Topic : Raising a Special Needs Child

Number of Replies: 715
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Created on : Friday, July 01, 2005, 12:48:15 pm
Author : dataimport

Do you have a child with special needs? Share your advice and support with others raising a challenged child.



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February 16, 2006, 12:26 pm PST

special needs child

Quote From: jnicole

I can relate! My son was the same way for the first 3 years of his life.  Now he talks, but his syntax is all jumbled up.  He also will walk away with anyone and tell anyone his address!  He was not diagnosed until he was 6 years old and his kindergarten teacher told me to take him to the doctor and ask about Aspergers.  I did, and to my surprise they sent us immediately to a specialist.  He has been in intensive theraphy for the past 3.5 years and while there are improvements, I worry like you, that he will be taken advantage of.  He is frequently the target of bullies at school.  He is such a sweet boy though and he wants so badly to be liked.  Once, at school, this kid told my son he could not eat his lunch until the kid finished his first.  My son kept coming home from school famished and I asked him if he was eating at school.  He told me no, that he didnt have time but it was months before he told me why he didnt have time!  I had asked the teachers about it and they said he had plenty of time but he just sat there...when he finally told me why he just sat there I just cried.  I couldnt believe it.  I tried to explain to him that there was no such rule, but he insisted there was because that kid said so.  Finally, we had to arrange him to eat lunch in the classroom. 
 I am angry that the teachers aren't doing their job ensuring that all of the children are safe from bullying. I was a victim of bullying when I was in grade & middle school. I am also hearing impaired so the kids in my class & teachers made fun of me because of my speech. If I knew then what I know now is that you are an advocate for your child. If you sense that there is something wrong, get your child to communicate to you what is going on. If I had told my parents what was happening, I think I would have had a whole different outcome today. One of the best lessons that you can teach your children is self-defense & give them a sense of self esteem. He should not be forced to eat by himself. The other child should be separated from the rest of the class. The teacher's job is to explain to your child's classmates is that your child is going to be a part of their class & they should all respect him even with a disability. She should tell them what the good things your child can teach them & they should all respect each other because they are all different.
 
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February 17, 2006, 9:57 am PST

Mother of ADHD child.

My son is in kindergarten and was just diagnosed with ADHD. His father had it and lives with it as an adult. My son is now medicated with Concerta, before the pills, he was uncontrollable in class and got bad reports daily from the teacher, She was aware of what was going on but with all teachers training was unable to control his mood swings and hyperness. The medicine now is like a miracle, he behaves a lot more now and I finally get good reports home. I wish that there was a different way of managing his ADHD , but he was ranked pretty high in the scales and it was no longer in my control. My son is very aware of what the pills do and has no problem taking them first thing in the morning. He says the pills make him not be hyper and be good. The blessing I have with this ADHD like most parents know is that the children are very intelligent, my son is excelling in almost all subjects right now and is above his classmates. I feel the medication is only slowing his brain down just enough to get his work done and get him focused on the tasks the teacher presents him with. If anyone knows of this medication I'd like to hear about it. 

 
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frustrated
February 19, 2006, 8:11 pm PST

Sotos Syndrome

I have 2 boys who have been recognised as special needs, one is doing really well, but my little guy who is 8 is still having a hard time. Some-days I think he will follow the trend of the syndrome and come through it, other times I think sheltered workshop. 

  

I manange with most of this, but the discrimination of people in society makes me mad, because too many people want to blow off people / children with a label and don't want to have anything to do with them. Other parents are often so intolerant, and don't want their 'perfect' child hanging around with a 'strange kid'. Luckily there are some nice parents of kids in the special Ed program, so occassionally at least sometimes he is included in birthday parties. 

 
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worried
February 19, 2006, 8:24 pm PST

continence training

Quote From: albert

Hi, Dr. Phil, 

  

Why would my extremely brilliant nine year old frequently fail to clean himself properly after using the loo or sometimes actually doing his bowel movements in his pants!!! 

  

It's driving me nuts as I've tried everything from spanking to removing privileges to grounding to.....everything! 

  

Why, why, why?  He hates the smell and the bad relationship after each failure. We have a great father/son relationship. I was one of the first buyers of Family First in Africa(I'm a Ugandan) and I follow it religiously. So why cant we fix this problem? 

My son used to have bowel continence problems, but by following a set routine we fixed it - it is not hard. 

You should try getting your son to sit on the toilet 1/2 hour to 1 hour after dinner, when the digestive system is at it's most active. this is a good time to empty his bowels, as morning is a bit busy. 

when he has finished  get him to have his shower/bath then. 

