Replies to 'When a Family Member Gets Sick'

 
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June 22, 2008, 3:24 pm PDT

Just some food for thought

Quote From: sthipkens

Mohabee96

I also hope you're still checking the message boards....

Because I finally logged on, and came across your E-Mail.  I hope you still can find some benefit from my opinion. 

I had this all written out a few nights ago, but then what I call "the computer blues" happened, somehow, I lost it all, so, here I go again.

Most importantly, realize I'm no professional, I've no affiliations, degrees or anything other than my own personal opinion as a care giver. Without enough help or relief helpers, this leaves little free time.

I realize this is a note from almost a year ago that I'm only just now reading....

However, IF, you're lucky enough, to still have one or both parents STILL in their own home...."Keep them there ! as long as humanly possible !"

The familiar surroundings, routine, as much of the same as what they used to do as possible, is what will help keep them from becoming, less functional as quickly perhaps.

As to the difference between Altzeihmers and Dementia, again my opinion ONLY !

I believe with Dementia, you're able to remember MOST of the past well, however, the most recent events, especially conception of time, they come in and out like waves, with most recent events, being on an always outgoing tide.

Whereas, with Altzeihmers, most, if not all, is no longer within their grasp. I believe it to be "the most cruelest affliction" as in most cases the body is fine, the afflicted might just not know what to do ? how ? or when ? and why ?

The saving grace for Altzeihmer's is they're not aware how bad off they might be. Whereas with Dementia, there's moments, time periods of total clarity....they unfortunately might be aware something's amis.

Now, as to Parkinson's, I came into the care of a "stubborn, independant, Scottish lady in her late 80's. The whole time she stayed in the home she kept her whole adult lifetime, she did as well as can be expected. I gave her as much privacy, and independance as possible, but stepping in was neccessary at times.  I'd say well over a decade in her home with the affliction taking it's toll.

However, after losing a majority of family, to moving away, or passing on, as well as her last dog....As "they" say, that was the straw that broke the camels back."

Shortly afterwards, it became neccessary to put her in the unfamiliar territory of a home....Well, in my opinion, her decline was swift. I recall it might have been a year, but less than 2 in that facility.  She is survived by 2 sisters, 91, 104, they however were spared the affliction of Parkinson's, which of course is an advantage.

Suffice to say, rally as much of the troops, relatives, friends, aquaintances as possible. Access as many help organizations and agencies as you're able, set up a support system to relieve you of some of the aid neccessary to keep them in your life and you in theirs.

In my opinion "Keep them home and as active as possible !" "Familiarity, breeds longevity...." Best of Luck, Sthipkens.

Hi everyone,

 

  I can tell that most people that are responding are confused on the dementia and Alzheimer's thing, so I would like to explain it a little bit.

 

  Alzheimer's is a form of dementia, the difference is that dementia effects all parts of the brain and brought on by trauma. This be from a fall an illness something of that nature.

 

  Alzheimer's is something that happens on its own and usually effects the frontal lobe of the brain with plaque. this is why there are some rapid progressions in different stages.  A neurologist will be able to tell you the progression of the disease.  There are seven stages.  I am actually caring for an individual with Alzheimer's and another with dementia.

 

  Everyone will tell you that it is best to keep the person home this is not so in most cases, the simple fact is that taking care of an individual with Alzheimer's is a full time job as they get into the 3rd stage of the disease.  Taking care of someone with Alzheimer's on your own is consuming your whole life if you have children this would be a tough task. People are trained. It does not mean that you have to have them put into an institution, there are group homes out there that specialize with individuals with Alzheimer's.  It is the quality of life that really matters.  Find a good group home that you can visit frequently that allows for overnights for you to take your loved one for the night, that goes on special trips with your loved ones. My Alzheimer's individual has a sister that use to take him everywhere which was fantastic but now she is scared because he is in a moderate to severe stage of the disease and does not know how to deal with him. This is where I come in. I have made him part of my family he loves small children he comes home with me for visits we sit and have tea and a snack, We take him to Martha's vineyard on the ferry he loves it and enjoys it very much. My goal is to give him as much quality in his life that he can handle. If he were still living with his sister he would be in the house all the time.

 

  I ask if you have a loved one with Alzheimer's to please think about the quality that you can provide before being "selfish"/ "feeling guilty".. Sometimes we must let go of the ones that we love to ensure this.

 


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