Topic : A WAY FOR THE DISABLED, AND DISADVANTAGED.

ASSISTANCE NEEDED,  DISABLED, NO INCOME, , TAXES, FORECLOSUE

    I .  I have been extremely ill, and so disorganized.  I do not
> want another levy on my wife's income.  I have no income and we are about
> to lose our home, and everything.  My illnesses are so severe that I am
> incapacitated the majority of the time.   >
> I cannot focus, I am in severe pain daily, SEVERELY DEPRESSED.     SYMPTOMS:
> INABILITY TO FOCUS OR CONCENTRATE.
> INABILITY TO DEAL WITH LIFE'S CIRCUMSTANCES.
> IN AN ALMOST CONSTANT STATE OF PANIC.
> OVERWHELMED BY TRYING TO SAVE OUR HOME, PAY OUR BILLS,  AND DEAL WITH
> LIFE.
> FEELINGS OF HOPELESSNESS, HELPLESSNESS.
> CONSUMED BY THOUGHTS OF DEATH, TRAGIC EVENTS.
> CONSUMED BY OBSESSIVE THOUGHTS AND ROUTINES.
> I HAVE SEVERE PAINS, AND IMMOBILIZED MOST OF THE TIME.
> LACK OF MOTIVATION.
> LACK OF INTEREST IN THINGS I WOULD NORMALLY ENJOY.
> PANIC, FEAR, PHOBIAS.
> SEVERE MUSCLE TIGHTNESS, PREVENTING ME FROM DOING SIMPLE TASKS.
> RECENTLY DIAGNOSED WITH PERIPHERAL NEUROPATHY AND CARPAL TUNNEL SYNDROME.
> SEVERE PAINS IN MY NECK, UPPER BACK,  ARMS, TORSO.
> UNABLE TO FOCUS OR COMPREHEND CERTAIN THINGS.
> COMPLETELY BROKE, ALMOST NO MONEY AT ALL.
> BILLS PILED UP, SO BAD, SCATTERED EVERYWHERE.
> I HAD ALL THE INFORMATION TOGETHER TO FILE THESE RETURNS, BUT WHEN I
> DECIDED TO TRY TO TACKLE THE RETURNS, I COULD NOT FIND MY WIFE'S W-2'S.
> TROUBLE SPEAKING WITH PEOPLE ON THE PHONE.
> TROUBLE AND PHOBIAS OF BEING IN PUBLIC PLACES.
> I MISS NUMEROUS DOCTOR APPOINTMENTS BECAUSE I AM WITH TOO SICK, IN TOO
> MUCH PAIN, AND/OR CANNOT AFFORD THE CO-PAY.
> CANNOT AFFORD MY MEDICATIONS.
> NO FOOD IN THE HOUSE, NO MONEY TO BUY FOOD.
> I AM IN A VERY SERIOUS AND URGENT SITUATION AND HAVE BEEN BEGGING FOR HELP
> FROM MANY ORGANIZATIONS, ETC FOR MONTHS ON END, ALL TO NO AVAIL.
>
PEOPLE with severe mental impairments and disabilites should have
 a way to file his or her taxes without having to pay out of his or her
 pocket, and someone to assist, advise, and protect the taxpayer.

Hi, I am not sure if this is still a live post or not, I have never posted on one of these sites before.  Something struck a nerve in me and I felt compelled to respond.

 

I have been hard of hearing all of my life, which is a congenital process that runs in my family related to having PKD.  I am uninsurable because of my kidney disease and have difficulty with employment because of my hearing loss (5db away from legally deaf).  I spent many of my younger years being mad about the injustice of my situation, but what are you going to do?  You have to find a way to keep surviving. 

 

Probably my biggest obstacle is the exhaustion associated with being HOH, but those who are dear to me understand this because I steadfastly remind them and don't feel guilty about speaking up for my needs.  People who aren't disabled do not, and cannot, be expected to truly understand what you are going through.  Individuals may need counseling to help them come to terms with the fact that the world is not sympathetic on the whole and to manage their anger about this perceived injustice.

