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June 16, 2008, 1:13 pm PDT

Living with Chronic Pain

Quote From: shelleyb2

I have quite a few illnesses, some are, epilepsy, bone degenerative disease, graves' disease, spinal injury, depression and have just been diagnosed with PTSD. I also have digestive problems, oesophegitis and stomach ulcers and bad anxiety.

 

I am a fighter and I write a lot and paint ceramics and have had my poetry published aswell as making greeting cards, I was donated a lap top as because of my spinal injury I was n longer able to sit up at the computer to do my cards, so the Lions Club donated me a laptop so I could do things sitting down which is amazing and my next card was for them...  The laptop is getting old now and it's not going to last me a lot longer so I am saving up as much as I possibly can as I simply rely on my computer.  I use it to keep in touch with friends because I can't drive, and I also found a lot of friends I used to have were scared of me having seizures as I have them a lot, and, they couldn't cope with it so they just stopped talking to me, nothing nasty, but I do miss them, it's the same with my spinal injury, I have to use a walker to get around and even I was embarrassed by it when I first got it but it meant I could get around by myself without falling down all the time.

 

I have just turned 40 and am far too young to just sit and feel sorry for myself so if I get down I write about it and if i get angry I do the same.

I am from Australia, so it's hard to have friendships overseas because of the time differences, but, there isn't much in Australia like this or any depression, illness sites.  I just hope I can make some friends here and truly hope I haven't written too much....

 

I'm not going anywhere lol.  I can't drive and at the moment I have just had another disc rupture, so i'm in a lot of pain and am not that impressed with it, but I just wish I didn't get depressed so much, I get so depresses and cry and don't know why..

 

I do as much as I can to keep myself busy and I don't sit around feeling sorry for myself, so why on earth do I get so down and have panic attacks??  Does anyone else get like this or am I the only one?? I hope you can help me...

 

Shelleyx

 

hi shelley --

 

welcome to the wild and crazy world of drphil.com's chronic pain message board!  everyone here is familiar with pain -- and the different ways to go about living with it.  every "newbie"  that joins, though, has some new tricks to offer, so i hope you'll jump right in.

 

my first nosy question (forgive me) -- concerns your epilepsy.  why is it not controlled?  what is the longest period of time you've gone without seizing?  i am also epileptic -- pardon my curiosity.  it's just that "these days" -- control is usually not all that hard.  i am guessing that maybe your epilepsy is secondary to your spinal injury?

 

how cool that you are so creative!  can we see some of the cards you've made?  the writing you are doing is probably also worth hanging on to... you may end up with a masterpiece.

 

chronic pain/disease and mental stress -- they go hand in hand.  i have had just a few panic attacks but cannot relate them to much -- i had my first one while i was teaching!  talk about praying for the bell to ring...

 

anyway, welcome and please keep posting -- i'd love to hear more about australia and your life there.

 

prof

 


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