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January 17, 2006, 2:27 pm PST
01/17 Extreme Disorders
Quote From: dsmom1stMy 8yr old son has PDDNOS-Pervasive Developmental Disorder Not Otherwise Specified which is an ASD. At least that's what we've been in therapy for for the last 5 years. We just had a third evaluation on him for school as they didn't like all of the supporting documentation that was provided to them by his many doctors and therapists and I didn't feel that their observation of him was thorough enough to discredit all of that same documentation. The dr who did the last eval said that since he scored SO very high on all of the IQ tests and he did well with the testing that she couldn't support the PDDNOS diagnosis. Oh, my son has a secondary dx of Impulse Control Disorder so it can get pretty interesting around our house. I wish I could have the brain scan that was mentioned on the show today done on my son so all of those nonbelieving doctors and so on could actually see what biochemical changes go on inside the brains of those who live with this disorder. I had a Dr tell me the original diagnoses of my 6 year old was wrong because of his IQ and speech yet 2 others gave me the PDD-NOS diagnosies. I have done so much independant research into ASD I know that my son fits the criteria. The school sent me to that Dr but they felt that that Dr was wrong as well that he fit in the Autism Spectrum. A parent knows their child better than anyone in my opinion and the Dr's need to at least hear what we say and not just dicredit us. other opionions never hurt and you may feel better too.
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