For the past 20 years my wife has been ill and gotten worse over the last 15. I had been a retail store manager and my wife worked as a Training Coordinator for a major fast food chain. Her illness left her unable to work and she had to start collecting Social Security Disability which, because she only worked a few years in our married life, of some $299.00/Month. She also gets SSI of $482.00/month. That coupled with my income allowed us to still be OK in the financial arena.
Then a couple of years ago, my wife started to take a turn for the worse. It turns out that she has Muscular Dystrophy. She can sometimes get around still in a walker, but is mostly confined to home and to an electric wheelchair which MediCal paid for. She also has COPD (Chronic Obstructive Pulmonary Disease) and requires oxygen 24/7. Then 2 years ago my wife went into full repiratory arrest while sleeping and had to have CPR done on her by me and be rushed to the hospital where she was intibated (sp?) to get her breathing. This happened two more times. She was then placed on a BIPAP-ST machine which will sound an alarm if her breathing stops and will act as a sort of respirator forcing air into her lungs.
I had to quit my job in order to take care of her. I am also a disabled vet with kidney problems and diabetes. I get a small disability check from the VA each month($377.00/month) and I get paid a sum of $581/month by the state for taking care of Julie. Our total income is a little over $1700/month. Out of that we have to pay rent ($600), Utilities ($200/mo), car insurance ($50/month), gas for trips to doctors, pharmacies, church, etc. ($250/month), medical co-pay ($50), Feed ($150) and about $400 for food. In order to be able to make it we each have to take out a payday loan totalling between us of $510 every month due to a major problem with our 15 year old car. That loan costs us $90 interest each month to pay back so the loan payback is $600/month.
I know most people would tell me to go back to work. See if the state can get another health car worker for my wife so I can go back. There are several problems with that. The main problem is that if I were to return to work, my wife would lose $1 for every $2 I earn from her SSI. And if her SSI drops to where she isn't able to get any, then she loses her MediCal insurance also which pays for her prescriptions ($2000+ out of pocket), doctors appointments, her wheel chair and BIPAP-ST machine (over $1500/month rental), etc. It would end up costing me over $5000/month just to cover her medical expenses which means I would need a job earning over $100,000/year. Plus to help defray the expenses of medical care I would need to work for a company that has medical insurance coverage with no Pre-Existing Clause in it and one that started from day one when I went to work. I don't know of a company that has one of those plans.
Secondly, I am over 60 and have, as I said before, kidney disease and diabetes and not too many companies want to hire someone my age especially if that someone has medical problems. I am having a hard time finding a part-time job also. We live in a very small mountain community and there aren't too many jobs. The closest large town to work in is some 45 miles away which would require going up and down the mountain during times of snow and ice storms.
There are the homeless. We've nearly been there. We don't know how to get out of the debt we are in. We don't have any credit cards or owe any loans except for the payday ones, but we are around $1500 in debt that we can't catch up on. We had my son and his daughters living with us this spring and summer because he lost his job elsewhere and had to move in with us. We had to pay for everything. He now has a job, his own place but can't afford right now to pay us anything back.
So, we are open to about anything. We are praying to God for a $1500 miracle which would get us back on our feet, and I am willing to do whatever it takes, legally, to help it along.
So I know what it is like to be at the bottom, because we are nearly there ourselves right now. I know that there are people out there far worse off than we are because we've seen them, we've helped them, we've taken them into our homes when they've had nowhere else to go.
The stress is killing me. I don't know where to turn but I am open to suggestions that's for sure.