Home Message Boards

Replies to 'Raising a Special Needs Child'

 
azlady
User Mood
Stressed

Message Emote
worried
August 17, 2005, 3:24 pm PDT

I totally understand!

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

I have a 9 year old son whos been dealing with many health issues since he was born! He's always had a hard time in school but it just seems to be getting worse every day! I feel the same helplessness you do. All I want for him is to have a "normal" life! He is so emotional at school! He's not as bad at home! For whatever reason my husband isn't very understanding about anything our son is going through!! Try and take care of yourself and remember your not alone! Sherrie
 
Reply with Quote Read Replies to this Message
azlady
User Mood
Stressed

Message Emote
worried
August 17, 2005, 6:54 pm PDT

Deb, I completely understand!

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

I have a 9 year old son who hasn't been diagnosed with anything other than emotional/angxity disorder, but the more I hear about this Aspergers , I think he might have that or something like it! Anyways as far as you losing your patience I totally get that!! As BAD as I feel for my son and what he has to go though every day, I find myself becoming overwhelemed, not knowing what to do!!? Today is the first day I even knew there where other kids like my Kristian! All I can say is , Hang in there! Take care of your self. Sherrie
 
Reply with Quote Read Replies to this Message
scalgboys
User Mood
Good

Message Emote
anxious
January 19, 2006, 10:26 am PST

ABSOLUTELY, Aspie~

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

I can relate wholeheartedly, as I am sure many others do also, as to what you are going through.  My son is also turning 11 next month and has been diagnosed with PDD-NOS (which, the more research I do, I think may be Aspergers instead)  as well as ADHD and Mood Disorder-NOS.  So I can relate to the daily struggles you are going through.  It is so exhausting and frustrating dealing with the behaviors, the mood swings, etc.  And I absolutely loose my patience... a lot!  And then of course, I feel worse when I do.  But, you have to remember that we are only human... and this is tough to deal with.  FYI, I have found a wonderful and supportive website for children with hidden disabilities.  It contains a lot of information as well as a chat room and message boards with parents like us discussing the day to day frustrations as well as how to deal with the problems at school.  The website is called Starfish Advocacy and it is at www.truenorthedu.us .  There, you will see that you are truly not in this alone!  Lots of luck, and feel free to write me back! 
 
Reply with Quote Read Replies to this Message
aspiemom13
User Mood
Good

Message Emote
blank
January 19, 2006, 6:44 pm PST

Asperger kids can get better

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

This is what I posted.....go to www.monarchschool.org   They have a lot of resource links.  I am homeschooling my son (13) and we are doing fantastic.  But wouldn't have it it weren't for the Monarch School.     My son is now 13, noticeable problems began when he was 7 and it was at school.  Things spiraled and got worse every year.  The behaviors he was exhibiting continued and began to change and manifest into more outward behaviors instead of inward.  I am a teacher.  I've taught for 13 years.  I worked with Dyslexic kids and students struggling with Reading.  My son was at my school.  His classrooms were either right next door or just down the hall.  I could hear everything and was called out many, many times to help.  We finally got an AS diagnosis (started with ADHD) in his 4th grade year.  He went to self-contained 100% of the time immediately to reduce his stressors.  He was having metldowns that lasted anywhere from 30 minutes to 2 hours as many times as 5 times a day.  By the end of his 4th grade year he was mainstreamed into Math and Reading.  In 5th grade he was mainstreamed into Math, Reading, and Science.  Beginning of 4th grade continuing into 5th grade he had a personal aide.  Getting an aide for one child can be difficulty depending on the district and is only good as the training.  AFter 3 months in 5th grade he had regressed.  Lack of training and knowledge was a major issue.  The administration was supportive and so were the regular ed. classroom teachers.  INfact, some went to training.  WE were desparate...our life at home, school, and everywhere we went was nothing but meltdowns.  We were so scared he would have a meltdown.  Luckily his meltdowns were not aggressive towards others.  In desperation, I got on the internet and began searching for special schools for AS/Autism.  We live in Texas and we found THE MONARCH SCHOOL (day school) in Houston, Texas.  We went in October of my son's 5th grade year to visit and knew immediately it was the place for him.  We applied and got in for his 2nd semester of his 5th grade year.  My son and I moved to Houston leaving my younger son and my husband at home.  It was amazing.  Just the change in setting brought my son back showing smiles and laughter that had been missing from for 21/2 years or more.  We hooked up with an excellent psychiatrist in Houston who tweaked our meds which helped., but it was the therapeutic school that gave him the tools.  He began to have self regulation and next thing we knew he was successful.  It was also a terrific education for me.  They work very closely with the parents.  We are now back together as a family, at home and I am now homeschooling him.  I couldn't have done it before The Monarch School.  He is taking karate and participates in the Youth group.  Socialization skills were also worked on at TMS and he is better.  It is tough though watching the other kids and how they treat him even in what should be a safe and accepting environment at church.  But it is also a tough age without AS.  However, meltdowns are practically non existent.  We are better though and all I can say is check out www.monarchschool.org.  Other good resources include Dr. Greenspan.  The Monarch school has links on their website to a lot of great resources.  It can get better!  I am a better parent because of the Monarch School and the education I got from them.  Because of my son, I have returned to school and I am working on my Masters in Special Education with a diagnostician certificate.  This is tough on your marriage,  but my husband and I are actually so much closer because of our son.  Yes, it is tough still, Yes it is frustrating, yes it demanding, but my husband and I can see a brighter future for our son now.  We have a rough, long road ahead and yes we still have alot of things to work on, but we can see the progress and have high hopes.
 
