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July 26, 2005, 10:31 am PDT

CHRONIC PAIN

Quote From: momof4gals

I have primary progressive multiple sclerosis. I took care of people with ms when I was a nurses aide but never realized how they felt until recently. I have a whole new understanding of what they were going through.

Heat effects me. Cold effects me. Medication helps but geeze, I get so tired of being tired! Then to add to it the medications don't take care of the problem. Sure they take the edge off but what I would give for just ONE day without a spasm, cramp, electrical shocks etc. Ahhhh, some day maybe it'll happen :)

People don't understand those with chronic pain. I didn't until these past months. People don't understand when we don't want to talk. Socialize. Laugh. People don't understand when we just don't have the patience. Some days I find I'm snappy, or have what others consider an attitude.

I used to get angry at others for making comments etc. But now I'm just thank ful they don't know what it's like. I don't wish chronic pain on anybody.

This is the first time on his web site. I watch Dr. Phil when I can and I always come away with something positive. I also have chronic pain, Fibro and Behcet's auto immune. My co worker sits behind me has Fibro and an auto also. We can talk to each other and it helps us get through the day. We do not complain but talk about our symptons and it helps to know someone else can identify with your pain. Unless you have chronic pain you have no idea of the pain someone is experiencing. Education is the tool to have the general public and families aware of the enormity of chronic pain.

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cbreil785

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March 4, 2006, 1:24 pm PST

Living with Chronic Pain

Quote From: momof4gals

I have primary progressive multiple sclerosis. I took care of people with ms when I was a nurses aide but never realized how they felt until recently. I have a whole new understanding of what they were going through.

Heat effects me. Cold effects me. Medication helps but geeze, I get so tired of being tired! Then to add to it the medications don't take care of the problem. Sure they take the edge off but what I would give for just ONE day without a spasm, cramp, electrical shocks etc. Ahhhh, some day maybe it'll happen :)

People don't understand those with chronic pain. I didn't until these past months. People don't understand when we don't want to talk. Socialize. Laugh. People don't understand when we just don't have the patience. Some days I find I'm snappy, or have what others consider an attitude.

I used to get angry at others for making comments etc. But now I'm just thank ful they don't know what it's like. I don't wish chronic pain on anybody.

Hi ouch. You just explained me and my life in a nutshell. I too have multiple sclerosis, i am on the line between RRMS and PPMS. I have been diagnosed since 12/2000. And because of insurance I didn't get to go to a great doctor. He basically made my symptoms and disease worse, now I am doing so much better, better than I ever had since being sick. I go to Shands in Jacksonville, FL and they have worked miracles, in respect to my episodes and physical capabilities. I now have episodes every 9 months or so, instead of every 5 months, and I am walking on my very own for the first time in 5 years. But that being said I still deal with pain everyday. Some days my spasms are worse, some days they are better. Somedays I almost feel like my old self, and the next I feel that much worse, because I have come to realize that when you feel badly all the time, you don't notice your bad days as much unless they are extremely bad, but when you feel good for a little while, and then you have a bad day, you almost feel like its an episode coming on because there is such a difference from the good day to the bad. I just want you to know all of us msers know exactly how you feel, so I just want to send out a big understanding shoulder for you to cry on if needed, sometimes I think all we need is a good cry to regroup and go one. Take care and thanks for understanding me just by writing your message.

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cdnmom44

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October 11, 2006, 12:13 am PDT

This is my life

Quote From: momof4gals

I have primary progressive multiple sclerosis. I took care of people with ms when I was a nurses aide but never realized how they felt until recently. I have a whole new understanding of what they were going through.

Heat effects me. Cold effects me. Medication helps but geeze, I get so tired of being tired! Then to add to it the medications don't take care of the problem. Sure they take the edge off but what I would give for just ONE day without a spasm, cramp, electrical shocks etc. Ahhhh, some day maybe it'll happen :)

People don't understand those with chronic pain. I didn't until these past months. People don't understand when we don't want to talk. Socialize. Laugh. People don't understand when we just don't have the patience. Some days I find I'm snappy, or have what others consider an attitude.

I used to get angry at others for making comments etc. But now I'm just thank ful they don't know what it's like. I don't wish chronic pain on anybody.

I, too, have progressive M.S. and suffer with chronic pain. According to my pain doctor only 10% of M.S.'ers have chronic pain...how I got to be one of the lucky ones, I'll never know :(

I deal with leg spasms daily, hourly...every minute and am taking lots of meds to try and control the pain. It takes the edge off enough so that I can function, but that's about it.

There are many friends who are no longer in my life for reasons I don't understand. They just can't deal with my disability, I guess. I can't do what I used to do and tire so easily. It's frustrating.

I"m blessed with a husband who loves me and two teenagers who try to understand and help out but hey..they're teenagers! I have a doctor who takes wonderful care of me. In many ways I'm blessed... I have been collecting Canada pension disability for about 3 years now and am so glad that I have this resource. It sure helps.

I don't mind the M.S. much. The balance issues, etc., I can deal with. It's the pain 24/7 that wears me down. I don't remember what it's like to be pain free.

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