Replies to '08/01 Extreme Highs and Lows'

 
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March 7, 2006, 1:09 pm PST

7 year old daughter bi-polar, adhd, profoundly deaf

Quote From: missmouse

I was thrilled to see this topic on the show, and knowing Dr. Phil,  he won't sensastionalize the disorder.   I have been living with this my whole life, my older brother was Bi Polar and ultimately ended his life at the young age of 28.  When my son was diagnosed, by a very trained, highly specialized pyschiatrist almost 2 years ago, I had to become my son's best advocate and learn eveyrthing and more about this disorder in younger children.  I wish Dr. Phil would also show younger people living with bipolar and the effects on the entire family.   

With my son, everyday is a rollercoaster. He has called 911 on his oldest brother for changing the TV station, he has told me I was going to burn in hell, threatened to harm himself and others.  During his Manic periods, the stress level in our home increase aobut 100%.  Our medical expesese are through the roof (and that's just was our HMO won't pay)  

 He was admitted to a children's behavioral center last summer (one of the youngest they've seen), but still every day is a challange. He has a very hard time in school.  He sees a psychiatrist, two psychologists and is on meds.  Without the  meds, life in our home is an utter nightmare.   

My son, has co curring disorders, along with Bi Polar he is also ADHD, which makes for even more challages.  I would not wish this problem on anyone and hope that with educating the public and educators (our school still doesn't "GET IT", they still, after 7 months think he is only ADHD with some "behaviour" problems" even though I've printed out documents from the BiPolar Kids web page for the school!).  It's so unfair not only the person who has to live with this disorder but to their families who  have to deal with ignorance about it on a daily basis.  I had the unfortunate experience last spring of having a mother (whom I thought was a good friend ) report me to CPS about my son, she told the case worker it was munchusin sydrome by proxy and I was pursposely  making my son ill.....what a load of crap.  She has to this day, not apologized for what she did, for the hell she put not just my son, but my other two children, my husband and I through.  The case worker saw all my documentation and the records I keep on all my son's doctor appointments, his meds, and all that, and dismissed the case, but the fall out was horrendous. 

I am hoping with Dr. Phil's show some of the stimga wiill be removed from this disorder.   

Thanks for "listening"  

And keep up the good work Dr. Phil!  I was in the audience on Feb. 23 and loved it!   

  

Mommy to a bipolar 6 year old, Victoria 

  

 My 7 year old daughter was recently diagnosed with bi-polar disorder.  She has been a difficult child since she was born, but I would never have thought she was bi-polar.  She is profoundly deaf which makes getting her help so very difficult.  We have not been able to find a doctor that can sign.  She see's 2 doctors, a psychiatrist, and psychologist.  She also see's a behavioral specialist at her school for the deaf.  The school does not believe she is bi-polar and feel that it is the diagnosis of the moment for children. 
It is so difficult, the doctors cannot communicate with her, so they just sit and view her.  All their information comes from us.  I feel she needs the opportunity to have someone talk with her, to ask her what she feels, but we cannot find anyone that works with the deaf in the field of psychiatry. 
We have no family history of bi-polar disorder in our family, which also leads me to believe that this may be the wrong diagnosis.
She also has been diagnosed with ADHD and is on meds for that, which seems to help in her being able to sit and finish a task, and controls most of her hyperactivity.  As the drug wears off she becomes extremely hyper.
She has behavioral problems, and frequent long lasting violent rages.  She becomes so strong during these rages that it is almost impossible for 2 adults to control her.  She is on a med. at night to help calm her down and get her to sleep, prior to her being on this med. she would only sleep about 4 hours a night, and go strong the next day with no naps and continue the cycle.
I feel so lost, so helpless, I have done hours and hours of research,  numerous phone calls, but cannot find anyone that can help my daughter, short of giving her meds, but without, what I believe spending time with her and communicating with her (due to her deafness) to make this diagnosis.
Our lives are out of control and have no where to turn.

