Quote From: skrogerI am sitting here at home watching your show and just crying. I feel your guest today in so many ways. I do not have MS but I have Lupus and when I heard that the mother was always working around the house and with the children and just trying to maintain a household. I just sobbed. I have 2 children and I go to school and work part time. My boyfriend feels like her husband. When the times comes to do what I want, he thinks that I am fine but when he wants to do something I don't feel good. I understand her so much. I can't choose when to feel good and yes I know that he did not sign up for this, but I was diagnosed after we got pregnant with our daughter. I know that it upsets him and sometimes my kids feel like why can't my Mommy be here at the soccer game or the football game. I really don't know how I get through it but I just do. I know that I just do what I can for myself and my children.
Any advise?
Sarah Kroger
As a child, I would visit my grandparents for the summer. At times, I didn't understand why she was so tired so much or why she didn't want to leave the house much. I thought it was just her "southern thang" to nap in the afternoon . And old people go to bed early & get achy, right?
I knew she had this thing called "Lupus" from a young age. But not until I was in my early tweens did I understand what that meant. A church member explained it to me. Boy was I upset that she didn't tell me this before. Her fatigue, her need to stay out of the sun, her aches & pains. I am now 33 & still do not know all that I could about the disorder but I get the gist of it & understand.
Like someone else said, educate yourself & others. Don't keep the truth from them. Children especially need to know. They can't understand what they don't know.
