Replies to 'A WAY FOR THE DISABLED, AND DISADVANTAGED.'

 

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November 11, 2006, 10:15 am PST

A WAY FOR THE DISABLED, AND DISADVANTAGED.

Quote From: honestheart

Hello.  There are countless people in the world who suffer some type of disability or other.   Seems to be that there are more organizations available and more moral support for those who have "physical" disabilities.  Yes, there are programs for almost everything.  However, the programs are not available "across the board" and it is almost difficult for people who are on an invisible borderline to access these programs and benefit from them.

   For instance, I am legally and for all intents and purposes, deaf.  I can not hear a thing.  Hearing aids only amply noise for me, like a knock on a door, car horn, etc.  I have to concentrate extremely hard to lip-read and it is draining.  People just have no idea how mentally/physically draining it is to have to concentrate so hard to have a conversation.  And then they wonder why I am so tired all the time?  Someone like me, who lives in the middle of nowhere practically, is more isolated than a completely deaf person.  There are so many countless things for deaf people to do, etc.  Thing is, deaf people at an early age qualify for programs that integrate them into their life.  People who are severly hearing impaired, like me, are out of place with completely deaf people.  There is a cultural difference.  Hard to beleive isnt it?  We are stuck between the deaf people and the hearing people.   No real place to be and trying to/struggling to make it out there is hard.  Very hard.  Then, because some of us talk pretty well, most hearing people think we are lying when we tell them we are almost deaf and treat us as if we are trying to pull something.  It is hurtful.  Deaf people have a great network of other deaf people to talk to.  Hearing impaired people do not.  And yes, I know that deaf people feel that well, because hearing impaired people speak and move around in the hearing world our life is easier: it is not. It is fraught with misunderstandings and frustrations.  Because we have to deal with not only the issues in life, but also others misconceptions that cause the hearing impairment to be more of a disability than it should be.  People think because I am smart and always smiling that my life is so upbeat.  I try to have a positive outlook for life.  But, I keep running up against roadblocks (people) that are slowing sanding away my positive outlook and cheerfullness.   I am now at a point where I would like to just give up.  All my life, I have worked and tried to live a productive life.  But all this is wearing me down terribly.  Yes, the Lord has blessed me by not having to hear all the bickering going on all over the world, my husband's loud music (;-), but I know it is happening and it still affects us.  The body language, changes in the room, the putting up the hands to cover conversations that a whole group in your room can hear, people talking about you while you are in the room knowing you cant hear them (rude...you are still there)....the list goes on and on.   We have trouble getting jobs we qualify for or have the apptitude for.  We have trouble getting/giving correct information to doctors, administrators, etc. that closes or slows things down.  

   So,  I feel for everyone who has some type of disability. Just please, realize that being hearing impaired is disabling too.  You cant see it, but it is there.  It is one of the silent killers of hope and dreams, almost like cancer or lukemia.   It makes you want to retreat from life, become reclusive.  The internet is basically the only thing keeping me connected.  Thank the good Lord I like to read !

 

WELCOME TO MY BOARD, AND THANKS FOR VISITING.

 

This is what my campaign is all about!  I'm shocked and didn't realize the discrepancies in our system with deaf people.  I know this must be horrible to live with.  People take things for granted until they no longer have them.

 

With me, my depression and physical pains are also "silent disabilities" and I have struggled hard to survive with these issues.

 

It's sad that so many people can be so reckless, and I am guilty of that, but to not appreciate what others are going through.  You mentioned your husband's loud music; I played in bands for several years and started experiencing some hearing loss.  This was so stupid to allow myself to be exposed to such loud music and not appreciate the gift of hearing God gave to me.

 

My hearing is relatively good still, but there are many times I can understand where you are coming from.  Conversations that are at a distance, that most people would hear, or in the car sometimes, I cannot hear conversations and don't realize at times when people are speaking to me.  I'm not comparing myself to your situation by any means. 

 

Is your state of deafness recognized by any part of the medical community, or otherwise?  Does it have a name?

 

How long have you been at this stage of deafness??  And when did it start, if you don't mind my asking?

 

I am not a very good reader, so some posts that I read, I do not comprehend all the points sometimes.  Forgive me if I have overlooked anything.  I normally will come back later, when I am feeling better and read them again.

 

What do you think our society and medical community needs to do to help people in your situation?

 

God bless.

 


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