Replies to 'When a Family Member Gets Sick'

 
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hopeful
August 21, 2008, 1:11 am PDT

HI JESS...

Quote From: jessg20mom2b

My Dad is an amazing human being. He was diagnosed when i was 5 years old.
He is supposed to be in a wheel chair , using a cane, and almost bedridden but he has faught against it and still to this day walks and does everything that he used to before he was sick. Just recently he  got diagnosed with throat cancer. with in the last year he has gone through radiation that has taken a toll on his body. his diet consists of ensure and Very little solids he lost over 30 pounds and refuses to go out in public any more becuase he is so embarrassed by the way he looks. He's in so much pain and is so weak I just wish i could help him. He has done so much for my family and i just wish there was something i can do.. He lays in bed all day and doesnt do anything I just wish that he wasnt hurting any more and that he could go back to the way he was. I love him so much that i would trade places with him in a heartbeat but that just simply can never happen... My dad decided to stop taking the M.S treatments and has kind of  just gave up all together... I think he is giving up on life and  letting the disease take over ..I have been trying to cope with it all and keep my stress level down for the sake of my unborn... But i am finding it harder and harder I am not ready to loose him.. and i dont think i will ever be... 

Just finished reading your post here and I have to say that I do understand what you are going through and what your Dad is going through, as my dear Dad is also very ill with Motor Neroune Disease. He has had it nearly 4 years now and up until 3 months ago he was doing ok, but then he was having troubles eating and drinking and now has lost heaps of weight and is very weak because of it.

 

He has to have a feeding tube put in and hopefully that will help him even if it's just alittle bit.

 

I too know that my dear Dad is dying and Mum said that it seems like he is slowly giving up now, just doesn't want to fight so hard anymore. I understand why, as this bloody disease takes such a toll on Dad's body, he is stuck in a useless body. His mind is still great, but his body has given up on him now.

 

As much as I don't want my Dad to die, I know that it's going to happen and in the end I will be so sad to say goodbye, I will also be relieved that he will not be suffering anymore.

 

All I can suggest to you is, to take each day as it comes, enjoy every moment with your Dad that you both will have together, tell your Dad daily how much you love him.

 

How long do you have to go before you give birth to your Little One? Hopefully your Dad will be around to see him or her. That would be a wonderful thing for the both of you to look forward to, also just remember all the wonderful times you and your Dad have had over the years, no-one can ever take those things away from you. You will always have your Dad in your heart close to you, he will always be around keeping an eye on you.

 

God Bless your dear Dad and God Bless you as well, please Take Care, Love Kelly.

 
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October 8, 2008, 9:54 am PDT

Multiple Sclerosis and Fibro

Quote From: jessg20mom2b

My Dad is an amazing human being. He was diagnosed when i was 5 years old.
He is supposed to be in a wheel chair , using a cane, and almost bedridden but he has faught against it and still to this day walks and does everything that he used to before he was sick. Just recently he  got diagnosed with throat cancer. with in the last year he has gone through radiation that has taken a toll on his body. his diet consists of ensure and Very little solids he lost over 30 pounds and refuses to go out in public any more becuase he is so embarrassed by the way he looks. He's in so much pain and is so weak I just wish i could help him. He has done so much for my family and i just wish there was something i can do.. He lays in bed all day and doesnt do anything I just wish that he wasnt hurting any more and that he could go back to the way he was. I love him so much that i would trade places with him in a heartbeat but that just simply can never happen... My dad decided to stop taking the M.S treatments and has kind of  just gave up all together... I think he is giving up on life and  letting the disease take over ..I have been trying to cope with it all and keep my stress level down for the sake of my unborn... But i am finding it harder and harder I am not ready to loose him.. and i dont think i will ever be... 

I saw your post and wanted to respond.  I am really sorry for your dads diagnosis.  When I went blind at the age of 25  I just couldn't believe it .  The optomolgist told me I had multiple sclerosis and optic neuritis I was blind in my right eye and going to be blind in my left eye.  Well the feeling of loss was overwhelming I wasn't going to see my husband or child or anyone for that matter.  I fell apart and went to the neurologist and he said anyone can get mutiple sclerosis.  Well here I am at the age of 49 and I just cannot believe the unbearable depression that comes with multiple sclerosis and with fibromyalgia I feel that fibro is the same as multiple sclersois only on training wheels.  I cannot remember much even in a conversation I get lost so I have more or less quit talking.  The other night I was asleep and took a planters wart out of the bottom of my foot.  It looked like it had been removed by a surgeon.  I ended up in the hospital for it but no one would believe me when I said that I did it in my sleep.  Epson Salt and you should do fine.  What is fine anymore and who said fun begins at 50 cause that's a dang lie.  I have stopped taking MS treatments as I was sicker taking the shots than not.  Sometimes I have panic attacks and sometimes all I can do is sleep.  I hate the person I've become.  I walk with a cane for balance and its terrible.  I never knew the prejudice of people as much as I have now.  If I go to big stores I have to take a wheelchair.  How can a doctor tell you to stay away from stress when LIFE is just a whole lot of stress itself.  One day and one step everyday that's what my life has become.

 


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