Replies to 'Physically Challenged Adults Support'

I want to thank you for posting here-I wanted to post but I did not want any backlash from people who may seem ignorant-   I  have a disabilty myself-  I personally do not like the word'handicapped'   I have wasted so much time trying to explain the difference to people-but all they do is wave me off or ignore me-like THEY know better-

I am really glad you posted-  I have to come back here again gladly-to re read what you posted- 

When I was in college-I was the president of a group of people with various different disabilities-

Oh-I am reading what you wrote-and we MUST chat again!!

Take care-Please know that you are NOT alone-And  thank you so much for the courage to post this new board- 

Take care-

N

PS-  I sure do understand the frustration and feeling lonely-  I assure you -you are NOT alone!!

Hi

I want to tell you that, you are not alone. I am a 46 year old woman. I have C. P. I'm not sure if "we" will see the day in our lifetime as first class people. Although it would sure make life easier for everyone.

Feel free to write, if you would like to.

I reckognize all the things you state in your message. I think it's slightly better in my country though (the Netherlands). If someone parks here on a parking spot for disabled people who isn't disabled, it's gonna cost him a lot. Things have improved here, but it's far from perfect. Most buildings are accessible, but the attitude of some people needs a change. I agree with you that physically challenged is a horrible term.

Getting a job here is bad too. I'm a counsellor. And if I say so myself: a damn good one. I struggle with my own practice now to get a decent living in the future. The government does not help a lot with that.

Mikao

 I agree with you  100% , i also have MS .   i AM  NOT  WHEELCHAIR BOUND YET. But  sometimes at the stores on my bad days i use one of the stores chairs. i can't stand the way people look at me, like"why is she using that " or " she looks OK to me " .  Kids i can take the looks but old people are the worst. Sorry i was writing to say Thank you for specking up for us all, God bless you and yours if you wont  to chat some time drop me A line.                  Thank U

                                                                                                                         Kim

HI THERE

IM 39 AND MY DAD HAS BEEN SICK SINCE I WA S5.  I DO MEAN NEAR DEATH...AND STILL IS  -   A KAISER DOCTOR WITH A DRUG PROBLEM BUTCHERED MY DAD OVER A KIDNEY STONE.  THEY TOOK THE DOCTOR TO COURT AND THE DOCTOR COMMITTED SUICIDE THE NITE BEORE THE COURT DATE.  REORDS SHOWED KAISER KNEW.  ANYWAYS.......MY DAD WAS 26 THAN.  MY DAD COULDNT WORK ANYMORE, COULDNT HAVE MORE KIDS, KAISER HARDLY PAID A DROP IN THE BUCKET, MY DAD HAS BEEN IN AND OUT OF ICU SNCE I WAS 5 AS IVE ALREADY STATED....  IVE ALWAYS BEEN THERE AT EVERY HOSPITAL UNDER THE SUN THROUGH-OUT MY LIFE. 

TO LOOK AT HIM, YOU WOULD NEVER USUALLY KNOW HE IS SICK THOU IF YOU SAW HIM ON THE STREET.  HE TAKES OFF IS OXYGEN WHEN HE IS TAKING A QUICK TRIP TO THE STORE, SO WHEN HE MAY PARK IN HANDICAP PARKING, HE HAS A COLOSTOMY BAD, HEART FAILURE AND ALWAYS CLOSE TO HIS NEXT TRIP TO THE HOSPITAL.  AS I SAY THO, IF YOU SAW HIM GET OUT OF THE CAR AND WALK IN THE STORE, YOU MAY THINK HE IS NOT HANDICAP, BUT HEI S AND CAN NOT WALK VERY FAR.  A COUPLE OF FEET AND HE IS ABOUT TO PASS OUT. 

IT EQUALLY IRKS ME TO NO END, WHEN JACK ASSES "BORROW" SOMEONES HC PARKING TAG AND DONT NEED IT AND DONT CARE WHO IT IS THAT REALLY INDEED HAS TO HAVE IT!!!!  BUT NOW MANY STATES ARE REQUIRING IT ON THE LICENSE PLATE WHICH I THINK IS WONDERFUL.  BY THE WAY, I AGREE WITH ALL YOU SAID ON YOUR MESSAGE.  I DID READ THE WHOLE THING. YOURS WAS THE ONLY ONE ACTUALLY I HAD TIME FOR RIGHT NOW.

PLEASE BE ASSURED THRE ARE THOSE OF US WHO DOOOOO APPRECIATE THE EXTREME DIFFICULTIES THAT ARISE FROM IGNORANCE.  PEOPLE ARE OFTEN TOO WORRIED ABOUT BEING POLITICALLY CORRECT THAT THEY JUST ARE SCARED TO SAY ANYTHING HALF THE TIME. 

