Replies to '03/05 Anna and Britney: Behind the Headlines'

HERE IS THE BEST WAY I KNOW TO EXPLAIN THIS........AND I AM VERY ILL WITH LUPUS AND BY YOU JUST ACTING LIKE IT IS NO BIG DEAL HAS MADE ME SICKER BECAUSE IF LUPUS PEOPLE GET ANGRY OR UPSET THEY GET WORSE.  SO...I AM WORSE TONIGHT.  AND YES!  I KNOW IT IS RUDE TO WRITE IN ALL CAPS BUT I AM UPSET AND ANGRY!!

IMAGINE WALKING THROUGH A MINEFIELD.  AFTER THE FIRST BLOW YOU BECOME RELATIVELY CONSCIOUS, YET YOU HAVE TO KEEP WALKING.  THE FURTHER YOU GET, THE MORE CONFIDENT YOU FEEL.  YOU DECIDE TO WALK FASTER AND CARRY ON MORE RESPONSIBILITIES.  THEN COMES ANOTHER BLOW AND THE DAMAGE IS DONE.  YOU KEEP ON WALKING.  WHEN WILL THE NEXT BLOW COME?  HOW MUCH DAMAGE WILL IT CAUSE?  WILL IT BE THE FINAL ONE????

IMAGINE TAKING THAT WALK FOR THE REST OF YOUR LIFE.

IMAGINE THE POSSIBILITY OF NOT BEING THE POSSESSOR OF YOUR OWN MIND.  ALL YOUR THOUGHTS AND FEELINGS AND EMOTIONS WHICH DIRECT YOUR ACTIONS, DECISIONS AND STATEMENTS, NOT BELONGING TO YOU BUT TO A SCIENTIST'S BEAKER.

IMAGINE BEING THE PRODUCT OF THAT SCIENTIST'S LABORATORY FOR THE REST OF YOUR LIFE.

IMAGINE HAVING ONE OF THE MOST INTRICATE, COMPLEX, AND POWERFUL FRIENDS IN THE WORLD, YOUR DEFENSE SYSTEM.  NOW THAT FRIEND HAS BECOME YOUR ENEMY AND CAN ATTACK YOU WITH THE SAME CONCENTRATED INTENSITY AS IT IS CAPABLE OF.

THIS TURNOVER HAS SHIFTED TO OFFENSE, AND WILL TURN BACK AGAIN AND AGAIN, BUT YOU WILL NEVER KNOW WHEN.

IMAGINE HAVING THIS FRIEND AS A NEMESIS FOR THE REST OF YOUR LIFE.

IF YOU CAN TRULY IMAGINE  THESE THREE THINGS.........THEN YOU KNOW WHAT IT IS LIKE TO HAVE LUPUS!!

MY SISTER IN LAW LOST HER BABY SISTER TO LUPUS WHEN HER SISTER WAS ONLY 22.  I SAW THAT BEAUTIFUL GIRL LAYING IN THAT COFFIN AND KNEW I HAD A HUGE FIGHT AHEAD OF ME BECAUSE I HAD JUST BEEN DIAGNOSED WITH LUPUS.  I WOULD LIKE FOR SOMEONE TO TELL HER PARENTS AND SISTERS AND OTHER FAMILY AND FRIENDS THAT MELISSA DID NOT DIE FROM LUPUS.

I HAVE SO MANY THINGS WRONG THAT I WILL LEAVE SOME OUT BUT HERE ARE SOME OF THEM RELATED TO LUPUS.

RAYNAUDS PHENOMENON, SEVERE ARTHRITIS, LUPUS MIGRAINES, SJOGRENS SYNDROME, ANXIETY DISORDER.  I HAVE RUNNING INFECTING SORES ON MY SKIN.  I GET ULCERS IN MY MOUTH.  I SOMETIMES HURT SO BAD I START SCREAMING AND CAN'T STOP AND I JUST WANT SOMEONE TO HELP ME.  I HAVE SO MANY THINGS WRONG THAT IT WILL TAKE TOO MUCH TIME AND I ALREADY HAVE TAKEN UP TOO MUCH SPACE.

MAYBE ONE DAY YOU CAN DO A SHOW ABOUT PEOPLE THAT HAVE LOST LOVED ONES OR ARE TAKING CARE OF VERY ILL LOVED ONES WITH LUPUS.