Mamma to Madison, Caroline
 
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March 7, 2006, 4:09 pm PST

03/07 Extreme Highs and Lows

Quote From: missmouse

I was thrilled to see this topic on the show, and knowing Dr. Phil,  he won't sensastionalize the disorder.   I have been living with this my whole life, my older brother was Bi Polar and ultimately ended his life at the young age of 28.  When my son was diagnosed, by a very trained, highly specialized pyschiatrist almost 2 years ago, I had to become my son's best advocate and learn eveyrthing and more about this disorder in younger children.  I wish Dr. Phil would also show younger people living with bipolar and the effects on the entire family.   

With my son, everyday is a rollercoaster. He has called 911 on his oldest brother for changing the TV station, he has told me I was going to burn in hell, threatened to harm himself and others.  During his Manic periods, the stress level in our home increase aobut 100%.  Our medical expesese are through the roof (and that's just was our HMO won't pay)  

 He was admitted to a children's behavioral center last summer (one of the youngest they've seen), but still every day is a challange. He has a very hard time in school.  He sees a psychiatrist, two psychologists and is on meds.  Without the  meds, life in our home is an utter nightmare.   

My son, has co curring disorders, along with Bi Polar he is also ADHD, which makes for even more challages.  I would not wish this problem on anyone and hope that with educating the public and educators (our school still doesn't "GET IT", they still, after 7 months think he is only ADHD with some "behaviour" problems" even though I've printed out documents from the BiPolar Kids web page for the school!).  It's so unfair not only the person who has to live with this disorder but to their families who  have to deal with ignorance about it on a daily basis.  I had the unfortunate experience last spring of having a mother (whom I thought was a good friend ) report me to CPS about my son, she told the case worker it was munchusin sydrome by proxy and I was pursposely  making my son ill.....what a load of crap.  She has to this day, not apologized for what she did, for the hell she put not just my son, but my other two children, my husband and I through.  The case worker saw all my documentation and the records I keep on all my son's doctor appointments, his meds, and all that, and dismissed the case, but the fall out was horrendous. 

I am hoping with Dr. Phil's show some of the stimga wiill be removed from this disorder.   

Thanks for "listening"  

And keep up the good work Dr. Phil!  I was in the audience on Feb. 23 and loved it!   

  

Mommy to a bipolar 6 year old, Victoria 

  

Hi i wass wondering if you could e-mail me the web page. And if you are comfortable te name of the doctor your son goes to. He could possibly refer me to 1 near me. My wife and i have a boy who is almost 4. We have raised the concerns about our son to his doctor .But she will not listen. And seems to think we are being oeverly concerned. My wife is bipolar and ADHD. so our concerns are very real. We really could use your help. Thank You 

              

                          Rick and Katie 

 
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March 7, 2006, 10:53 pm PST

I have an 8 1 /2 year old daughter

Quote From: missmouse

I was thrilled to see this topic on the show, and knowing Dr. Phil,  he won't sensastionalize the disorder.   I have been living with this my whole life, my older brother was Bi Polar and ultimately ended his life at the young age of 28.  When my son was diagnosed, by a very trained, highly specialized pyschiatrist almost 2 years ago, I had to become my son's best advocate and learn eveyrthing and more about this disorder in younger children.  I wish Dr. Phil would also show younger people living with bipolar and the effects on the entire family.   

With my son, everyday is a rollercoaster. He has called 911 on his oldest brother for changing the TV station, he has told me I was going to burn in hell, threatened to harm himself and others.  During his Manic periods, the stress level in our home increase aobut 100%.  Our medical expesese are through the roof (and that's just was our HMO won't pay)  

 He was admitted to a children's behavioral center last summer (one of the youngest they've seen), but still every day is a challange. He has a very hard time in school.  He sees a psychiatrist, two psychologists and is on meds.  Without the  meds, life in our home is an utter nightmare.   

