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Replies to '08/19 Tired of Being a Mom'

 
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March 25, 2008, 1:06 pm PDT

To Alex's loving sister............

Quote From: carebearxo

Hello to all viewers,

I am the sixteen year old daughter of the "selfish" woman many of you have been describing, yet you have not even seen the show yet.  First of all i would like to thank those of you who have taken up for my mom.  Many of you who have commented on this show have mentioned your child only has Down Syndrome.  You do not realize that he has TWO disabillities, not just one.  He has Down Syndrome AS WELL as Autism.  I have several friends who have little siblings with Down Syndrome, like mine.  I understand that their lives aren't exactly a walk in the park, but it doesnt compare at all to living with a brother who has both disablities.  I agree that these children are very loving, and my mom is also a very loving person.  Do not let the statement made that she would not have brought him into this world fool you.  My mother loves my little brother very much.  She has devoted the last 12 years of her life to raising this special boy.  Because he is unable to communicate with us verbally, she has made him a communication book with pictures, that way he can show us what he wants.  My mom would not give Alex back for the world.  She loves him dearly, but although i disagree with abortion, i understand that my mom meant that she wouldn't want anyone to have to live a life of suffering, such as my brother does everyday.  It hurts my mom and I as well to hear my brother cry and not be able to know what is wrong with him. Many of you have made it sound like a piece of cake taking care of a child like my brother.  There is a lot of more help out there for children with down syndrome, than autism.  My brother has both disabillities, dominantly being severely autistic, which makes it even more complicated to find help for him. 

 I wrote a poem about my brother and I would like to share it with you:

 

Locked in a world all on his own

He cannot speak only his emotions are shown

Unable to express how much hurt he has inside

the pain he feels is also mine.

 

Angry he cannot tell us what he has to say

He continuously abuses himself everyday

The bruises and scars will always be there

This way of life is not at all fair

 

As hard as our lives are I'd hate to see him go away,

My love for him has too many words for to even say.

The love he has for us is filled within his heart

Nothing in this world could tear our relationship apart.

 

My brother, my best friend, the one who gives me wings,

The wonder, the joy, this special child brings.

 

 

Please watch the show tomorrow, and in understanding that she is not this unloving person she has been made out to be by many of you.

Just read your post and I have got to say that it is one of the most mature, compassionate  posts I have ever read on here.  And to think that you are only 16 years old!!!  You sound very caring and you are quite intelligent.  I enjoyed your poem very much!!

I hope you won't take all the judgements to heart that people are making on here. Those who call your Mom "selfish" are very quick to judge and I bet most have never walked in anything close to your Mom's shoes.  I myself have a special needs child.  I know what it feels like to have people attribute some of my child's behavior to my parenting skills. But of course these "know it alls"  have typically developing kids and have no knowledge of the disablilites she has yet they are quick to jump in with their commentaries. Again, don't take what people are saying to heart.

You are wise and very mature for 16.  I know it is a blessing for your Mom to have you for a daughter and your brother to have you as his sister. I wish the best to you and your family.

 
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March 25, 2008, 4:41 pm PDT

03/25 Tired of Being a Mom

Quote From: carebearxo

Hello to all viewers,

I am the sixteen year old daughter of the "selfish" woman many of you have been describing, yet you have not even seen the show yet.  First of all i would like to thank those of you who have taken up for my mom.  Many of you who have commented on this show have mentioned your child only has Down Syndrome.  You do not realize that he has TWO disabillities, not just one.  He has Down Syndrome AS WELL as Autism.  I have several friends who have little siblings with Down Syndrome, like mine.  I understand that their lives aren't exactly a walk in the park, but it doesnt compare at all to living with a brother who has both disablities.  I agree that these children are very loving, and my mom is also a very loving person.  Do not let the statement made that she would not have brought him into this world fool you.  My mother loves my little brother very much.  She has devoted the last 12 years of her life to raising this special boy.  Because he is unable to communicate with us verbally, she has made him a communication book with pictures, that way he can show us what he wants.  My mom would not give Alex back for the world.  She loves him dearly, but although i disagree with abortion, i understand that my mom meant that she wouldn't want anyone to have to live a life of suffering, such as my brother does everyday.  It hurts my mom and I as well to hear my brother cry and not be able to know what is wrong with him. Many of you have made it sound like a piece of cake taking care of a child like my brother.  There is a lot of more help out there for children with down syndrome, than autism.  My brother has both disabillities, dominantly being severely autistic, which makes it even more complicated to find help for him. 

