Quote From: bubspeanjoHello Nancy. I am so sorry for the loss of your son. I too lost a child to SIDS. Our daughter Carlie died of SIDS on April 25th, 2000. She is a twin. Her twin brother will be starting kindergarten in about 3 weeks. You are right, the pain does lessen, though I am having bittersweet moments with Cody starting school. Buying school supplies for my surviving twin was exciting, but hard at the same time because I know I should be buying for 2.
Where do you live? I live in Ft Worth Texas. Have you heard of SIDSFamilies.com? I frequented that Yahoogroup for a long time. I recently unsubscribed from the group because I have gotten to a better place. It was hard for me to offer support now that life is finally getting to a stable place and the overwhelming saddness is not around as much.
I have also had another little girl. She is 2 1/2, will be 3 on 11-2-05. She was very much our healing baby and really helped our grief.
I was very much into spreading SIDS Awareness and making sure that the average person knew about Back To Sleep and that SIDS cannot be prevented, but now I kind of feel like, my baby is gone, why should it be my job to make sure others try to reduce their risk to save their babies when they won't listen to me? Do you ever feel like that?
I keep in touch with a group of girls I met online in a Babies After SIDS group, and we don't talk about SIDS much at all. We talk about our babies, but not that they died of SIDS. I hate SIDS and I hate what the media has portrayed it out to be. I hate that many people think SIDS is abuse or murder.
What sort of relationship do you have with First Candle? Tom Harris, the current president of First Candle was president of the Local member, the Alliance For Infant Survival, here in DFW.
Well, I just wanted to say hi and let you know there is another SIDS mom that reads these boards. I too haven't posted much so I am pretty new to this. I hope to talk to you soon.
Hello Carlie ~ Thank you for your reply, it is good knowing that I am not the only SIDS parent here; however I am sorry to hear of your loss as well! And yet good knowing that you have other children as well. For myself, having other kids help to keep my world spinning, if you catch my drift.
I live in Northern Georgia; on the boarder of Chattanooga, TN. I was born & raised in Orlando, Fl & moved up here when my first son was 2 weeks old in 1995....on what was suppose to be a vacation & we decided to stay here lol. It was a bold move, yet a blessing in my life. We love it here. I am married, going on 11 years. And I have two other boys (my first two) who are now 9 & 10 years old.
Yes I have heard of SIDS Families, Back to sleep campaign & First Candle. In fact I was a member of SIDS Families years ago & know of Lydia, the founder. I personally am the founder of MAD AT SIDS Organization & on-line support group. It originated as a support group in memory of my son Baby Jack in May of 2002. A little over a year ago we became a legal organization, offering additional services to the public. I have still not reached all of my goals with MAD AT SIDS (Moms And Dads Against The Sudden Infant Death Syndrome); as we have many plans for our future; as well as the SIDS community as a whole. You are more than welcome to join our on-line support group. Here is a link provided to our forum if interested: http://xsorbit28.com/users5/madatsidssupportgroup/index.php
I do understand your personal frustrations in regards to SIDS awareness! As a moderator of a support group, I have found a lot of struggles with keeping above water with SIDS awareness! The general public is so clueless about SIDS. And you are very right about the ignorance some people have regarding SIDS! Anything from vaccines to being poor....and with SIDS being so taboo still today, it makes it even more difficult to accomplish my goals. However, I do feel that through it all, so long as my message is based in voicing my feelings in memory of my son, then I feel it is worth every ounce of energy I put into it!!! I also feel that if everyone pulled thier weight (which many don't even try) then we would accomplish this easier & faster. Changing the results of SIDS (as far as it being taboo) is one of my main goals in life. I feel that my son Jack has a purpose in life & if this can be one of them then what a wonderful thing that will be!
Well, that is all for now, but I do appreciate your replying! Sorry it took me so long to reply to yours. Take care & God Bless!