Quote From: jennybaeMy daughter also has type 1 diabetes. She was diagnosed 7 days after her 8th birthday, June 2006. She has spells where she is very angry. I have her in therapy it helps a lot. Also I looked into diabetes camp. She is there now. It is one week every summer. There are kids from all over. They all get together and have fun. It has given her a reason to be positive. I saw her smile for the first time in a long time. I cried. We have went through this change together it has helped her. I told her that God gave it to her for a reason and to think of it as a gift. She is special. Everyone has a calling in this world and maybe this is hers. Maybe she will grow up and help find a cure or maybe even find the cure. I told her to embrace it and everything will fall into place. When her friends found out that she was diabetic they all stopped playing with her. Even her best friends mom would not let her stay the night anymore. She now has a new best friend, she also has diabetes. They are perfect for one another. Does he know any other kids with diabetes? If not find him some it will help to be around other kids like him. Find diabetes web sites and look for things that you can do together with other families going through the same things. There are support systems out there you just have to find them. My daughter was almost 700 when she was taken to the hospital. She was in ketoacidosis. She had lost over 20 pounds. She was just skin over bones. She would say things like I hate myself and why me, but after being in therapy she has cut back on it. She will never be the same again. When she is angry it's like I'm not even looking at her. She was always silent and never got in trouble, but not anymore. She says what is on her mind. We have had to work as a family to show her that she is not different she is special. Being in school has been very hard. There is no good system for children with diabetes in school. She always runs high and low when at school. They do not have a nurse so it is all up to her to know what to do. The teachers never listen to her. She was in computer class and dropped to 24 and the teacher wouldn't let her go to the office to test. She told her to go lay her head down. After that happened I got calls from everyone about how sorry they were, but they still do not listen to her. They treat her different than the other kids. She hates going to school, but she is so smart. She learns easy, but because she is treated different she just doesn't want to be there. She has had it hard, but seems to keep going. She is very strong, stronger than I am.
dear jennybae --
welcome to the board -- i don;t know if you are aware of this or not, but the post to which you responded was written on 24 july 2005. but i am glad you wrote to tell us about your daughter. it sounds like you have found wonderful ways to help her -- in spite of narrow-minded former friends and, what is worse, a dangerous school policy. how is it that there is no school nurse? i would think that illegal... i know that some schools have to share nurses but i have never heard of one that flat out did not have access to one. your little girl really has to know her stuff, then!
i taught high school for a few years and teachers were informed about most potential heath problems among our students (without violating privacy) -- i had students with sickle cell anemia, cancer, diabetes, clinical depression, autism, PTSD, and... i cannot remember the name of it -- but a genetic disorder that makes a person unable to sweat -- a very dangerous condition that had an insidious onset.
anyway,.that's why it sounds to me like your school needs to step up to the plate. if private, have you tried contacting the board of directors -- and if public, going to your district representative on the school board?
take care, and nice to meet you --
prof