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Topic : Raising a Special Needs Child

Number of Replies: 715
New Messages This Week: 0
Last Reply On:
Created on : Friday, July 01, 2005, 12:48:15 pm
Author : dataimport
Do you have a child with special needs? Share your advice and support with others raising a challenged child.

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August 20, 2005, 8:19 am CDT

Multiple disorders

Hello. I too have two children - boys almost 9 and 7.5 with bi-polar, adhd, capd, and now abnormal eegs. I also have a daughter who is 2, but not talking. She is going in for an evaluation. At this point she does not seem to have the type of problems the boys have. 

     So far we had Medicaid off and on (New Mexico), but being divorced and a disabled vet, I earn to much, despite I can't work, to qualify for state medical for them. And paying for insurance and co-pays just isn't funny in out situation, is it!?!?! 

     I have been doing more of my own research, inlcuding reading the book by the Dr. Dr. Phil had on, and looking into non-prescription alternatives.  

     I am now homeschooling as well. This is a first for me. We had IEP's up the wall for both of my boys. By second son has speech apraxia and is still hard to understand by most people;even me some times. I thought of relocating and putting them in a school (4hrs away) that would help them out, but it costs $8,000 a yr per child. I don't know if that is worth the cost or not. I still think about it. 

     In the public school my 9 yr old isn't even working at 1st grade level. I figured I would give it a go. If it works good. If not, then I Imay look more into a specialized school. 

     I looked into state waivers as well. When you put in for one and do all the massive paperwork, there is still a 5 yr WAIT. That is for medical help, (Medicare/caid), or in home help like respite. 

     Being single I understand the need for being away for a while and despite that my ex is VERY helpful, he too has Bi-Polar, can't work, and can't handle being in our home for too long of periods. Even though he is here popping in several times a day, it is more to talk with me, flirt, etc. than playing with the kids, which he doesn't seem able to do. (He came from a very multple abusive home.) 

     I lately have gotten very angry, resentful, grouchy, loud, and yelley, but I am working on it with my counselor, and Dr. Phil books! :) 

 
August 20, 2005, 7:10 pm CDT

school

Quote From: azlady

I have a 9 year old son whos been dealing with many health issues since he was born! He's always had a hard time in school but it just seems to be getting worse every day! I feel the same helplessness you do. All I want for him is to have a "normal" life! He is so emotional at school! He's not as bad at home! For whatever reason my husband isn't very understanding about anything our son is going through!! Try and take care of yourself and remember your not alone! Sherrie

Does your son have an IEP or 504 plan?? 

  

He may qualify for one or the other under emotioal impairment. 

  

If you do not have this and need some ino let me know. 

  

Tammy 

 
August 20, 2005, 7:18 pm CDT

azlady

Quote From: 101160

JUST WANTED YOU TO KNOW THAT THERE IS A SUPPORT GROUP FOR ASPERGERS. ITS ALSO A MESSAGE BOARD THAT PEOPLE SUPPORT EACH OTHER IF YOU ARE INTERESTED.GO TO ADHDNEWS.COM AND THE BOARDS ARE THERE.GOOD LUCK TO ALL.CATHY
Hi i was just wondering if you checked out that website i gave you the  support message boards. And i have my story below and its about my sister in law. talk about a mom .She can certainly teach some parents to appreciate what you got. anyhow just thought i would mention it. take care hope you are able to get support from what i gave you.cathy
 
September 12, 2005, 1:48 pm CDT

need some advice

I have a 9 year old son that is getting out of control.....Last year he started to get angry and refuse to go to school......He would take off running threw our pasture and we would have to track him down and when we caught up with him would physically have to put him into the car to bring him back.....Each time it happened it got worse......He ended up being in hospital for 4 days for evaluations after he physically hit a police officer who was trying to help us get him under control......he would curse spit hit kick etc.......The hospital told us after a catscan that he has small cyste on his brain but nothing to worry about.....I am still concerned .........He has been to conciling and one says he tested positive for adhd and another says no.......We tried him on two different medicines , and the first made him worse and the second he kept saying he wanted to kill himself , so now i took him off of them......The summer was great, no trouble out of him at all ........Now school is back in and its been two weeks......he has been absent from school 4 days already and I have had to pick him up 3 times already for his behavior cursing spit at the prinicpal......I am beside myself and don't know what to do or why he is acting like this.......Please help.......I need some advice or guidance through this.......He is really a great kid, but something is going on with him that i just cannot seem to get through to him to find out
 
September 13, 2005, 5:50 pm CDT

Is your son on any ADHD meds?

