Topic : Raising a Special Needs Child

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Created on : Friday, July 01, 2005, 12:48:15 pm
Author : dataimport

Do you have a child with special needs? Share your advice and support with others raising a challenged child.



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October 18, 2005, 4:37 pm PDT

Cathy To.

Cathy I like the picture of a duck flying and it is funny and danger aswell. do not show it again. See you sometime soon. From Russell Vlaanderen.-------------------------------------------------------------------
 
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October 18, 2005, 8:51 pm PDT

Child with special needs

I have a 17 yr old with Aspergers and a 6 yr old with PDD.  The oldest was first diagnosed with ADD at the age of 7 a few yrs ago we found out it is really Aspergers.  All during the time he was growing up I knew very little about ASDs now that I found out that the 6 yr old (diagnosed at age 3) has PDD I have begun reading and studying everything I can find, some is good and some doesn't work.  I have begun to study Wrights Law, NCLB, writing IEPs and have taken a very active role in every aspect of his education.  I attend a support group weekly that is lead by a Phd who has a lot of clients with Aspergers and am learning more all the time.  These children need first and foremost to learn social skills; how to ask for what they want and need, then we can teach them academics depending on their funtionability.  Their behaviors are fear and anxiety driven and as such we need to do all we can to lessen their anxiety and stress.

Depending on your school district (some welcome parent involvement some don't) you can be a proactive advocate for your child no matter what the age.  I do know that it is a 24/7 job of teaching them acceptable and appropriate behaviors and social skills.  We use social stories, at this point they are picture and word stories that help him to understand what is expected and how we should behave and talk to people.  These children are very "rule" oriented, logical in their thinking and we must make sure that the schools provide the services that our children require and deserve no matter how much they resist. 

Home schooling is a tough job even without disabilities and perhaps for some kids this might work, but how do you teach them the social skills that they so desparately need?  How to interact with peers and get them the individual services they need?  Insurance doesn't pay for Applied Behavioral Analysis, Floor Play Therapy, etc.  I have purchased several books and manuals to teach me how to teach my son.  He is now in Kindergarten and I very closely monitor what and how the staff are doing and make sure they are following the IEP that has been written, I even write the agenda for the IEP meetings and run the meetings myself because I feel that is what I have to do to address the needs he has.

Going to the Wrightslaw web site will give parents a lot of helpful information and links to other web sites that have a wealth of information and support for parents.  I wish families of children with disabilities the best and just remember you're not alone, there are good days and then not so good days and we are so blessed to have them in our lives because they do enrich our lives so much, even as difficult as some days may be I wouldn't change anything about my boys.
Mary
 
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October 19, 2005, 7:53 am PDT

saturated, overwhelmed, incompetent failure

I have been a single mother for almost 16 years.  I failed miserably as a parent.  My youngest child has multiple diagnoses since age 4 that change with the breeze.  he's been on drug after drug after drug in spite of my not wanting to put him on drugs.  Our school system here insists on drugging kids that don't assimilate into their molds, though, I do know my son's behaviors were outlandish and extreme.  However, I still want to know why they can't test him for allergies as it seems to me that's a root cause of his chronic sinus and ear infections.  Why can't they do a scan to actually diagnose him properly instead of the county psychologist lying to me and telling me that the diagnosis doesn't really matter, because they have so many wonerful new drugs with no side effects....gives him risperdol which should not have been given to anyone under 18 and has potentially deadly and potentially irreversible side effects???? 

  

I'm so frustrated!  I am growing a deep seated hatred for life and for our society, its systems and it's government, which has permeated every facet of our lives.  I'm so angry that it wouldn't take much to send me over the edge.  I oscillate between exrremes of anger, guilt, fear, hopelessness and despair.  I feel so helpless to help or protect my child.  The things he does are so extreme and so outlandish that no one can tolerate him for extended periods of time.  I've lived in chaos for so long I don't function normally anymore.   

  

If I let Child Protective Services place him in a group home with wrap around services, they have to write a report to the court that I'm an unfit, neglectful or some words which will take away my rights as his parent.  I won't have a right to see him or have home visits with him, nor to have any say in his education or treatment.  They cannot place him without removing me because they are not there to protect the child from anyone but the primary caretakers and they are certainly not there to protect the parents from the child. 

