Quote From: flrat69It is good to hear you are so able to cope with your condition and maintain a very positive attitude. I only ask that you not let that detract from your understanding of others who do not or cannot manage it as well. I am no authority on MS and claim no distinction there. I am sure you could teach me a great deal about it that I do not know.
What I do know is that most conditions will vary from one person to another. For example, my sister has Lupus. So did my mother. It is far more debilitating for my sister than it was for my mother.
You sound like a person of great inner strength. Unfortunately, that is a gift not given to everyone. I hope you will use your strength to encourage those who are not as able to cope.
Best wishes.
Thank you SO much for your response to what I would call an unrealistic message/comment. It is NOT that easy for ALL people who have a dibilitating disease. I was dx'd with MS a year ago (but my Neuro thinks I've had it for approx 7 years) - I do my best to keep a "positive" attitude. However, when I cannot get out of bed, I cannot take care of my children, cannot follow thru with plans I have made because I am SO tired & weak... I realize that I DO have MS, it's NOT going away, and NOT every day is going to be easy. As a matter of fact, most of us have far more BAD days than good. Putting on the "Happy MS Face" does not give me energy or make me feel better physically OR emotionally. Trust me - Given a choice, I would certainly choose to be the happy energetic woman I was several years ago!!
So for me to read how "remaining positive" and "just accepting the disease" is going to get us thru each day - really pissed me off! I agree with you in regard to how wonderful it is for those who can cope with their disease so very well and Kudos to them, really!! Maybe I'm simply jealous because my Happy MS Face never takes away the pain, fatigue, tingling & numbness, most importantly the constant wondering when the day will come where I will need a wheelchair in order to get around?! Yes, that may sound negative to others, but to me it is a reality and something that someday I WILL have to deal with. So, for today - I will keep my Happy MS Face on, just so others won't have to deal with how miserable I feel inside and/or out, but that certainly doesn't make it "easier".
Anyway, you're probably wondering why I replied to YOUR message rather than to hers... The truth is that I was too mad at the time to reply directly to hers and didn't want to insult what she may consider to be her intelligence?! lol Thanks for listening!! ;)
