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Replies to '08/19 Tired of Being a Mom'

 
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August 19, 2008, 9:10 pm PDT

08/19 Tired of Being a Mom

Quote From: keysnfingers

To me it all seems to be kinda normal because a child will always be more obedient to one parent than the other and mostly always give one parent a harder time than the other, but because of Alex's disabilities the whole situation is ten times worst on Cyndi. I do believe they need some serious help perhaps at home because I do agree with Ulis and his dedication to his son. A compromise is what I would do. Get the help the family needs but keep Alex at home.
So much depends on what insurance and finances allow.  Mom CANT keep doing this. 
She needs to be able to get away for a good portion of the day so she can actually enjoy her son like Dad does.  It is easier to love someone when you arent wiping up feces every time you turn around  (that only works when they are babies) and putting your back out lifting them up and down the stairs.  I think physical exhastion is causing a lot of the emotional exhastion.
 
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August 19, 2008, 9:38 pm PDT

I'm not quite sure...

Quote From: keysnfingers

To me it all seems to be kinda normal because a child will always be more obedient to one parent than the other and mostly always give one parent a harder time than the other, but because of Alex's disabilities the whole situation is ten times worst on Cyndi. I do believe they need some serious help perhaps at home because I do agree with Ulis and his dedication to his son. A compromise is what I would do. Get the help the family needs but keep Alex at home.

I believe that Ulis IS dedicated to his son.  He is not trained to handle children with these problems, as evident by the fact that Alex is not at a higher level of function.  Maybe that ISN'T possible, but to use the Kennedy Institute for some in house treatment should not be ruled out.  People think of institutions as snake pits.  Some are, but others really do have the ability to bring the child to the highest point of function, then, show the parents how to follow it through.  Isn't it kinder to exhaust EVERY measure available to try to get the best results possible, even if that means some in-house treatment? 

I think Cyndi is on her last nerve, but with Alex's lack of progress, it may be time to turn this over to the Kennedy Institute...does NOT have to be forever.  He did say MEAN...my thinking, if he can do that, and use one word where it makes sense, he CAN do more.  Alex CAN walk upstairs.  A professional would better know how to keep his progress in motion without coming across as "mean".

The more time spent the way things are going, the less chance Alex has of reaching his full potential.

If something really radical is not done, and soon, I am afraid that Alex will be a 200 lb. 20 year old, confined to a facility for life.  There have been remarkable srtides made in both areas...why not try ANYTHING?

 


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