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Replies to '01/17 Extreme Disorders'
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January 17, 2006, 3:56 pm PST
 Quote From: srawlings We tried this diet for a whole year and it did nothing for our son. In fact, I have talked to many people who have tried the diet and it hasn't helped. I am not saying it hasn't helped some people but it is not a cure all by any means. I spent hundreds of dollars a month at the health food store and have nothing to show for it. Now on the otherhand, I have used a vitamin/nutritional shake with him for almost two years that has helped a lot. It has increased his eye contact, made him more focused, able to concentrate, able to sleep through the night, no more seizures, and he is more social. If you want to know more you can e-mail me at bersmr@charter.net. Take care. Just wanted to let you know, there are simple tests that can be run to see if your child would benefit from this diet. It's called a urinary peptide test. There are only a few places to have the test done. One is Dr. Cade @ the University of Florida (he invented Gatorade), also Great Plains Labs. This is a simple urine collection. The test will show if your child has elevated antibodies to casein and gluten. We were told that normal antibodies were between 1 and 80. Our son's tests came back well over 2000 for casein and over 2700 for gluten. We saw immediate improvements after removing casein (dairy). It took well over 6 months to see any changes after removing gluten. Some don't see anything for a year or more. The problem is removing ALL intances of gluten. It is hidden in MANY ingredients, i.e. natural flavorings, malt flavoring, MSG. I don't know your situation, but is it possible that not all instances were removed?
This diet definately is not a cure, but it can be a crucial step down that road. Like I mentioned in my original post, most ASD kids have absorption problems. Methylcolbamin or MB-12 is essential, along with Cod Liver Oil, probiotics, digestive enzymes, Vit. C, minerals, etc.
My point is this: I am not a dr. Have your child tested. If their urinary peptide antibodies are elevated, the diet will help. Yes it is expensive, yes it is hard, but YES it is worth it. If gluten and casein are elevated, those enzymes are not being processed, but leaking out of the gut and into the blood/brain barrier.
Read a great book: "Unraveling the Mystery of Autism and Pervasive Development Disorder" by Karyn Serrousi. It's excellent. Then get Lisa Lewis' book: "Special Diets for Special Kids". There are some great recipes, and excellent resources in both these books.
If you want more information, please email me privately.
Kerri |
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