Replies to 'When a Family Member Gets Sick'

 Hi creative. The last message you recieved was by one called sleepyfrog. I am a member of the same message board as sleepyfrog. Talk about sleep is a great place to visit! For those old and young with all sleep disorders and for those that want to learn more or just ask question! This message board AND chat room has helped me come out of 15 yrs of denial! I also have Narcolepsy with cataplexy and a few other things! I started having signs when I was about 15 but I did not get any answers until I was 20. Narcolepsy was not very well known at that time!  Visit and join our sit and you will see what bonding really means! All of these folks on this site are very warm hearted People and Are the ONLY ones that know what your daughter is going through!!!! talk about sleep also has a message board and chat fot Nacoleptic under 30....This will help her alot with her self esteme! One piece of advice from one with Narcolepsy. Have her do her research. Inorder to understand herself she must first understand her condition! Denial is always a stage we all go through ( iwent through it for 15 yrs) So the sooner she faces this The sooner her life will become less complex! I wish you the best of luck and hope to see you on our site....Noddingmom

Hi...if you or your daughter want to communicate with others with Narcolepsy please visit www.talkaboutsleep.com there is an under 30 section and regular both welcome all ages though.  

  

Narcoleptic Network runs the above and is a great source of information and understanding. I sincerely hope that Dr. Phil considers a show especially since March 27-April 2 is Sleep Awareness Week. 

  

Rio~ 

    I hope that you and your daughter are very close.  It is very difficult having narcolepsy.  I was just diagnosed.  I am on a cpap machine every night. I am on Ritalin because Provigil is too expensive and I don't have any insurance.  I had all the symptoms but I thought it was just lack of sleep because I was working two jobs to make ends meet.  I had a small fender bender because I fell asleep, then I had a big accident because I was not paying attention to my driving. I panicked and caused a three car accident. If I had been more aware I would have hit the brake instead of the accelerator.   Just let your daughter know that she is not alone. Hopefuly there will be a cure.  It is nice to know that even a normal 14 yr old can have this strange condition.  My parents are trying to get me to get another part time job but I am terrified that I will get into another accident if I have two jobs .