Reply with Quote Read Replies to this Message
bethcarol
User Mood
Happy

Message Emote
blank
January 26, 2006, 11:30 am PST

book

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

Hi Deb. I have been teaching life and vocational skills to special needs students at a large high school for 21 years, and  I have been working with a young man with Asperger's for the past 2 years.  He is quite a challenge, and has those meltdowns just like your sons'.  Recently I bought a book called "Social Skills Training for Children and Adolescents with Asperger Syndrome."  It has been a tremendous help in understanding how MJ's brain works along with providing information on how best to teach social skills.  Hope this helps. 
 
Reply with Quote Read Replies to this Message
kimmery
User Mood
Happy

Message Emote
blank
June 4, 2006, 3:25 am PDT

I totally relate

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

Dear Deb, 

  

I could, and have written pages and pages, about how I can relate to the sheer frustration of dealing with an Aspie.  In fact it is now something like 5 a.m. and I have been on this puter since about midnite typing and reading msg boards and websites on Aspergers and High Functioning Autism.   

  

My son is so bad that he is now on a waiting list for Residential Housing. 

  

Well, as I said it is now 5 in the morn and I am pooped. So, I do know how you feel.   I have found a GREAT support group on a msg board Aspergers Syndrome on AOL.  If you have it.  I mean they are awesome.  There isn't any live ones around me so it was nice to find these ladies, they are super. 

  

Kimmery 
 
Reply with Quote Read Replies to this Message
miche1972
User Mood
Apathetic

Message Emote
blank
September 9, 2006, 8:16 pm PDT

I can relate

Quote From: aspiemom1

My son will be 11 yrs in another month.  He has Aspergers & ADHD.  I homeschool him so I am with him all of the time and my husband is often away from home so I seldom get a break.

 

Lately my son has been having less emotional control and more anxiety and it is frustrating me because I can't seem to help him with this.  He is crying over every "little" thing, has mood swings, easily frustrated, and his stuttering has become much worse.  His fears seem worse right now and I lose my patience after a while.

 

Can anyone relate to what I'm going through?

Deb

my son has ADHD,ODD and Bipolar disorder. he is only 8 and was diagnosed 5 years ago on the 21st. i can relate to what you go through............have I got any answers? I wish I did! the last few weeks have been really difficult with him and well I am surprised I have any hair left. I know I get a headache within 10 minutes of him getting up. 10 minutes after he walks in from school........................ as much as I love him he drives me nuts
 
Reply with Quote Read Replies to this Message


Return to the Message Board


First Page | Previous Page | 1 | Next Page | Last Page