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Replies to '05/29 Parenting Dilemmas'
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May 31, 2006, 11:24 pm PDT
 Quote From: eilene Ms Davis implies that MS is mind over matter. Wrong! I know she must know that everyone that has MS is not as fortunate as she obviously is. My beautiful daughter was diagnosed with MS in the very prime time of her life; she fought it, she denied it, she accepted it and went on with her life. But she went from vitally active, to using desks, tables, walls, railings, etc. so she could stay on her feet; she finally HAD to start using a cane; she did this for a long period then it became impossible to even get around with the cane; begrudgingly she had to accept a wheelchair, she would not have an electric one because she wanted to do everything possible to maintain what muscle she had left. Eventually, she had to have the electric one because the strength in her arms was not enough to be able to move around. Now she has the most advanced electric wheelchair they make. When we help her get dressed, we physically have to move her forward to pull the shirt down, then physically pull her back to a sitting position. We lift her legs on and off the steps of the chair. If she didn't have the courage of a lion she would probably be in a nursing home! Thanks to her wonderful husband of 32 years (married at 18) she still lives in their own home and he works 80 miles away and returns every single day to take care of her and the house.
She can still use her arms to some extent. Her brain is exceptional and she uses it every day. Her computer skills keep her active in life; she has many skills and talents that she uses through her computer. But telling her she can change her condition by being positive and doing all the right things is an ignorant and selfish thing to say.
I have never written to Dr Phil, but today I sent him a letter telling him how angry and disappointed I am that he only presented the very good side of MS when he had Nancy Davis on. It made me angry and hurt for all the people that suffer from this horrible disease and I hope to God that it doesn't make them feel like a failure just because they could not achieve what Ms. Davis has. Fibromyalgia is very similar to MS. It has different levels of severity. I'm not so lucky to have anyone to care for me. I need to try to care for my husband. Luckily he does not need physical care done. I'm scared. My energy levels are extremely poor. The fibrofog is making it difficult with the college degree I'm trying to get. The pain levels have been excruciationg at times. The house is filthy and so far I'm powerless over that. I just barely keep me clean. I am doing pretty good with keeping the cat stuff cleaned up and feed and water for her. She is a comfort, fun, entertaining, cute and all that. I am scared with her having gotten out and got pregnant now. I have no med insurance and am trying to commit to a time to contact medicaid or whatever to see what help I can get. I'm scared to do that. The energy needed may not be there. Then again, I may be forced into not by my own choice one day. Really hoping I can get through the college degree and find something I can do that won't tax me to badly. My daughter in law has MS. She has lost some sensations in her feet and hands. She is just trying to live her life to her fullest right now. I'm so glad she is doing that. She is a great mother to her children (fantastic, wonder mother). My son stands by her side now and it looks like they will have a long happy marriage. She sure loves him deeply and I believe he loves her too. In any case they still try to keep up the romance even though they have 4 children with the youngest getting closer to the teen years now. She is beginning to get that young lady look. I think maybe Nancy is trying to work it out this way. I am so sorry for your daughters condition, but sounds like she is a brave, trooper and has the luck of having a loving husband who is able to take care of her. |
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