  

Mental health doesn't want to step up to the plate and make a placement that would not remove me from my sons life and should he stabalize enough he'd be able to come home.  Though, I doubt I'd have the true right or power to say, "No more drugs!"  I got married in 2003 to a non-resident alien M.D. who was here for 30 days a couple of years ago and was shocked at the drugs he was on and questioning his prescriptions.  At the time he was on three drugs, one of which was imipramine that he'd been on since 4 years old.  My husband said that drug has a side effect of anger and violence.  geee, are you serious??? That's what we got from it!!! And the next drug was to treat the anger and violence....then I looked up the imipramine and it's not supposed to be given to anyone for over 4 months!   I truly believe deep in my heart that children treated through the public mental health system not only get substandard care, but that they are being experimented on without our knowledge or permissions.  I would bet money, if I had it, that my son and others are secretly part of trial studies on these drugs. 

  

My son rages, hits me, destroys property, refuses to cooperate unless there's a 'bribe' for him to do so.  He steals, not only from me but from others and stores.  He told me last week during a lucid moment of conversation that he's got a problem with stealing.  I told him last night I think he has another serious problem with lying and asked what he thought about my observation.  He first went to babytalk and noises and I told him to just stop and answer me, I want to know what he thinks.  He stopped making the baby stuff and peeped at me over the edge of the pillow, looking into my eyes as if trying to decide if he should talk to me or not.  He finally lowered the pillow with a matter of fact tone and a look as if I'm pretty dense not to see the obvious, "Mom, you have to lie to steal." 

  

He told me last week when trying to talk to him that he knows what he's doing and he's doing it on purpose because he's angry and I don't pay enough attention to him.  oh there's so much and so much history I don't think I can even say it all.  But, I'm afraid.  I'm afraid for him and I'm afraid for myself.  he's going to hurt me or kill me, not meaning ot or meaning it at the moment then being sorry later.  I'm not sure I value my own life that much, I feel really like the biggest failure and most useless piece of flesh on the planet, but I can only imagine what he would go through afterwards.  Even though, when I ask him what he wants to be when he grows up he says I serial killer and that I will definitely be seeing him on the news one day. 

  

So why is it so difficult for me to make the decision to give up and walk away so he can get help?  One I'm not convinced they can or will help him.  I think the drugs have effected him.  though, I think I've lost my ability to know what is cause and effect in his case. 

  

He doesn't want to live in a group home again.  He spent 18 months in one before and he was doing better, maybe, because of the strict structgure and the staff are able to force and enforce the routine and rules and to physically force compliance if necessary, where if I were to do what they do,I'd go to jail for child abuse.  Believe me, I've been told in no uncertain terms that I cannot put my hands on him even when he's attacking me, my only option is to call the police.  That's mental health's answer also...they don't want to make the placement but they want me to call the police and turn it to a juvenille criminal matter ending in his incarceration and/or placement through the criminal system.  He may be committing crimes, but it's a mental health issue!!!  Child Protective Services will take him if I tell her to write that report (yes I'm a monster he needs to be protected from) but his social worker wants me to put it back on mental health by taking him to crisis.  I've done that since he was four years old.  In all of those years they only hospitallized him twice for 10 days which resulted in taking him off of all of his medications, giving him a new diagnoses and a new medication and releasing him no better than he went in. 

  

I live in a house across the street from an apartment complex.  One guy has busted my door down coming after Chris, his brother - in -law broke it down a few weeks before that and it was only my quick actions that saved my son from a beating.  A month or so later that same neighbor attacked him in my front yard, throwing him against teh garage and holding a knife to his throat.  That neighbor has threatened his life and my older son's life a few days before that.  Just a week ago I was in the ER twice due to adverse reactions to the risperdol in which he was having uncontrollable jerking and stiffening of his limbs and trunk which terrified me.  Two days after that my neighbor in the apartment next to the other guy thought it was funny to shoot the neighborhood outcast.  This grown man first shot my son in the chest with a plastic BB that left a red mark.  My son burst into the bathroom with his shirt up to tell me the guy had shot him.  I told him to stay in the house as soon as I'm off th toilet I'll go take care of it.  No, he didn't listen, he went back out again and the guy shot him again, this time with a metal BB that sent us to the ER and is still in his hand. 