 IVE FOUND MANY PEOPLE DONT LIKE TO VISIT SICK PEOPLE IN THE HOSPITAL, OR ACKNOWLEDGE IT BECAUSE "  they are uncomfortabe"......GIVE ME A BREAK !  HOW DO YOU THINK THE SICK PERSON FEELS?  OR ME, IVE KEPT MY DAD ALIVE 1000'S OF TIMES IN THE HOSPITAL.  IM HIS PERSONAL GUADIAN ANGEL NURSE AND ITS NOT EASY, BUT....................IF I WAS IN THE POSITION I WOULD WANT UNDERSTANDING AND FOR THOSE AROUND ME TO BE WELL INFORMED WITH WHAT THEY NEED TO KNOW. 

SORRY FOR ALL THE TYPOS BUTIM POOPED!   MY DAD WAS IN THE HOSPITAL, AND ALSO MY HUSBAND AMOST DIED A LITTLE BIT BACK WITH A HEAD INJURY (SUBDERMAL HEMOTOMA) AND LOST 2 PINTS OF BLOOD FROM HIS HEAD. BOTH ARE OUT OF THE HOSPITAL THIS WEEK.  BUT IM CATCHING UP ON BILLS AND ALL MY WORK, BUT INSTEAD RIGHT NOW IM EMAILING YOU BECAUSE I DO CARE.

IVE FOUND THE WAY YOU VIEW SOMETHING DEFIINITELY AFFECTS THE WAY YOU FEEL.  SO, NEXT TIME SOMEONE PARKS IN HANDICAPPED PARKING AND WALKS IN THE STORE, REMEMBER ABOUT MY DAD WHO IS DEATHLY  ILL, BUT YOU'D NEVER KNOW LOOKING AT HIM. SOMETIMES PEOPLE THROW MY DAD HARD LOOKS, IF THEY ONLY KNEW HOW SICK HE IS.  I JUST APPRECIATE THE PEOPLE WHO DO CARE , THEY ARE OUT THERE AND IM ONE OF THEM.  NOT PASSING JUDGEMENT ON OTHERS DEFINITELY WILL ...benefit you !!!!"..... AS YOU WILL HAVE LESS HEART PALITATIONS AND HEADACHES AND MUSCLE TENSION i FOUND FOR ME TO BE THE CASE AT LEAST.

BY THE WAY, MY DAD HAS SURVIVED YEARS OF PAIN AND SURGEORY.  HE HAS A STRONG WILL TO LIVE AND HE IS THE FIRST PERSON MY FRIENDS AND COWORKERS WANT TO CALL WHENEVER THERE IS A  HEALTH PROBLEM, OR LIFE PROBLEM FOR THAT MATTER BECAUSE HE HAS SURVIED SO MUCH PAIN AND YEARS OF TIME IN HOSPITALS.  HE CANTEAT HARDLY ANYTHING WITHOUT GETTING A BOWEL OBSTRUCTION AND HAVING TO BE RUSHED TO THE HOSPITALTO GET AN "NG" TUBE LIKE A GARDEN HOSE STUFFED DOWN HIS NOSE, THROAT AND STOMACHE ANDHAVE HIS STOMACH PUMPED OUT.  HE ALSO CAN NOT DO ANY BATHROOM BUSINESS LIKE MOST PEOPLE BECAUSE HE HAD AN INTESTINE REMOVED AND THERE IS SO MUCH SCAR TISSUE FROM SO MANY SURGEORIES HE CANT DIGEST FOOD LIKE MOST PEOPLE. HE HAS HAD TO SLEEP ON A HOSPITAL BED AT HIS HOUSE SINCE HE WAS 30 DUE TO THE MISSING ASOPHEGOUS THAT THE DOCTOR ALSO BUTCHERED.  IT ALL STARTED WITH A KIDNEY STONE AND A BAD DOCOR AT KAISER!

NOT TO SOUND ARROGANT, but ive been a DAMN good daughter if i do say somyself.  HANG IN THERE AND I WISH YOU THE BEST IN THE FUTURE inspite OF YOUR 'HANDICAP'

AT LEAST YOU ARE STILL HERE AS MY DAD IS.  MY 4 GRANDPAENTS ALL DIED WHIEN I WAS VERY YOUNG OF CANCER AND MY UNCLE DIED OF CANCER AT 12 AND MY HUSBANDS PARENTS DIED IN 2000 RIGHT BEFORE OUR WEDDING OF LOU GHERIGS AND EMPYSEMA.  THEY MISSED OUR WEDDING, BUT OF COURSE WE MISSED THEM MOST.  MY HUSBAND IS  35 AND IM 39.  WEVE SEEN ALOT OF SICKNESS AND DEATH AND SOMETIMES IT IS HARD.  BUT IT HELPS YOU APPRECIATE WHAT YOU DOOOOOOOOOOOOOOOOOO HAVE while  YOU HAVE IT!

WARMEST WISHES,

SANDRA (SAM)

hi there, im the 39 yearold with the sick father since i as 5.  i wrote you back a long detailed message from MY HEART TO YOURS and i was hoping you saw it and got a chance to read it.

Thanx,

Sandra