Quote From: gracieandmattMy 26 year old daughter had all the symptoms of HD during her pregnancy. We were never told that she had this disorder but she was treated in the exact same manner.
However! She is still suffering all the same symptoms and her son is 2 years old! To complicate the situation she is also diabetic. Her life is pure misery. She spent 3 weeks in the hospital this past month. She had a PIC line put in and she was sent home. To tell her story would just repeat the stories on the show.
Does anyone have any insights on this? Are there any other cases out there where the symptoms continue after pregnancy? When she first delivered her baby (who by the way is a wonderful healthy little boy) her symptoms seemed like gallstones and she had her gallbladder removed. She improved briefly but in the last year has become progressively worse. The drs have talked about a hysterectomy but have delayed it for over a year - waiting for her body to "get stronger". They also gave her a Lupron shot to shut down her hormones - it helped some as well, but it is not helping at all now and she is on a third shot. Now I am wondering if a hysterectomy will help her?
I am so sorry she is suffering like this. I've struggled greatly since my last HG pregnancy, but nothing nearly so severe as your daughter's illness. I'm nauseous, still puke some, and have terrible exhaustion.
A few things come to mind that I wonder about with the symptoms you mention, and I will just throw out to you: 1. thyroid function; 2. liver function. An abdominal ultra sound can tell a lot, but not everything. Gallbladder was my first thought, but that's not it. . Are liver enzymes normal? Is there intestinal damage from the HG? Reflux damage to her esophagus? Endoscopy can diagnose intestinal damage, ulcers, and the like. Has her pituitary been checked? Have her beta HCG levels been evaluated to see if there is any hormone still being produced? Have her ovaries been checked? I know some of us struggle A LOT postpartum, but to be so ill two years later...how awful. I would actually encourage you to contact Dr. Goodwin or HER's founder for some insights.
I agree you should visit the Hyperemesis Education and Research Foundation site and exploring research data about recovery as well as some encouragement. www.helpher.org or www.hyperemesis.org
So sorry this is happening.
