Quote From: profderiengallbrq --
i hope that your case of sarcoidosis spontaneously resolves itself -- to my understanding, it sometimes does that within a few years. maybe, if your wife has a chance to read up on it and talk with your doctor about it, she'll have more understanding and patience.
it can also, as you well know, become a chronic disease that flares up periodically...
the worse case scenario is probably what has you and your family ready to break... people do die of it -- but fewer and fewer [and FEWER! as science progresses.
are the medications helping with the inflammation/granulomas in your lung and heart? there is no way that what you're going through right now can be anything but very scary! so have faith... because odds are that it will get better and even resolve completely.
it is an adventure, this life, isn't it?!
as great as i think dr. phil's web site is, and computer communication in general -- i have found that when i have been really ill -- sometimes the computer is NOT the place for me to go. real people, real sunshine, flowers, food... they might be better. [don't everyone pounce on me at once be sure to get your information from a trustworthy source...
and have a gentle talk with your wife... is it about your disease or about something else? maybe seeing your pastor or a counselor would be helpful.
i'll keep you in my thoughts --
HI MY NAME IS DONNA I HAVE SARCOIDOSIS IN MY LUNGS AND I HAD IT FOR 10 YEARS NOW .AND I WAS JUST WONDERING WHAT MEDS ARE U ON ? AND ARE THEY WORKING? I ON FOLIC ACID METHOTROXIATE DONT KNOW IF THATS THE RIGHT SPELLING AND IM ON MINOCYCLINE 100 MG .AND IT IS WORKING FOR ME .