  

The police were called, but the officer sent out has a brother who was a mental health patient.  He went on to tell me that he is useless, became a crack addict, isn't allowed at any family member's homes and is nothing but a drain on his mother, etc.  He went on to, what I think, transfer all of his opinions about his own brother onto my son and came to the conclusion that he wasn't a credible witness so they couldn't prosecute, even though the guy knocked on my door and told me directly he's the one who shot him. 

  

Here's an example of one night at home.  This is what it's like 80% of the time that he is awake: 

  

He’s been running around with an empty camera making threats by pulling his pajama bottoms out and aiming the camera in and saying what if I take these pictures and say you molested me? 

  

 

7:30 PM  This was after a long day, the bus didn’t drop him off as usual because he told the driver he was afraid the neighbor would shoot him again.  There was something on his IEP marked not to drop him off without supervision, but they’ve been dropping him off for almost three years now and that was an error, to be corrected tomorrow.  I had to leave to go get Sonny and picked up a few things at the store on the way back along with sandwiches for dinner.  He put his hand in his pants and was grabbing his penis and rubbing and squeezing it and hitting it with a piece of plastic singing something about a monkey a naughty monkey, then moved from in front of the TV as I used planned ignoring.   Monkey, come here monkey pooh.  Monkey, Oh big ? monkey.  Oh no I didn’t say anything.   Singing Wake up wake up wake up monkeys, monkeys get up and wake up.   

  

 

7:43 PM Sonny is asleep in his room, Chris now calmed down and laid down on the floor on a blanket watching Bernie Mac show.  I am asking him to go take a bath and he’s arguing with me that his feet don’t stink   

  

 

8 pm 80 bajillion a number that’s how much money you could save, going to capital one.  What brings that up?    The little kids on that capital one commercial.  

He told me about the commercial. 

 Mom…why did Kermit the frog’s finger smell like pork?  Ahahhahaha moved away from me to the end of the couch laughing….repeated the joke…planned ignoring then he’s bouncing up and down calling Mom, mom….tap tap tap tap  Monkey monky poking my arm with a nudge/finger.  Then he went and laid down again. 

  

 

He’s a but picking monkey.  He’s a hairy but picking monkey.   Gave him his depakote and took it with a problem by pretending to spit it out under a blanket, then when I put my fingers in his tmj and opened his mouth to see them still there, he finally took them with some juice, saying, did I really take it or did I spit it in the juice bottle?  He’s a finger buttlicking monkey.  He licks his but finger.  Mmmmm yaaaaahhhh  baby it’s stinky pooh, poopyy 

  

 

  

 

8:30 pm he popped up at a fisher price commercial saying, “Mom I want that” with an excited look on his face (exaggerated).  I looked at the commercial to see the baby toy and babies about a year old playing with it and laughing.  I looked at him and said, “Oh you want a baby?”  He said, “No, I want that toy”  then he lauged/giggled with the babies. 

  

 

That didn’t get a response from me so he said he was going to pour out the sunny D because it had his medicine in it.  I said don’t pour it out because I didn’t buy it to have you pour it out.  He went outside the front door for two minutes and came back saying he pissed in it, then bringing it in front of my face saying he pissed in it, I ignored it and he then drank from it and went across the room and began talking normally abut the program on TV. 

  

 

8:34 PM  I’m asking him to take a bath.  He is ignoring me, looking at acomic book and telling me he knows what game he wants from a gameboy advance from cartoon network.  I’m asking him to go take a bath and he’s dancing to the sitcom music on tv.  “I love you, shooba dooba doo” he said.  Chris, go take a bath.  He told me he had a bath yesterday and I said he has to take at least one a day and some days he might need two.  He was trying to rub my arm and I told him not to touch me that he’s had his hands on his pecker and hasn’t washed or bathed and he then started trying to touch my face.  I moved away and ignored him.  8:37 PM he went back to the love seat and is reading a comic book. 