 

Ironically, I have really pushed myself, I have worked in hearing jobs, even as a switchboard operator with accomodation!  Currently, I work as a Sales Rep servicing Wal Mart.  Wal Mart is truly supportive of individuals with disabilities and is a very social network of employees.  If anyone needs to further their education or needs help with finding a job, the Department of Vocational Rehabilitation is a wonderful means to help you support yourself. 

 

The way that I empower myself is to further my cause.  I think it is terrible that insurance companies will not pay for hearing aids and that they are so expensive.  I want to change this during my lifetime.  I have a young child who has the same syndrome I have (passed on to opposite sexed children).  I am still learning about my health - didn't even know there was a congenital process until I was 26.  I follow medical studies that might help my situation. 

 

Reach out, and you might be surprised how much you can help yourself.  Being angry will not help unless you direct it positively and will only lead to depression.   Cursing the disability structure is futile.  My Mom had two strokes when she was very young and was a school teacher.  She had to teach despite the fact that she couldn't speak or dress herself and had to be proven incompetent by her school board before she could get disability  which took close to 2 years.   If you are able to work at all, it is much better.  Disability is not a great quality of life.

 

Take care!

Hi,

 

I have been in a wheel chair for about 6 years now.

In that time I have learned a lot about myself and others.  I know that when I look deep down inside of me that I look for the good in things, this is hard to do when you are in pain all the time and all the pain meds do is make it a little more bearable.  Nothing that my doctors are doing seems to help.  Like most people this is not where I wanted to be when I was 48, but this is where I am and I have two choices, be mad and angry or make the best of the cards I have been dealt I choose the later.  It is not always easy to do but if I put all the energy that I would use felling sorry for myself into it, it is amazing how my out look on life has changed. 

 

There are people out there that are putzes,but if you look real close you will find that the reason they act that way is their not sure to handle the fact that you are handicapped do not get mad instead share with them from your heart not your anger.  They will have no way of knowing unless you can get passed your anger.  This I know form being in the anger mode.

 

Remember that whether you stay angry or get on with your life is your choice!!

 

By the way there are days that I have to remind myself.

what a magnificent thread, djmatt!

 

i've struggled with disability from my early twenties to now.  i am 56.  during the first twenty-five years, i was misdiagnosed with bipolar II disorder.  the myriad of meds i was prescribed made my life not-so-great, to say the least.  i made bad decision after bad decision after bad decision.   i found the strength to persevere somehow managing to complete a masters degree in clinical social work.  after two failed marriages in a series of abusive relationships, i was finally diagnosed correctly with relapsing multiple sclerosis.  immediately, my meds were switched from the heavy bipolar meds, to the correct meds my body was needing for my neurological disorder.

 

the correct dx and correct rx/tx freed me.  i am now lucid, strong, bright - and i have a lot of info to share with the disabled who are not so lucky as i.

 

the first bit of info i would like to share is for those who have successfully been granted either SSDI or SSI.  the social security admin offers a grant to you called the PASS (Program to Achieve Self-Sufficiency).  i successfully applied for and received a $20,000 PASS ten years ago.  i am now applying for a second PASS.

 

i'm happy to share info about this to anyone interested.

 

zia

my first time to post.  i too have a disablity and mind also is on the inside.  i have adult stills disease along w/ osteo.  i just marked 4 yrs of having both hips replaced.   my doctor told me i was the only patient he done that they done both hips in the same yr and only about 3 mths apart.  the thing that bothers me is people who dont understand how this diease takes over your body and that because i have handicapp plates and i park in the space i get looks like she doesn't look like she needs to park there.  what people don't understand is your doctor is the 1 that has to also complete the form. 

My son is a special needs kids, his now 8 years old, and I had him when i was 20. So as you can imangine life's been tough. Many ask how do you do it. Well my son Sam being an only child I guess in some weird way helps, because i dont know whats it's like having a 'normal child.'

