe wolfeden927@comcast.net |
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