  

 

8:46 PM  He said his teacher’s mom died.  I said tabarak’s uncle died.  He said so what, who cares?  I said I do. He said it’s tabarak and he’s going to go to hell, he’s going to stand on a bungie chord with a razor blade and get killed and go to hell.  I asked why and he said, (because) He’s been a terrorist he cut somebody’s dick off.  He had sex with his wife and he got his dick cut off…with who’s wife?  His brother.  Fake grin, “I think it’s really funny” 

  

  

I wish someone could say something to me that would penetrate my heart so I can give up gracefully admitting that I failed instead of thining, "OK I can't live like this anymore and I'm insane now, He's out of here!" then a few minutes or hours later, "he has no one but me and if they say he's now Reactive Attachment Disorder as his primary diagnosis and I abandon him to a group home, how can that not increase his problems especially when they will give him drug after drug "cocktails' they call them and I know by fact kids are raped by other residents in the older group homes and the staff does not intervene or protect the kids.  I know that because I knew a woman once who worked in a teen group home and it was their policy not to intervene.  If my son is talking so disgustingly and acting like that, he's going to be a target for sexual predators.  However, I know I can't keep him safe from those kinds of people here either when he won't stay home and roams the neighborhood at will. 

  

How can I get through this, do what's best for my son and keep my sanity or should I say, regain my lost sanity?  We have a court date on Nov. 4th and I have only a matter of days to decide what to do and stick to the decision. 

  

  

  

 

 
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October 20, 2005, 8:29 am PDT

has chromosome testing been done?

Quote From: donna66

I have been a single mother for almost 16 years.  I failed miserably as a parent.  My youngest child has multiple diagnoses since age 4 that change with the breeze.  he's been on drug after drug after drug in spite of my not wanting to put him on drugs.  Our school system here insists on drugging kids that don't assimilate into their molds, though, I do know my son's behaviors were outlandish and extreme.  However, I still want to know why they can't test him for allergies as it seems to me that's a root cause of his chronic sinus and ear infections.  Why can't they do a scan to actually diagnose him properly instead of the county psychologist lying to me and telling me that the diagnosis doesn't really matter, because they have so many wonerful new drugs with no side effects....gives him risperdol which should not have been given to anyone under 18 and has potentially deadly and potentially irreversible side effects???? 

  

I'm so frustrated!  I am growing a deep seated hatred for life and for our society, its systems and it's government, which has permeated every facet of our lives.  I'm so angry that it wouldn't take much to send me over the edge.  I oscillate between exrremes of anger, guilt, fear, hopelessness and despair.  I feel so helpless to help or protect my child.  The things he does are so extreme and so outlandish that no one can tolerate him for extended periods of time.  I've lived in chaos for so long I don't function normally anymore.   

  

If I let Child Protective Services place him in a group home with wrap around services, they have to write a report to the court that I'm an unfit, neglectful or some words which will take away my rights as his parent.  I won't have a right to see him or have home visits with him, nor to have any say in his education or treatment.  They cannot place him without removing me because they are not there to protect the child from anyone but the primary caretakers and they are certainly not there to protect the parents from the child. 

  

Mental health doesn't want to step up to the plate and make a placement that would not remove me from my sons life and should he stabalize enough he'd be able to come home.  Though, I doubt I'd have the true right or power to say, "No more drugs!"  I got married in 2003 to a non-resident alien M.D. who was here for 30 days a couple of years ago and was shocked at the drugs he was on and questioning his prescriptions.  At the time he was on three drugs, one of which was imipramine that he'd been on since 4 years old.  My husband said that drug has a side effect of anger and violence.  geee, are you serious??? That's what we got from it!!! And the next drug was to treat the anger and violence....then I looked up the imipramine and it's not supposed to be given to anyone for over 4 months!   I truly believe deep in my heart that children treated through the public mental health system not only get substandard care, but that they are being experimented on without our knowledge or permissions.  I would bet money, if I had it, that my son and others are secretly part of trial studies on these drugs. 

