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Replies to 'Depression'
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February 15, 2006, 3:15 pm PST
 Quote From: heather175 I pray she has outgrown the condition. What a blessing that would be. It has to be the biggest fear you can come across when your child's well being is in potential jeopardy.
My son has marfan syndrome. It's a genetic disorder that affects the connective tissue in muscles and also elongates the bones. There are man, many ways it can affect the body but the most severe obviously is when it affects the heart and lungs. He has to go to the cardiologist every 2 years for now unless something happens before then. Praise God he is fine for now. The only symptoms he has for now is having a heart murmur, very long wingspan (fingertip to fingertip), being tall, being very flexible, and having crowded teeth and palate. No biggy, I can handle that stuff. Just an interesting bit I have learned through this.... Did you know that you are the same height head to toe as your wingspan from fingertip to fingertip? Except for my son, LOL his wingspan is bigger than him. Even though he already almost 6 ft. at 13. Marfan is what a lot of athletes dye from. The over exertion the put on their heart is more than the weekend tissue in the heart can take & it causes the aorta to rupture. That on female olympic runner (can't remember her name, think it starts with a "J") died from it. Also Abe Lincoln had it. He of course died of other unnatural causes. LOL! Sorry....didn't mean to ramble on about my own issues. I am praying for your daughter and family and hope you get the best possible news.
Heather I am hopeful that she will outgrow it. I am lucky where she is concerened though. What she has isn't fatal, or even really dangerous. Only if her heart goes too fast for too long. I have accepted that she requires the additional care of being checked with the stethoscope. Don't get me wrong, when she was first born, and had to be transfered from Bowling Green, Ky, to Nashville, Tn, and hour after she was born, I was not so accepting. I was scared to death. But, she is otherwise a totally heathy, growing, happy baby. If her heart beats too fast for a long time, her blood presure can get too high, and put too much stress on her heart. I done some research on it, and learned that when you see on the news that a ten year old had a heart attack while playing baseball or something like that, it was most likely caused by the same condition that Kiwi has, or one like it. It just was not known about, because one of the only ways to find it is an EKG, and that's not really a standard test for a checkup. But with medication, and observation, she will be fine if she has not outgrown it. I am glad your son is alright for now. I hope nothing happens to change that. Thank you for your prayers. :) |
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