It must be nice to be so lucky to have never encounterd any such problem in your life with children or family members. I am crying to read comments like yours. I have a 5 year old daughter who has this same problem. We have been working with a doctor on it since she has been 3 years old. It has seen her hospitalized and with regular bi-weekly doctors appointments. She is bright, charming, happy and caring. She has met and exceeded all milestones for her age, she reads, spells, adds, subtracts there are no problems with her intellectual ability. This September she will enter Kindergarten I am scared beyond my wildest dreams. I don't want this to change her she is so wonderful and pleasant. People who are fortunate enough to get through life with out dealing with a problem like this need to find kindness and caring for these individuals, these kids don't want it this way. My little girl cries all the time asking why this happens to her. She feels shame and distress. No one works harder at getting things right than she does at fixing this. But because with progress medications get adjusted and changed it is a forward backward progress. As an adult I understand this, but as a child she struggles with the backward steps that make her think it will never end.
People need to be compassionate and when it feels hard to be compassionate about a situation then maybe it is time to educate your self. You will find out that this medical condition is more common that you imagined. We parents struggle to protect our children from people like you, we attend every field trip, we make trips to day camp several times, we keep our kids out of camps and lessons. All kinds of things to try to maintain their self respect and self esteem.
For all the parents that are going through the same thing as our family, keep going, keep strong the end will come. It is a matter of staying the course and never giving up. Where I live in Canada there is a clinic dedicated to this problem alone as well as a psychologist who deals with only these kids, you should look in your area and see if maybe you have the same thing. I saw many doctors who didn't know much about this at all, then I got lucky and we have been making progress ever since. My best to you all!!!!
