Topic : Is This Normal Social Discussion

Med's diet and not smoking can fix this and that's what I think I want to try to do. It says to excercise and I'm like "Do what?!" lol Really! pssshhhh. Well I'm continuing my strecthes and I do have to walk alot but my leg won't let me do too much. I've often wondered if it's a good thing for me to do as much as I do (danceing till it makes me quit) so now I have the answer. Hopefully I won't have to have the surgery and can fix this thing. See this time I didn't say stupid cos this is kinda really serious and I really really need to pay attention. sigh! Feel so much better knowing what I know mind you. sigh. Feels good.

Well, I went in there a day or so ago, and somehow managed to set up my profile, and even found the ITNSD board and posted on it, but now I can't find it again.  It seems very confusing to me and I can't figure out how to use it.  There must be a simple way, but my brain is a little overwhelmed.  I'm feeling generally out of control at the moment, but maybe I'll be able to get caught up on some stuff this weekend. 

 

I feel as though I've missed most of what's happened the last couple weeks on the board, and for the first time, it doesn't feel like I can go back and catch up.  I skimmed over most of it, and I really hope that Loretta and Ami have gotten things worked out.  You're both too important around here to lose either one of you. 

 

Did I post about the Race?  It was really great and lots of fun.  I need to write about it on my Caring Bridge page, but I haven 't had the energy to do that either.  I'm generally feeling good, but just tired from doing too much and not enough sleep.  I've begun getting twinges of pain in my left shoulder and I'm worried that I could end up needing suregery again [I had surgery on the right shoulder just over four years ago - anyone remember that?]  I'm going to see the Orthopedic surgeon in a couple weeks to see what he thinks; hopefully there are exercises I can do to get that under control before it gets too bad.

 

Ralph's birthday is next week, the 14th.  I'm hoping we can do something to celebrate the next weekend.  We're still seeing each other as much as possible, but it's difficult and may get more so.  He's officially moved into his mother's house at this point.  Oh yeah, we talked about that -- Ami, I really appreciated what you shared about your friend; it is really a difficult position to be in.  The weird thing is, he and I wouldn't be together now at all, if Lynn hadn't died.  Now, what? we have to wait until his mother dies, before we can make more of a commitment?  There's something wrong about that, but I refuse to believe that it means we shouldn't be together.  Bad things happen, and good things come out of it.  Life demands sacrifices and we have to take care of our obligations before we can focus on our own needs.  That's life.

 

Anyway, I'm going to hit the sack and try to catch up on some sleep, so I can have more energy tomorrow.  We're having a biblical potluck dinner at church tomorrow, and the dishes we bring have to be biblical. So, we're taking "Obadiah's Orange Sherbet Salad".  It's really a jello salad, with sherbet, whipped cream, mandarin oranges and crushed pineapple mixed in.  I hope it turns out well!

 

Ami, if you've got any advice about using the new board, let me know; I don't want to get left behind!!

I keep playing around with the beta when I have time, I am covered in work atm but I break and fiddle with it and learn a little more in spurts. lol

 

I did finally figure out that I can't accept a friend request if I don't put a check mark in the little boxes...doh.

 

I also figured out that a pic won't post without a tag, or description or something or other. lol I tried like 3 different things at the same time and me and Daisy did post, but not sure with thing made it finally get on up there. Of course that pic is about 4 years old, but still a fun one!

 

I've asked when the beta is going live, no reply as of yet.

 

Ok back to work for me.....oh and I WANT that recipe Neecie!!!!

 

I have long thought we should create and animal house cookbook.....

 

Hugs,

~Ami

xoxox

So I saw the doc. Thyroid is too high again. So now twice in 6 weeks they have lower my meds. I find it all so confusing, I can't figure how it can be fluctuating so much since my thyroid gland is kaput. But he says my bodies needs are changing. Well, ok so what changed my bodies needs? Dunno. =/

 

Anyway that was the big it's "off". They weighed me, pffft, I was sure I had lost a lot of weight since this surgery and stuff but just 10 pounds. Oh well it is a start and there is no reason I can't continue to lose too. Carrying extra weight really is hard on my body, I can tell a difference in just 10 pounds.

 

Ok so I am getting more excited about the new boards. If they can get some irritations ironed out, like being able to see hte post you are replying too, that would be nice. hehe Also our avatars.

 

JP, so it wouldn't let you log in with your user name and password that has your bluebird?  Make a post on the link where you can go to the faq board. They will post the link that will take you too it. I made a new account because I couldn't get this one to let me on, but they posted hte direct link and I found me. I bet you can find you too!  Then you need to invite us all to be friends. =)

 

Hugs to all, back to work for me.

~Ami

xoxox

Oh, no I don't know anyone else that has had that done. Wow, if you know people that are feeling great after it then perhaps there is some benefit. But yeah I doubt your doc will recommend it.

 

But then I have a cousin who has suffered horribly with fibromyalgia for several years, she was all but bedridden and in her early 30s. A very bad case that the doctors just collectively scratched their heads about and continually changed her meds but nothing more. Her life was miserable.

 

Her hubby found a doc in Chicago that practices (founded actually) prolotheraphy, and he believes in holistic medicines. He diagnosed her with leaky gut syndrome (which conventional medicine doesn't recognize) and tested her for food allergies. Low and behold a slew of them. He changed her diet, but her on a very strict on and a ton of vitamins and herbs to balance what she had to give up. Sheese she is a changed person and that is no lie at all. It is unbelievable how her quality of life has changed.

