Replies to '05/30 Ask the Authors'

I have MS and was diagnosed 18 years ago.  I have read and continue to read about new research and findings.  One of the best things I read was "muscle memory fatigue."  That discribed what happens to me so well.  Sometimes cognitive names help me put words to my experiences.  I think I can walk for ever like I always did.  I stand at the driveway thinking I can go 5 miles, a minute later I look as if I am coming home after 5 miles.  Then I force myself to walk half a block.  I was also told 3 stressers and you can bet within 3 weeks you will have a progression of symptoms.  The first I count is fatigue, pain and then add heat or a problem that to some one else maybe small, but hudge for you and then you are working toward physical problems.  Another great way to discribe the wierd feelings in side the body is as if I am leaning on a running refrigerator.

But When I wake up I make the best decision I can for that day. I have learned to enjoy.  I wake up planning what I will enjoy that day.  I pick things that are the greatest for me.  Sometimes reading.  When holding a book became painful, I got audio books.  I can't walk, but take my motorized wheelchair for long rides and enjoy the places I see.  I play with my dog and birds.  My husband and I found things we can do with my disabilites.  We canoe, electric bike and he walks and I roll.  We go places in our RV and visit with friends.  We learned Sign Language and when I can't find words, I sign.  I love life and a wait the next adventure.  I hope you can as well.  Check out the National MS Society site.  It offers many stories and helpful ways to live and enclude the family.