Punishing you son is helping him fail. If you make too much of a big deal about it he may avoid going to the toilet at times which will constipate him and then cause him to have overflow incontinence - which may even be the cause of the soiled underpants now. 

You don't have to approve of accidents, but just give more attention to praising him if he follows the routine. It may also be an idea to check with your doctor if the stools are runny, as he could have a medical problem. 

Continence is not a test of family relationships and reading a 'how to book' doesn't prove anything. 

 
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quiet
February 19, 2006, 8:35 pm PST

best of luck

Quote From: 101160

Hi i saw this and right away wanted to post here.my sister in law has to be the strongest woman live today.her and her husband have ten kids .they all have gone through school except for two.she has had it hard also .one of her kids almost dies from menigitis and wass left a little slower to progress .now she looks after everything at home her husband is no help whats soever but wants the glory of the way his kids are raised not his doing for dam sure.It was all her after she had her second last bably ,her dr. told her not to have anymore because she was at risk of dying or the child not being born without anyhandy cap.well what does she do gets pregnant and not her fault either he does not believe in birth control so they were just cautious ,huh !not cautious enough.well her last baby was born with downs first off.then when she was 8 months old had open heart surgury new this when she was born with a heart defect.then if that was not enough she (the baby)gets a bacteria ecoli poisoning not much older maybe a year or so now her husband takes her to hospital baby was airlifted to hospital out of province ,he takes her there waits for some of us to get there and he leaves and comes home.Now his child is fighting for her life and the docs said because she had downs thats what saved her they fight harder than any normal child would so she my SIL is there herself at hospital and hes home working .can leave when he wants has no excuse not to be there the other 9 kids at home were all well looked after and he stays home.anyhow she escaped that one by the skin  of her teeth.but thats not all than because she was so sick from ecoli she is now a diabetic inssulin 4times daily maybe a little less now that she is older.M y SIL has to learn how to give her needles and manage her diet and look after the house and other kids he comes home from work go to bedroom and watches tv.now this little walking miracle has just the fight to live ans she wasn't going out without a fight either.now she's in grade1 almost can talk quite a few words thaanks to my SIL goes to school knowing her ABC'S THANKS TO MY SIL, KNOWS NO#UP TO TWENTY THANKS TO GUESS WHO AND LOOKS AFTER ALL THE REST IN BETWEEN.BOY WOULD I EVER LOVE TO OWN HIM FOR A DAY HE'D LAY IN BED AND WATCH TV ALRIGHT.BUT YET IF THERE IS ANY FUSS MADE TOWARDS THEIR LITTLE MIRACLE HE IS RIGHT THERE TO GRAB THE GLORY.NOW THATS A MOTHER. 

 

  

  

  

  

  

  

  

  

  

  

  

  

  

Large families do have lots of special qualities, but I urge people to consider some other crucial factors and to use Family Planning. The more pregnancies you have the bigger chance of having miscarriages and depending on your age kids with down syndrome etc... I do have kids with special needs and they are of course as beautiful as other kids, but I have chosen not to have more kids because I don't think its responsible to have more kids when the odds of them having problems as severe or worse. The children I have already need enough help and stetching out patience and resources to risk  more challenges isnt fair on them. 

Women need to take responsibility for their own bodies and get contraception to give their bodies a rest in those situations. It doesn't matter how brave you are or what a hero you are if you can't step back and saw 'ENOUGH' and start making some responsible choices for the kids you have. 

 
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February 20, 2006, 11:41 am PST

Hi all......

I just wanted to let parents (or anyone) that I have made a board, it is on NEWS AND CURRENT EVENTS...  

   

Please click on sort alphabetically and then you can find it under SUPPORT FOR PARENTS WITH BIPOLAR CHILDREN... this is for anyone who needs or has support or advise for people dealing with children that have bipolar. Since symptoms can vary from adults and children I thought it would be appropriate for a children board.. that doesn't mean that other people cannot offer advise.  