 I wrote a poem about my brother and I would like to share it with you:

 

Locked in a world all on his own

He cannot speak only his emotions are shown

Unable to express how much hurt he has inside

the pain he feels is also mine.

 

Angry he cannot tell us what he has to say

He continuously abuses himself everyday

The bruises and scars will always be there

This way of life is not at all fair

 

As hard as our lives are I'd hate to see him go away,

My love for him has too many words for to even say.

The love he has for us is filled within his heart

Nothing in this world could tear our relationship apart.

 

My brother, my best friend, the one who gives me wings,

The wonder, the joy, this special child brings.

 

 

Please watch the show tomorrow, and in understanding that she is not this unloving person she has been made out to be by many of you.

I cried when I watched your Mom on TV today, but not because I was disgusted or sick or any of the other things people have been writing.  I wanted to hug your mom!  She needs all of the love and understanding any one can get and I applaude you for your letter.  I have a 17 year old autistic son and I have felt the way your mom feels.  My son has many more abilities than your brother.  He can and does tell me he loves me!  When we started out we too had to physically move Chris sometimes.  He is now 5'10" tall and weighs 200 lbs...no way we are moving that.   With all of the good I see in my son there are many, many bad moments, days and weeks.  He is verbally abusive.  He screams and cries and hides under tables.  I cringe when the phone rings during the day for fear it is school telling me of something that has happened.  When he was little and even more out of control, I became extremely depressed and thought about ending my life.  My husband forced me to get counciling and I am on an anti-depressant which keeps me sane enough to make it through the days.  I am sure someone reading this will have some ugly things to say about that, but you have to find a way to survive.  I love my son!

First,  please tell your mom she is not alone in her feelings and that they are valid - they are feelings and cannot be right or wrong.  Second,  see if your mom will see her doctor to get some emotional help weather it is medication or counciling.  Third, keep being the wonderful and exceptionally mature daughter you are, my 16 year old daughter says she hates her brother and wants to move as far away as possible so she can have a "normal" life.  I hope some day she will change her mind.

I don't know you and probably never will, but I will think of you often, seeing your mom really went to my heart today and I hope you all find a way to cope and to find some happiness and peace.

 
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March 29, 2008, 2:57 pm PDT

can u contact me

Quote From: carebearxo

Hello to all viewers,

I am the sixteen year old daughter of the "selfish" woman many of you have been describing, yet you have not even seen the show yet.  First of all i would like to thank those of you who have taken up for my mom.  Many of you who have commented on this show have mentioned your child only has Down Syndrome.  You do not realize that he has TWO disabillities, not just one.  He has Down Syndrome AS WELL as Autism.  I have several friends who have little siblings with Down Syndrome, like mine.  I understand that their lives aren't exactly a walk in the park, but it doesnt compare at all to living with a brother who has both disablities.  I agree that these children are very loving, and my mom is also a very loving person.  Do not let the statement made that she would not have brought him into this world fool you.  My mother loves my little brother very much.  She has devoted the last 12 years of her life to raising this special boy.  Because he is unable to communicate with us verbally, she has made him a communication book with pictures, that way he can show us what he wants.  My mom would not give Alex back for the world.  She loves him dearly, but although i disagree with abortion, i understand that my mom meant that she wouldn't want anyone to have to live a life of suffering, such as my brother does everyday.  It hurts my mom and I as well to hear my brother cry and not be able to know what is wrong with him. Many of you have made it sound like a piece of cake taking care of a child like my brother.  There is a lot of more help out there for children with down syndrome, than autism.  My brother has both disabillities, dominantly being severely autistic, which makes it even more complicated to find help for him. 

 I wrote a poem about my brother and I would like to share it with you:

 

Locked in a world all on his own

He cannot speak only his emotions are shown

Unable to express how much hurt he has inside

the pain he feels is also mine.

 

Angry he cannot tell us what he has to say

He continuously abuses himself everyday

The bruises and scars will always be there

This way of life is not at all fair

 

As hard as our lives are I'd hate to see him go away,

My love for him has too many words for to even say.

The love he has for us is filled within his heart

Nothing in this world could tear our relationship apart.

 

My brother, my best friend, the one who gives me wings,

The wonder, the joy, this special child brings.

 

 

Please watch the show tomorrow, and in understanding that she is not this unloving person she has been made out to be by many of you.

 hello...your brother alex and my son braden could be twins.....they look alike..act alike etc...i have never seen or heard of someone dealing with what i deal with untill now !!!!  your write its the autism thats so darn hard.....can the dr. phill people share my email add. w/u  ..i would so love to talk to your mom , my kids your age would totaly understand u too !!!   my name is wendy
 


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