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October 11, 2005, 10:24 am PDT
step chilsd=PDD
Quote From: boynemammaTo all of you who are raising children on the autism spctrum,
I have tears in my eyes. Reading the boards that there are others out there that have the same struggles. I have a six year old daughter with aspergers and a nine year old son with a major anxiety disorder learning disabilities and pdd. MY husband is in the National Guard and is gone a lot. Every day is a struggle. From IEPs to fits my children may through because they are upset because of sensory issues or lack of being able to communicate. To all thoughs perants who struggle with IEPs and getting the right help in school I do ahve one bit of advice ..KNOW YOUR RIGHTS!!!!!!!!...... Have a good relationship with the school dont stop till you find the right place. My husband gave up a job so that we could live in the right school system he now makes a 1/4 of what he did before. I believe with my whole heart it was worth it. It helps me to read other perants struggles to know I am not alone. I have been BEGGING Dr. Phils crew to do a show on this to find some research that helps pearants. Poeple dont understand waht it takes to raise these kids and the HUGE HUGE struggle to get the right help for them. I live in Michigan there is only one hospitol and nueroligy department that will see my kids My son is in desperate need of nuero testing I belive from his birth he has major frontal loab damage . We can not get an appointment till late summer of 2006. It is so sad to me I just feel like screaming why doesn't any one care!!!!! Help me!! But no one wants to touch it because it is autism and there is little expierence in it. Please if any one has any suggestions for navigating the medical fields please help. For that matter if any one has any suggesting on raising children with these disorders it would be a great help to me Thank You, Missy My husband and I are in the same situation.I noticed that his son had some problems just before he was 3.I pointed them out to him,and he went to the ex and voiced his concerns.They replied that he'd gorw out of it or he'll be fine.He's just behind.I was having a conversation with a client of mine one day,and the subject came up.I didn't realize at the time she worked in child development.They called and asked if they could see him? It was so far the best thing that has happened.We are now at a roadblock.He's 7 and having problems in his after school care.He was almost kicked out of that program.They have no idea how to handle him.We think that he should have occupational therapy,but atv v$200 a session we can't do it.The school system will not help.Now his mother wants to move 2 counties away.That county doesn't have the resources of the one he's in now,and I think it will be worse.Besides the fact that his father won't be able to keep up with even close to what he does now.I would LOVE DR.Phil to do a story on parents issues with PDD Aspergers,and Rhetts.It is a huge chaalenge just for school.Let alone when we go somewhere and get's into a mood.HELP!!!!!
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