  

My son rages, hits me, destroys property, refuses to cooperate unless there's a 'bribe' for him to do so.  He steals, not only from me but from others and stores.  He told me last week during a lucid moment of conversation that he's got a problem with stealing.  I told him last night I think he has another serious problem with lying and asked what he thought about my observation.  He first went to babytalk and noises and I told him to just stop and answer me, I want to know what he thinks.  He stopped making the baby stuff and peeped at me over the edge of the pillow, looking into my eyes as if trying to decide if he should talk to me or not.  He finally lowered the pillow with a matter of fact tone and a look as if I'm pretty dense not to see the obvious, "Mom, you have to lie to steal." 

  

He told me last week when trying to talk to him that he knows what he's doing and he's doing it on purpose because he's angry and I don't pay enough attention to him.  oh there's so much and so much history I don't think I can even say it all.  But, I'm afraid.  I'm afraid for him and I'm afraid for myself.  he's going to hurt me or kill me, not meaning ot or meaning it at the moment then being sorry later.  I'm not sure I value my own life that much, I feel really like the biggest failure and most useless piece of flesh on the planet, but I can only imagine what he would go through afterwards.  Even though, when I ask him what he wants to be when he grows up he says I serial killer and that I will definitely be seeing him on the news one day. 

  

So why is it so difficult for me to make the decision to give up and walk away so he can get help?  One I'm not convinced they can or will help him.  I think the drugs have effected him.  though, I think I've lost my ability to know what is cause and effect in his case. 

  

He doesn't want to live in a group home again.  He spent 18 months in one before and he was doing better, maybe, because of the strict structgure and the staff are able to force and enforce the routine and rules and to physically force compliance if necessary, where if I were to do what they do,I'd go to jail for child abuse.  Believe me, I've been told in no uncertain terms that I cannot put my hands on him even when he's attacking me, my only option is to call the police.  That's mental health's answer also...they don't want to make the placement but they want me to call the police and turn it to a juvenille criminal matter ending in his incarceration and/or placement through the criminal system.  He may be committing crimes, but it's a mental health issue!!!  Child Protective Services will take him if I tell her to write that report (yes I'm a monster he needs to be protected from) but his social worker wants me to put it back on mental health by taking him to crisis.  I've done that since he was four years old.  In all of those years they only hospitallized him twice for 10 days which resulted in taking him off of all of his medications, giving him a new diagnoses and a new medication and releasing him no better than he went in. 

  

I live in a house across the street from an apartment complex.  One guy has busted my door down coming after Chris, his brother - in -law broke it down a few weeks before that and it was only my quick actions that saved my son from a beating.  A month or so later that same neighbor attacked him in my front yard, throwing him against teh garage and holding a knife to his throat.  That neighbor has threatened his life and my older son's life a few days before that.  Just a week ago I was in the ER twice due to adverse reactions to the risperdol in which he was having uncontrollable jerking and stiffening of his limbs and trunk which terrified me.  Two days after that my neighbor in the apartment next to the other guy thought it was funny to shoot the neighborhood outcast.  This grown man first shot my son in the chest with a plastic BB that left a red mark.  My son burst into the bathroom with his shirt up to tell me the guy had shot him.  I told him to stay in the house as soon as I'm off th toilet I'll go take care of it.  No, he didn't listen, he went back out again and the guy shot him again, this time with a metal BB that sent us to the ER and is still in his hand. 

  

The police were called, but the officer sent out has a brother who was a mental health patient.  He went on to tell me that he is useless, became a crack addict, isn't allowed at any family member's homes and is nothing but a drain on his mother, etc.  He went on to, what I think, transfer all of his opinions about his own brother onto my son and came to the conclusion that he wasn't a credible witness so they couldn't prosecute, even though the guy knocked on my door and told me directly he's the one who shot him. 

  

Here's an example of one night at home.  This is what it's like 80% of the time that he is awake: 

  

He’s been running around with an empty camera making threats by pulling his pajama bottoms out and aiming the camera in and saying what if I take these pictures and say you molested me? 

