Replies to '05/30 Ask the Authors'

When I heard that Dr. Phil was doing a show about MS I left work early and got home just in time to see the show. 

I thought it was a good show, but wish the whole hour could have been dedicated to MS with a variety of people who have so many of the different symptoms that come with this disease.  The show was definitely reality based - and confirmed why I've always said that, no matter what, I would always want to be the one that "got something" as I think it's a hell of a lot worse for our spouses/partners to watch us, not really knowing how we feel, and I know it has to be so frustrating.

I am so lucky to have a wonderful husband who will always stand by me and support me through this life of ours, I just wish I could let him know that sometimes when I LOOK uncomfortable, it's not necessarily true that I am TERRIBLY uncomfortable. But I'm not going to live my life hiding things - they are what they are, and I am so appreciative of having the wonderful, caring husband that I do.

In his line of work he has seen many, many patients w/MS - more cases than I will ever see - so he is obviously more concerned about what might be, and I wish he didn't have that. I KNOW what "can be" but I'm also positive proof of "what it IS and can be" and I've had MS for more than 20 years now.  You wouldn't be able to tell the difference between me and someone as young as Nicole on the show.

I just feel very frustrated knowing that people are worried about me, when, in my head, I think I'm pretty positive and I really (touch wood) don't have too much to complain about. Well I do have sensory stuff and pain, but I can do everything I want to do and more than many people who don't have any medical problems!

Anyway, I'm glad I got home in time to watch the show and get it recorded. Perhaps if more of us post on this site, we may see a full hour devoted to MS!