My son, has co curring disorders, along with Bi Polar he is also ADHD, which makes for even more challages.  I would not wish this problem on anyone and hope that with educating the public and educators (our school still doesn't "GET IT", they still, after 7 months think he is only ADHD with some "behaviour" problems" even though I've printed out documents from the BiPolar Kids web page for the school!).  It's so unfair not only the person who has to live with this disorder but to their families who  have to deal with ignorance about it on a daily basis.  I had the unfortunate experience last spring of having a mother (whom I thought was a good friend ) report me to CPS about my son, she told the case worker it was munchusin sydrome by proxy and I was pursposely  making my son ill.....what a load of crap.  She has to this day, not apologized for what she did, for the hell she put not just my son, but my other two children, my husband and I through.  The case worker saw all my documentation and the records I keep on all my son's doctor appointments, his meds, and all that, and dismissed the case, but the fall out was horrendous. 

I am hoping with Dr. Phil's show some of the stimga wiill be removed from this disorder.   

Thanks for "listening"  

And keep up the good work Dr. Phil!  I was in the audience on Feb. 23 and loved it!   

  

Mommy to a bipolar 6 year old, Victoria 

  

Dear victoria I wish you would email me I am so tired and frusterated my daughter is being treated for bi-polar and ADHD it is a nightmare, I am just starting out I was wondering if you had the time if we could become email pals and if I could ask questions and talk to you just one on on? thanks!! Cheri sbutterfly321@sbcglobal.net 

 
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July 30, 2006, 10:29 am PDT

08/01 Extreme Highs and Lows

Quote From: missmouse

I was thrilled to see this topic on the show, and knowing Dr. Phil,  he won't sensastionalize the disorder.   I have been living with this my whole life, my older brother was Bi Polar and ultimately ended his life at the young age of 28.  When my son was diagnosed, by a very trained, highly specialized pyschiatrist almost 2 years ago, I had to become my son's best advocate and learn eveyrthing and more about this disorder in younger children.  I wish Dr. Phil would also show younger people living with bipolar and the effects on the entire family.   

With my son, everyday is a rollercoaster. He has called 911 on his oldest brother for changing the TV station, he has told me I was going to burn in hell, threatened to harm himself and others.  During his Manic periods, the stress level in our home increase aobut 100%.  Our medical expesese are through the roof (and that's just was our HMO won't pay)  

 He was admitted to a children's behavioral center last summer (one of the youngest they've seen), but still every day is a challange. He has a very hard time in school.  He sees a psychiatrist, two psychologists and is on meds.  Without the  meds, life in our home is an utter nightmare.   

My son, has co curring disorders, along with Bi Polar he is also ADHD, which makes for even more challages.  I would not wish this problem on anyone and hope that with educating the public and educators (our school still doesn't "GET IT", they still, after 7 months think he is only ADHD with some "behaviour" problems" even though I've printed out documents from the BiPolar Kids web page for the school!).  It's so unfair not only the person who has to live with this disorder but to their families who  have to deal with ignorance about it on a daily basis.  I had the unfortunate experience last spring of having a mother (whom I thought was a good friend ) report me to CPS about my son, she told the case worker it was munchusin sydrome by proxy and I was pursposely  making my son ill.....what a load of crap.  She has to this day, not apologized for what she did, for the hell she put not just my son, but my other two children, my husband and I through.  The case worker saw all my documentation and the records I keep on all my son's doctor appointments, his meds, and all that, and dismissed the case, but the fall out was horrendous. 

I am hoping with Dr. Phil's show some of the stimga wiill be removed from this disorder.   

Thanks for "listening"  

And keep up the good work Dr. Phil!  I was in the audience on Feb. 23 and loved it!   

  

Mommy to a bipolar 6 year old, Victoria 

  

we have a son who is 13. we adopted him when he was 4 and we have been dealing with this since then. he has been hospitalized 8 times since we got him. they cannot get meds that work for any period of time. his first hospitalization was at the age of 5. his biological mother has biopolar and i believe his younger sister probalby has it also. we live with the stress daily. it is really had because people do not know and understand what we go through on a daily basis.
 


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