  

 

7:30 PM  This was after a long day, the bus didn’t drop him off as usual because he told the driver he was afraid the neighbor would shoot him again.  There was something on his IEP marked not to drop him off without supervision, but they’ve been dropping him off for almost three years now and that was an error, to be corrected tomorrow.  I had to leave to go get Sonny and picked up a few things at the store on the way back along with sandwiches for dinner.  He put his hand in his pants and was grabbing his penis and rubbing and squeezing it and hitting it with a piece of plastic singing something about a monkey a naughty monkey, then moved from in front of the TV as I used planned ignoring.   Monkey, come here monkey pooh.  Monkey, Oh big ? monkey.  Oh no I didn’t say anything.   Singing Wake up wake up wake up monkeys, monkeys get up and wake up.   

  

 

7:43 PM Sonny is asleep in his room, Chris now calmed down and laid down on the floor on a blanket watching Bernie Mac show.  I am asking him to go take a bath and he’s arguing with me that his feet don’t stink   

  

 

8 pm 80 bajillion a number that’s how much money you could save, going to capital one.  What brings that up?    The little kids on that capital one commercial.  

He told me about the commercial. 

 Mom…why did Kermit the frog’s finger smell like pork?  Ahahhahaha moved away from me to the end of the couch laughing….repeated the joke…planned ignoring then he’s bouncing up and down calling Mom, mom….tap tap tap tap  Monkey monky poking my arm with a nudge/finger.  Then he went and laid down again. 

  

 

He’s a but picking monkey.  He’s a hairy but picking monkey.   Gave him his depakote and took it with a problem by pretending to spit it out under a blanket, then when I put my fingers in his tmj and opened his mouth to see them still there, he finally took them with some juice, saying, did I really take it or did I spit it in the juice bottle?  He’s a finger buttlicking monkey.  He licks his but finger.  Mmmmm yaaaaahhhh  baby it’s stinky pooh, poopyy 

  

 

  

 

8:30 pm he popped up at a fisher price commercial saying, “Mom I want that” with an excited look on his face (exaggerated).  I looked at the commercial to see the baby toy and babies about a year old playing with it and laughing.  I looked at him and said, “Oh you want a baby?”  He said, “No, I want that toy”  then he lauged/giggled with the babies. 

  

 

That didn’t get a response from me so he said he was going to pour out the sunny D because it had his medicine in it.  I said don’t pour it out because I didn’t buy it to have you pour it out.  He went outside the front door for two minutes and came back saying he pissed in it, then bringing it in front of my face saying he pissed in it, I ignored it and he then drank from it and went across the room and began talking normally abut the program on TV. 

  

 

8:34 PM  I’m asking him to take a bath.  He is ignoring me, looking at acomic book and telling me he knows what game he wants from a gameboy advance from cartoon network.  I’m asking him to go take a bath and he’s dancing to the sitcom music on tv.  “I love you, shooba dooba doo” he said.  Chris, go take a bath.  He told me he had a bath yesterday and I said he has to take at least one a day and some days he might need two.  He was trying to rub my arm and I told him not to touch me that he’s had his hands on his pecker and hasn’t washed or bathed and he then started trying to touch my face.  I moved away and ignored him.  8:37 PM he went back to the love seat and is reading a comic book. 

  

 

8:46 PM  He said his teacher’s mom died.  I said tabarak’s uncle died.  He said so what, who cares?  I said I do. He said it’s tabarak and he’s going to go to hell, he’s going to stand on a bungie chord with a razor blade and get killed and go to hell.  I asked why and he said, (because) He’s been a terrorist he cut somebody’s dick off.  He had sex with his wife and he got his dick cut off…with who’s wife?  His brother.  Fake grin, “I think it’s really funny” 

  

  

I wish someone could say something to me that would penetrate my heart so I can give up gracefully admitting that I failed instead of thining, "OK I can't live like this anymore and I'm insane now, He's out of here!" then a few minutes or hours later, "he has no one but me and if they say he's now Reactive Attachment Disorder as his primary diagnosis and I abandon him to a group home, how can that not increase his problems especially when they will give him drug after drug "cocktails' they call them and I know by fact kids are raped by other residents in the older group homes and the staff does not intervene or protect the kids.  I know that because I knew a woman once who worked in a teen group home and it was their policy not to intervene.  If my son is talking so disgustingly and acting like that, he's going to be a target for sexual predators.  However, I know I can't keep him safe from those kinds of people here either when he won't stay home and roams the neighborhood at will. 

