Replies to 'How I Fought My Illness'

 
User Mood
Cranky

Message Emote
blank
August 31, 2005, 5:22 pm PDT

sarcoidosis

Quote From: gallbrg

   

I have scarcoidosis and it is destroying me and has destoryed my family.  

My wife wants a divorce, & at the time I need her the most with all the medcial tests I have been going through lately she just plain hates me.  

It is not my fault that I have this disease.  

It has affected my lungs and now possibly my heart.  

The medicine I am on makes me feel sick most of the time.  

God is my only support and hopefully someone out there does care.  

Because I can certainly use a friend in this adventure.  

gallbrq -- 

  

i hope that your case of sarcoidosis spontaneously resolves itself -- to my understanding, it sometimes does that within a few years.  maybe, if your wife has a chance to read up on it and talk with your doctor about it, she'll have more understanding and patience. 

  

it can also, as you well know, become a chronic disease that flares up periodically...  

  

the worse case scenario is probably what has you and your family ready to break... people do die of it -- but fewer and fewer [and FEWER!] as science progresses. 

  

are the medications helping with the inflammation/granulomas in your lung and heart?  there is no way that what you're going through right now can be anything but very scary!  so have faith... because odds are that it will get better and even resolve completely. 

  

it is an adventure, this life, isn't it?! 

  

as great as i think dr. phil's web site is, and computer communication in general -- i have found that when i have been really ill -- sometimes the computer is NOT the place for me to go.  real people, real sunshine, flowers, food... they might be better. [don't everyone pounce on me at once] be sure to get your information from a trustworthy source... 

  

and have a gentle talk with your wife... is it about your disease or about something else?  maybe seeing your pastor or a counselor would be helpful. 

  

i'll keep you in my thoughts -- 

 
User Mood
Distressed

Message Emote
blank
November 7, 2005, 6:36 pm PST

that is where my hope come from

Quote From: gallbrg

   

I have scarcoidosis and it is destroying me and has destoryed my family.  

My wife wants a divorce, & at the time I need her the most with all the medcial tests I have been going through lately she just plain hates me.  

It is not my fault that I have this disease.  

It has affected my lungs and now possibly my heart.  

The medicine I am on makes me feel sick most of the time.  

God is my only support and hopefully someone out there does care.  

Because I can certainly use a friend in this adventure.  

Ilost a husband to an illness that took thre years to kill him I was holding his hand when he died, i have no regrets doing it my way consider me a friend I know what it is like , seek_help
 
User Mood
Good

Message Emote
chillin'
December 2, 2005, 4:47 am PST

Me too.

Quote From: gallbrg

   

I have scarcoidosis and it is destroying me and has destoryed my family.  

My wife wants a divorce, & at the time I need her the most with all the medcial tests I have been going through lately she just plain hates me.  

It is not my fault that I have this disease.  

It has affected my lungs and now possibly my heart.  

The medicine I am on makes me feel sick most of the time.  

God is my only support and hopefully someone out there does care.  

Because I can certainly use a friend in this adventure.  

I have sarcoidosis which affects my lungs too. I got my diagnosis 9 years ago. My doctor took me off the prednisone last March. I do understand. There's a lot of ups and downs with sarcoid. Contact the American Lung Association. They may be able to hook you up with a support group in your area. 

  

Terrie 

 
User Mood
Happy

Message Emote
worried
June 20, 2006, 5:25 pm PDT

Dealing with scarcoidosis

Quote From: gallbrg

   

I have scarcoidosis and it is destroying me and has destoryed my family.  

My wife wants a divorce, & at the time I need her the most with all the medcial tests I have been going through lately she just plain hates me.  

It is not my fault that I have this disease.  

It has affected my lungs and now possibly my heart.  

The medicine I am on makes me feel sick most of the time.  

God is my only support and hopefully someone out there does care.  

Because I can certainly use a friend in this adventure.  

Hi, I do not have the disease but my son has it.  It has taken a toll on me, trying to cope with him going to doctors and different treatment.  No it is not your fault that you have this disease.  He is going through the same thing you are going through.  With God all things are possible, and God will always be your support.  I will pray for you as others are praying for my son.  I ask God to keep me going to be here for him and hopefully he will be here for me.  I am not young and I also deal with health problems.  I was diagnosed years ago with Lupus, it went into remission but I still have to have blood work to keep it in check.  If you don't know Lupus is also an autoimmune disease, and I blame myself for my son having the illness.  Keep on fighting because GOD HAS IT IN HIS HANDS, remember that. 
 


Return to the Message Board


First Page | Previous Page | 1 | Next Page | Last Page