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Replies to '01/17 Extreme Disorders'
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January 17, 2006, 2:27 pm PST
 Quote From: kykatt2 I have an 11 yeard old son who who has an "Autism " label within our school system. He was given one diagnosis as "Expressive/Receptive Language Disorder". It does fall under the ever widening "Autism" window.
He does not understand much of what we ask him and can communicate back less. The "speech teacher" at his school had never even heard of this disorder. I had been told is was a rare form of "Autism". So I stay frustrated becasue I feel I have let him down by not being able to get him the help he needs to break through this bubble he is in.
We had been getting him additional help and therapy when he was 4-5 years old... but our insurance pulled it from us because it was "NOT MEDICALLY NECESSARY" Even a letter from his Doctor would not make the Insurance company change his mind. I really do not think they ever "REVIEWED his file and all the support I gave them for why they should continue to pay for his therapy.
He repeats tv shows, computer games, movies, makes lots of noises. The more stressed he is the more he does these things. We have tried "medications" to help calm him but he began to get violent on them and I was afraid for his little sister. I tried to get him into a Psychiatrist that his Doctor referred him to... the best one in Roanoke Virginia.. but he was 9 and was too old to be accepted as a "NEW" patient. I would have to go 2 hours away.. and then maybe they would be able to get him accepted my this local Dr.
We have limited funds to help him. The school system is useless. I am a stay at home mom mainly because of Joshua. My husband is self employed... and the health insurance we carry( same one we had that denied help for Joshua) charges us $ 700.00 a month and will not pay for any diagnoses, or help for my son.
Now that his hormones are changing... he has mood swings , sometimes he gets very very happy.. other times he gets stressed, angry or even violent.
All these things with Joshua bring back very painful memories of my child hood. My brother had severe Autism.. he had no speech and was not even diagnosed till he was 13-15 years old. My mother cared for him till the day she died.. he died 3 months later. I watched my mothers sacrifice and sometimes I even get angry because I see myself facing the same things. Unless I can get Joshua help( and at his age it is getting too late) I will have to care for him as long as I live as well.
All I ever wanted was a "Normal " family life.... There is help for your son! Please check out any sites you can find on the Gluten Free/Casein Free diet. specifically, look for Special Diets For Special Kids I & II by Lisa Lewis. You really will see a difference in your son! Don't attempt to cut out foods without blood tests and supplementation. here in Pennsylvania, there is a wonderful doctor named Scott Faber. He's the Autism Guru! Phone number is 412-420-2561. There is a waiting list but PLEASE get Joshua on it. YOU WILL NOT REGRET IT! |
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January 17, 2006, 8:11 pm PST
Quote From: kykatt2 I have an 11 yeard old son who who has an "Autism " label within our school system. He was given one diagnosis as "Expressive/Receptive Language Disorder". It does fall under the ever widening "Autism" window.
He does not understand much of what we ask him and can communicate back less. The "speech teacher" at his school had never even heard of this disorder. I had been told is was a rare form of "Autism". So I stay frustrated becasue I feel I have let him down by not being able to get him the help he needs to break through this bubble he is in.
We had been getting him additional help and therapy when he was 4-5 years old... but our insurance pulled it from us because it was "NOT MEDICALLY NECESSARY" Even a letter from his Doctor would not make the Insurance company change his mind. I really do not think they ever "REVIEWED his file and all the support I gave them for why they should continue to pay for his therapy.
He repeats tv shows, computer games, movies, makes lots of noises. The more stressed he is the more he does these things. We have tried "medications" to help calm him but he began to get violent on them and I was afraid for his little sister. I tried to get him into a Psychiatrist that his Doctor referred him to... the best one in Roanoke Virginia.. but he was 9 and was too old to be accepted as a "NEW" patient. I would have to go 2 hours away.. and then maybe they would be able to get him accepted my this local Dr.
We have limited funds to help him. The school system is useless. I am a stay at home mom mainly because of Joshua. My husband is self employed... and the health insurance we carry( same one we had that denied help for Joshua) charges us $ 700.00 a month and will not pay for any diagnoses, or help for my son.
Now that his hormones are changing... he has mood swings , sometimes he gets very very happy.. other times he gets stressed, angry or even violent.
All these things with Joshua bring back very painful memories of my child hood. My brother had severe Autism.. he had no speech and was not even diagnosed till he was 13-15 years old. My mother cared for him till the day she died.. he died 3 months later. I watched my mothers sacrifice and sometimes I even get angry because I see myself facing the same things. Unless I can get Joshua help( and at his age it is getting too late) I will have to care for him as long as I live as well.
All I ever wanted was a "Normal " family life.... I don't know if what I am about to suggest will help. I hope it does. My son has ADHD and Aspbergers Disorder. He is 7 years old. In the last 2 years my income has doubled and the companies I have worked for would not take care of my son's treatments other than medication on the prescription plans, because it was considered "preexisting medical condition." I live in PA and I was able to get my son ACCESS which is our federal aid for disabled citizens. The state covers all his medical expenses and behavioral services. Being that he has an autism disorder he automatically qualifies. I get in-home services, at school services, and in office services. I was lucky and when he was 4 years old I enrolled him in Head Start and they forwarded me to everyone. But if you contact the County Assistance office in your area they would be able to help you with contact numbers in your local area. I had to personally relocate to a different school district for kindergarten last year b/c in our local area they are unwilling to help kids.
I know from my ex-husbands family(he had an 8 year old sister) that VA is unwilling to look at kids individually or offer any assistance to parents. I was lucky and there are 2 school districts within a 50 mile radius of me that are good and wanting to help kids. You will will have to get an IP(sorry lack the memory of what it means) but it is a federal evaluation that force the school to appreciate your childs rights and privileges as a person with moderate/extreme assistance. You can force their had.
If you try my suggestions and can't get any other resources on your own, let me know. I can always check with my son's caregivers to see if they have any suggestions. ;) drop a line on here and I will try to get into contact with you. |
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