  

How can I get through this, do what's best for my son and keep my sanity or should I say, regain my lost sanity?  We have a court date on Nov. 4th and I have only a matter of days to decide what to do and stick to the decision. 

  

  

  

 

I recently posted a story the other day.  I don't think what you said sounds like what my son has, but he has a genetic syndrome that affects many different aspects of being, from muscular development, to behavioral.  He has chronic ear infections and he also hurts himself often by scratching, hitting his head off the floor, or hitting himself with a toy, or he bites his hands.  I'm not suggesting that this is what your son has, all I'm saying is maybe he has a chromosome problem that makes him behave the way he does.  I wish I could help more.  So I'm just wondering if any genetic testing has been done,  or has it all been just observative? 

 
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October 20, 2005, 6:53 pm PDT

Donna

I'm so sorry for what you've been through and are still going through.  I wish I could offer something of help to you.  I know it would be very hard to just "give up" and place your child in someone else's hands.  It's hard to trust anyone else with our children's care.  I don't think I could do that and yet I know you feel stuck between a rock and a hard place. 

  

I've been thinking about your postand I really think you need to paste your post into an email to Dr. Phil.  If you don't get a response, do it several times.  He may be able to help you or put you with someone who could. 

Deb 

 
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October 24, 2005, 8:24 am PDT

ASPERGER'S FAMILY FORUM

Here is an excellent place to get information and support regarding ASPERGER'S SYNDROME and HFA. Please Join Us!! Angie ~ http://forums.delphiforums.com/asfamily/start
 
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October 24, 2005, 8:27 am PDT

DR. PHIL ~ ASPERGER'S SHOW, PLEASE!!!

Dr. Phil, Please do a show about Asperger's Syndrome! We really need to spread awareness!!
 
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October 28, 2005, 1:05 pm PDT

Mom with Autistic Child

Hi I am a mom of an 8 year old boy who is autistic and struggling with it... he is a very loving and gentle child at times...but he is very aggressive with adults and other kids...threatens all of us on a regular basis and curses horribly.  he has seen three doctors that all want to put him on meds and we have tried that route and he was a zombie or a raging bull on them... they killed his personality...he has ADD.....there is not a lot of help for parents like us...i hope that someone here has some advice that can help 

 
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October 28, 2005, 2:39 pm PDT

What's helped us

Quote From: tjsmom

Hi I am a mom of an 8 year old boy who is autistic and struggling with it... he is a very loving and gentle child at times...but he is very aggressive with adults and other kids...threatens all of us on a regular basis and curses horribly.  he has seen three doctors that all want to put him on meds and we have tried that route and he was a zombie or a raging bull on them... they killed his personality...he has ADD.....there is not a lot of help for parents like us...i hope that someone here has some advice that can help 

I kind of know what you're dealing with.  My son was diagnosed w/ ADHD when 6 yrs and then Aspergers, which is in the Autism Spectrum, when 7 yrs.  (He is now 11 yrs.) First we tried Naturopathic remedies because we didn't want to use meds unless we had to.  Then we went to meds., we also tried the Feingold Diet.  It is very frustrating trying things and having such hopes and then having them dashed.  The only thing that helped somewhat is eliminating artificial food colors...until someone told us about how glyconutritional supplements and how they helped their child.  We were at the point we would try anything and have been very pleased with the glyconutrition.  He's been taking it for 1 1/2 yrs. now so I am also seeing long-term results.  My son was still on Strattera and has since been taken off of that.  Now he is able to hold very good discussions, isn't hyper, can follow more than one direction at the time, has stopped stuttering, depression is gone, anxiety gone.  He's still immature, but considering how things were, we are very happy with things now.  If you look into alternatives to medication you might want to look into this one.  Feel free to email me if you want to hear more.  Just put "Dr P Board" in the subject so I don't delete it w/o reading it! 

  

Don't give up!  There is a solution out there for you and things will get better!  Deb 

 
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November 5, 2005, 7:07 am PST

Movement disorder

Is there really no one who has a child with a movement disorder? 

  

Carol 

 

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