Thank you Tammy  

 
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February 22, 2006, 9:10 am PST

Help I need to know

  I need to know if anyone else has experienced this in a child.  My 22 month old son gets high fevers for unknown reasons.  At 102.9 he still is happy and doing his daily activities, most kids are in bed asleep. Doctors are worried at this temp to, they fear the worst.  At 105.4 my son truely looks sick and miserable, but no seizure activities, which is pretty common in this high of a fever.  His doctor has done blood work to see if anything sticks out.  He has several medical problems, but nothing that would cause a temp at this high.  We thought his thermostat might be off, but no seizure activities that are apparent.  At birth he had apenic seizures but has out grown them.  We are trying to figure out a way to go for the baby.  All specialist he has seen thought they knew exactly what was wrong with baby J,  only to find out all test came back normal, so they were more lost then I am.   With all the test we done and stillno answer, I thought I would turn to here to see if anyone else has experienced this.  We know that Baby J probly will be undiagnosed for his life, but if there is a chance anyone else has this then it was worth it.    Thank You  
 
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February 24, 2006, 4:14 pm PST

Bull Dog is right

Quote From: kuntrygal

Hi.  I have a 7 year who I have been told has features of Aspergers.  We go to the Pediatric Development specialist next Tuesday.  Can anyone tell me what to expect?  Any advice on what to do about his behavior problems at school?  He is constantly getting notes sent home & bad marks on his behavior chart.  The teacher knows what is going on but says that does not give him a free pass.  I have spoke with the cousnelor at school, but they say that as long as he is doing well academically they wont change anything.  Any advice is greatly appreciated. 

  

Karen 

  

Keran I have two kids with autism.  A nine year old with pdd and a six year old with aspergers.  My aspergers girl is academically on target but otherwise another story.  Last year in kindergarten it was a fight.  I did an IEP for her and re-did two times after that.  She was not doing well following rules or directions tantrums where frequent.  She was put in special ed not so much of her academic needs but because of her social needs.  she could not handle being in a classroom that long.  Also at a special Ed department they work on social stories and apprpriate behaviors etc.  It is a crock if they tell you you that they cant do anything because his academics are ok.  YOu need to push them document things like everytime he gets in trouble.  write letters to the pricipal and school board.  They have to give you an IEP it is law......  Take what you get from the behavior specialist and with an autism diagnossis they have to do an IEP at your request.  I know I got so frustrated I said I would just pull her and homeschool her that got there attention real fast.  Things got taken care of and this year has been a breeze no tantrums no behavoir issues at all.  Keep on let me know I would be happy to talk to you at any time I have been through "the system" with both my kids .  Know that things get better.  That with thereapy and hard work it will pya off.  Thanks Melissa 

 
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February 27, 2006, 5:39 pm PST

teenagers with Down Syndrome

Quote From: hotangel19

I've been reading through all the postings and haven't found anyone with a child with down syndrom. I have a son going through puberty and I'm having a heck of a time. He's turning into this little hulk who want's to be beastly all the time and it's driving me nuts. 

He also talks about how he hates his life and how he shouldn't have been born. I've even found letters in our mail box that he's tried to send to Dr. Phil. He thinks he can "FIX" his life. I don't understand if this is the norm for a kid with downs going through puberty or if I need to get advanced advice. Any clues anyone? 

Hi, I too have a teenage son with Down Syndrome. He is the light of my life and I adore him, but he just woke up one day and was the moodiest person in the world. He will be 15 in April. His mood changes are like a light switch. He can be the sweetest most helpful little person one minute, and pushing me out of his room, closing the door in my face the next. He use to light up when I walked in the room, now I kinda feel rejected. My friends tell me it's just a teenage thing, so I try not to let it bother me. I have to avoid a confrontation at all cost because he is so strong. I have discussed meds with his doctors, and have tried a couple, but the pros dind't really outweigh the cons in his case at the time.  Don't get me wrong, I have nothing against meds for behavior problems. It just seems sometimes, they are so quick to write prescriptions without trying any behavior modification. Especially when they start outweighing you and are so physically strong. I guess I'm just putting it off as long as I can. It is starting to scare me a little, he could hurt me and not mean to. He is very aggressive at times, just not really that often. I get a lot of compliments about his behavior, but he does have his moments. He is not very articulate though and it sounds like your son is, that could be a plus when getting evals. Good luck and if you ever need to vent or brag my e-mail is rfreeman2247@charter.net
 
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confused
February 28, 2006, 12:56 pm PST

new parent to ADD.

hi I am new to the world of understanding ADD. My oldest son has been diagnosed with it though he has also been diagnosed with Autism so I am confused as to what is really happening with him. He has a speech delay as well. I find he is a loving and compassionate child though we are all going through a really rough time right now. I recently have my children removed from my home and we have been trien to get things don to bring thtem back home to me. I have been through the ringer and am still standing strong. My concern is more with my kids than me. they don't understand that it isn't their fault that they are gone.  Anyways I am trien to understand how and what ADD is and if it can be confused with Autism.
 

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