Quote From: vfrunziI am glad you caught the unprofessionalism of the doctor that said she didn't agree with the parents who are stunting the child's growth and development. I think the OB said she would carry her son on her back over a mountain....what an insult parents who are dealing with this same problem. Unless she has cared for a child with a severe disability and knows how physically and emotionally difficult it is on the entire family, she should not pass judgement on those parents. I challenge that doctor or anyone else who is questioning the parents over this medical issue to trade places with them for just a week to see how difficult it is caring for that child. I have an 8 year old daughter who has a rare chromosome abnormality. She too is over 60 pounds and is unable to walk and needs maximum assistance with everything. She has very low muscle tone and has always been in the 95% in height and weight. I have thought about talking to her doctors about using some type of medicine to slow down her growth. It seems to be socially acceptable for parents and doctors to 'play God' and give their children growth hormones to help them grow taller if the child's growth is stunted naturally.
I completely agree with you. My son has been on those same hormone injections just so he would be in the 'normal range'. Doctors are advocates for that sort of thing but go the other way and you better watch out! I think Dr. Phil and the producers need to seriously re-think this Dr. Masterson or whatever her name is. There are numerous other caring and compassionate OB's out there willing to assist and not to apt to judge.
Just out of curiosity, is there any hope of future improvement for your child or is this permanent? I know any good parent would agree with me when I say I would do anything for my child. And, as hard as it has been, I wouldn't trade one single second to be with my son. I have devoted my life to his well being and I couldn't be more proud of how he has handled his difficulties. But, no parent deserves this and shame on anyone who wants to point the finger and judge them for their decisions. My heart goes out to you!