 

Life is much like a game of cards, your dealt the cards of life and its up to you to play the hand that life has dealt you. How you play them its up to you. I keep mine close to much chest and play them when they are required.

hi i have disableity too and wanted to know what the pass can be used for? i also get ssi. if you could give me more info i would appreacite it

 

thank

cometswim

HELLO, MY NAME IS JESSICA I AM A 23 YRS OLD I AM DESABILE I HAVE BEEN DESABILE SINCE BRITH. MY MOM WAS DRINKING AND HIGH ON DRUGS WHEN SHE WAS HAVING ME SO ONE DAY. SHE HAD TO CROSS THE BORDER FROM MEXICO. TO BRING ME TO CAIL BECAUSE OF MY CONTION. SO WHEN SHE HAD ME AT LOMA LINDA HOSPTIAL. THEN SHE TOOK OFF AND I NEVER KNOW MY FAMILY AT ALL. SO I GROW UP ALL ALONE IN THE HOSPTAIL ALL MY LIFE. AFTER I WAS BORN THE DOCTOR HAD TO PUT A TUBE DOWN MY THROAT BECAUSE I WAS TO WEAK. THEN I WAS ON A BREATHING. VETALITAOR. ALL MY LIFE. THEN THEY HAD TO PUT A TUBE IN A SOMOATH BECAUSE I CAN'T EAT AT ALL. SO AFTER THAT THEY PUT ME IN ANOTHER HOSPTIAL. IN DOWNEY. CALLED RACHO LOS ALIMEGOS. SO I WAS THERE ALL MY LIFE. THEN I MOVE OUT IN 1997 THEN I WENT TO A GROUP HOME HERE IN THE VEALLEY. THEN I WAS THERE FOR A BIT. THEN FINALLY I MOVE OUT AND GOT MY OWN PLACE CALLED SECTION 8. I GOT  APPROVED. THEN I FIALLY MOVE OUT IN 2003. AND SINCE THEN I BEEN OUT ON MY OWN. AND IT HAS CHANGE MY LIFE SO MUCH. THEN FAILLY LAST YEAR I MET THE LOVE OF MY LIFE. AND HE IS ALSO DESABILE. HE HAS CP AND I HAVE MD. BUT HES CP IT IS VERY NORMAL LIKE HE DON'T EVEN HAVE IT. BUT HE DOSE. THEN WE MET LAST YEAR THROUGH MY FRIEND AND EVER SINCE THEN WE HAVE BEEN TOGERHER. FOR 1YRS AND 1MONTH. WE ARE SO HAPPY TOGETHER AND ALSO HAPPY BECAUSE WE UNDERSTAND. EACH OTHER LIKE NOBODY ELSE WOULD. OK LIKE IF I GO TO THE MALL OR ANYWHERE ON THE STREET. PEOPLE WILL LOOK AT YOU AND SAY WHAT THE HELL SHE UGLY OR SOMETHING NOW THE SAME THING WITH GUYS. THEY LOOK AT ME AND SAY UHH. DAMN SHE UGLY. SO THAT WHY I AM SO HAPPY I MET THE LOVE OF MY LIFE. AND I DON'T EVER WANT TO LOSE HIM AND HE NEVER WANT TO LOSE ME. HERE IS MY STORY. THANKS FEEL FREE TO SEND A MES OK. THANKS TO EVERYBODY. JESS AND JASON. PS. GOD PUT US TOGETHER FOR A REASON. AND EVERYBODY HAS A DREAM AND MY DREAM CAME TURE AND I KNOW EVERYBODY ELSES DREAM CAN COME TURE TOO IF YOU WORK HARD ON IT. AND YOU WILL MAKE IT. JESS AND JASON.

Hi there I was born in 1966. Mom got German Measles in the early part on the pregnany. I was born profounly deaf and I am slow to learn. Anyways, it's been rough and I have in the last 8 yrs. had FMS. Not sure if it's from the German Measles or another problem. I would love to meet others who were born with the same problems I need to know what this FMS is all about and boot it on out. I have not been to great since I got this FMS I already had it rough didn't need any more help on the way down to be stomped on.                               

 

HELP!!!!It's true the deaf need a voice.... Or maybe they can trade places....Like to see that one happen...

 

 

God Bless U All