My grandmother who was like my mum, passed away from Parkinson's disease almost 5 years ago. My aunts, uncles and other family members were not very supportive. One of them asked me to tell her it is ok to let go, others talked about calling the funeral home while she was dying, others were discussing redocorating their kitchen. I had to make the tough calls, stopping the forced feeding (which is when they shove food down your throat and hope you can swallow it, if not they suction it out of your lungs). My grandma had a DNR and a No Extraordinary Measures order. I was the closest to her, was raised by her, and the rest of them thought because I loved her most I should make the decisions. The staff explained I wasn't extending her life, I was delaying her death by allowing her to go through this for so long. My family recently admitted they resent my decision and that she could have lived a few more months (tortured 3-5 times a day). She was in agony, suffering, I couldn't do it. I did everything possible, I was the one who sat there and had to refuse the force feedings for two weeks (from morning to night), clean her mouth of blood from when they did do it and her lips and tongue bled. I did feed her ice chips, we tried popcycles, and other things, but she just choked on it because she could no longer swollow.
I sat in her bed with her, read to her, did her nails and hair, rubbed her down with lotion and did everything I could, but it wasn't enough. I lived 900 miles away and saw her more than anyone else in my family, who all live within 20 minutes. The staff at her nursing home were true Angels, they prayed for me the day grandma passed that I would be ok and that it would be quick.
My question is now what? I'll always doubt my actions, feel orphaned by my own family and never be forgiven. Any advice or someone who has a similar story?