Quote From: losingit

I have a 9 year old son that is getting out of control.....Last year he started to get angry and refuse to go to school......He would take off running threw our pasture and we would have to track him down and when we caught up with him would physically have to put him into the car to bring him back.....Each time it happened it got worse......He ended up being in hospital for 4 days for evaluations after he physically hit a police officer who was trying to help us get him under control......he would curse spit hit kick etc.......The hospital told us after a catscan that he has small cyste on his brain but nothing to worry about.....I am still concerned .........He has been to conciling and one says he tested positive for adhd and another says no.......We tried him on two different medicines , and the first made him worse and the second he kept saying he wanted to kill himself , so now i took him off of them......The summer was great, no trouble out of him at all ........Now school is back in and its been two weeks......he has been absent from school 4 days already and I have had to pick him up 3 times already for his behavior cursing spit at the prinicpal......I am beside myself and don't know what to do or why he is acting like this.......Please help.......I need some advice or guidance through this.......He is really a great kid, but something is going on with him that i just cannot seem to get through to him to find out

THe reason I ask this is because if he is an in fact he is not ADHD but may be bipolar the meds could be making him worse. 

Please check out the website  

www.bpkids.org and ask your question there. It is a parent run website and has alot of useful info. 

  

My daughter is bipolar and acts the same way out of school she is for th emost part fine but at school it is awful 

  

If you need any more info let  me know. 

Tammy 

 
September 13, 2005, 5:51 pm CDT

PS

Quote From: losingit

I have a 9 year old son that is getting out of control.....Last year he started to get angry and refuse to go to school......He would take off running threw our pasture and we would have to track him down and when we caught up with him would physically have to put him into the car to bring him back.....Each time it happened it got worse......He ended up being in hospital for 4 days for evaluations after he physically hit a police officer who was trying to help us get him under control......he would curse spit hit kick etc.......The hospital told us after a catscan that he has small cyste on his brain but nothing to worry about.....I am still concerned .........He has been to conciling and one says he tested positive for adhd and another says no.......We tried him on two different medicines , and the first made him worse and the second he kept saying he wanted to kill himself , so now i took him off of them......The summer was great, no trouble out of him at all ........Now school is back in and its been two weeks......he has been absent from school 4 days already and I have had to pick him up 3 times already for his behavior cursing spit at the prinicpal......I am beside myself and don't know what to do or why he is acting like this.......Please help.......I need some advice or guidance through this.......He is really a great kid, but something is going on with him that i just cannot seem to get through to him to find out

I forgot to add that a lot of bipolar children are misdiagnosed with ADHD or similar illnesses. 

Tammy 

 
September 22, 2005, 12:41 pm CDT

Asperger's

I have been referred to a developmental specialist for my son, who I am told has features of asperger's.  Any advice? My son will be 7 in a few weeks, and it may be Febuary before the specialist can see him. 

  

Karen 

  

 
September 22, 2005, 4:04 pm CDT

kuntrygal

Quote From: kuntrygal

I have been referred to a developmental specialist for my son, who I am told has features of asperger's.  Any advice? My son will be 7 in a few weeks, and it may be Febuary before the specialist can see him. 

  

Karen 

  

UST WANTED YOU TO KNOW THAT THERE IS A SUPPORT GROUP FOR ASPERGERS. ITS ALSO A MESSAGE BOARD THAT PEOPLE SUPPORT EACH OTHER IF YOU ARE INTERESTED.GO TO ADHDNEWS.COM AND THE BOARDS ARE THERE.GOOD LUCK TO ALL.CATHY  

 

 ps. i wrote this out to someone else here on the board thought i'd share it with you.There might be someone on that message board or that website that you can get more info from.I just saw they had a support group for parents with kids with adhd or aspergers so though i'd share it with you ok. take care. 

 
September 23, 2005, 6:29 am CDT

Kathy

Quote From: 101160

UST WANTED YOU TO KNOW THAT THERE IS A SUPPORT GROUP FOR ASPERGERS. ITS ALSO A MESSAGE BOARD THAT PEOPLE SUPPORT EACH OTHER IF YOU ARE INTERESTED.GO TO ADHDNEWS.COM AND THE BOARDS ARE THERE.GOOD LUCK TO ALL.CATHY  

 

 ps. i wrote this out to someone else here on the board thought i'd share it with you.There might be someone on that message board or that website that you can get more info from.I just saw they had a support group for parents with kids with adhd or aspergers so though i'd share it with you ok. take care. 

Thanks. 

  

Karen 

  

 
September 25, 2005, 1:55 pm CDT

HiKaren,

Quote From: kuntrygal

Thanks. 

  

Karen 

  

you are welcome .I hope you can find some info on that site.Take care and many blessings to you.cathy
 
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