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Replies to 'Living with Chronic Pain'
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July 2, 2007, 12:09 pm PDT
 Quote From: phosphorescent I am so glad you posted because I can relate to your story in so many ways, especially feeling invisible and knowing your friends and family don't understand because it doesn't look like anything is wrong with you. I'm 51 and I've totally stopped doing all the things I love (dancing, riding my Harley, sewing). Even Dr's don't understand and look at you like a drug addict if you need more than Motrin for pain. RA meds are soooo expensive, too. My co-pay on two of them is $155.00 each. Now, my husband, who is wonderful, was just terminated two months before he could have taken retirement so we will have to find a way to pay $1300.00 per month for COBRA coverage in addition to those co-pays. It doesn't pay to be sick in this country. I am 51 and got my diagnosis 10 years ago. I recently checked out the support site at the Arthritis Foundation website but got so much information that scared me to death in the first 10 minutes I decided not to go back. I usuallly have a much better attitude than right now because of my husbands job, so please don't take this first post as the way I always am. I still have good days and when I do I make the most of them. Not long ago I went up in a 1929 open cockpit plane which had been a lifelong dream. It took three men to get me in and out but I didn't care. What a blast!! My husband planted flowers for me, too. Beautiful red hibiscus bushes that I enjoy with my Yorkie, Edsel. I hope you decide to vent here again. Venting is good for the soul sometimes. Bright Blessings welcome (great name, too)!
you may not know, but the post you replied to was written back in july 2005. although these message boards are a blessing, they are not too well laid out. on your profile page, i think, there is an option to receive newer messages first or older ones... something like that!
RA surely is painful and you have my sympathy and empathy.
boy, it just makes me see red to hear stories like yours -- how your husband had the rug pulled out from under him just two months away from retirement. that is cruel. heartless.
it shows that you have a good attitude -- don't worry about that. if i came here only when things were going well... well, i might never get here! an open cockpit plane -- i bet that was fun.
i have problems due to lupus, avascular necrosis, and crps/rsd -- and a partridge in a pear tree...
this is a wonderful place to make friends and vent and get advice from people who understand pain in all its dimensions -- how it affects not just our bodies, but our outlooks, our dealings with others.
so welcome... and join us in july 2007! i hope you are not trying to read through ALL the posts in between.
be well -- prof |
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