 

They could call it fibromyalgia all they wanted but her food allergies were killing her. Long ago I had a client who was so crippled up with rhuematoid arthritis it was sad. He walked stooped over and you could see pain in his eyes everytime he moved. Now I see my clients about one time a year, right. So one year he comes bouncing in my office. I was just taken aback, it was unreal the change in him. After a bit of business we talked about what made such a miraculous change in him. Diet and reflexology. He went to a reflexologist and she but him on a strict diet of no carbs and dairy. Amazing change in him, just amazing.

 

So I don't believe that medicine knows everything. What maynot work on some (like those that say chelation doesn't work) may work fine on others. 

 

As far as meds to break up a clog, I dunno really. Seems I have heard that. I just do know though that artery clogs are dangerous. J's dad had them and at first they thought he was bordering on alzheimers because he was in a fog sometimes. But it was arteries clogged and slowing oxygen to his brain. Dangerous stuff there missy, so be careful PLEASE!!

 

For the most part I am stupid with medical stuff, mostly because I don't want to know. I said all this sickness in three years was God's way of making me learn medical terms. =P  bleh.

 

How are you feeling now?

 

Hugs,

~Ami

xoxox

And I do know that's some serious stuff I'm dealing with. The clog is in my leg and one of my coworkers was a pharmecutical rep and told me that if I didn't get it taken care of the artery could die. So asap I promise. Sure would be nice to get my life back.

 

Am glad you're doing better too. You didn't say how you're feeling these days. You sound upbeat and chipper. Is that possible? lol

Neecie, I hope you don't mind me snagging your post on Caring Bridge, but I feel this is really important and we never know who is reading posts that something like this might change their lives. Anyway hope you don't mind, I've already copied it to my cancer group and to my mom. I have a cousin who is very close to my mom who is having a mastectomy this week, she was diagnosed a week ago. It has been a big shock to our family as there has never been any breast cancer in our family (tons of other flavors, but she is the first breast cancer). Thanks so much for you diligence in keeping us all informed. (((((hugs))))))

 

~Ami

xoxox

 

 

 

Hi! There are a couple of things I wanted to make you aware of... I heard that there's going to be a great movie on the Lifetime channel this weekend. It's called "Living Proof" and it stars Harry Connick, Jr. as the scientist who discovered Herceptin. That is the drug used to treat breast cancer that is Her 2 positive. I first heard about it on the radio from someone who had seen a sneak preview and they said that it is a fantastic movie! I'm definitely going to be setting my DVR to record it, and I hope that you'll have a chance to watch it also.

 

Also, another friend clued me in to something called "Army of Women". This is a network of women that is being organized by Dr. Susan Love (she wrote Dr. Susan Love's Breast Book - my bible of the last year) and the Avon Foundation. The idea is to register at least one million women, representing every demographic in our country, who are willing to take part in various research trials that are aimed at finding a way of preventing breast cancer. All you do is register, and then you'll receive e-mails of trials that are looking for participants, and you can decide if you fit the criteria and if you're willing to take part. If you want to find out more go to www.armyofwomen.org and check it out. They already have over 200,000 women registered and I'm one of them! I intend to get in there and send out a bunch of e-mails to all the women I know, so don't be surprised if you get one from me! Perhaps one of us can be intrumental in not only finding a cure, but preventing this disease altogether!

Uh, yeah. =( It is serious no doubt. We don't want to have to change your name to Hop-a-long. =P

 

Ok, that was really bad, I know. lol

 

I know you would love to get your life back. I can so understand that only too well. I think you will as soon as they nail down just what you need to do.

 

I do feel better. I didn't realize I was living with chronic pain in my left side. Just a dull annoying ache, that would get bad at times then calm down, then bad again, etc. But always there. Now it isn't! yeehaw!! lol

 

I will be glad when my energy comes back too. Slowly but surely, lol. I'm losing weight slowly but surely too. I'm just not nearly as hungry was I was. I think maybe when your intestines are acting up it makes you hungry always searching for something to eat to feel better maybe. dunno, but something about my appetite has changed....at least for now. =)

 

John is performing at the Reading Festival this weekend. He is part of a quartet that is going to be playing two one hour concerts. I'm excited. There are supposed to be authors there doing book signings and so forth. They are looking for a big crowd. It will be a completely different kind of setting for him to be playing in.

 

Now if I can just lay that viola case out there and encourage people to throw money in it. lmao! hehe

 

Hugs,

~Ami

xoxo

Where is everyone?

 

*puzzled*

~Ami

xoxo

 

HER DIARY:
 
Tonight, I thought my husband was acting weird.  We had made plans to meet at a bar to have a drink.  I was shopping with my friends all day long, so I thought he was upset at the fact that I was a bit late, but he made no comment on it.  Conversation wasn't flowing, so I suggested that we go somewhere quiet so we could talk.  He agreed, but he didn't say much.  I asked him what was wrong; he said, 'Nothing.' I asked him if it was my fault that he was upset.  He said he wasn't upset, that it had nothing to do with me, and not to worry about it.  On the way home, I told him that I loved him.  He smiled slightly, and kept driving.  I can't explain his behavior.  I don't know why he didn't say, 'I love you, too.'  When we got home, I felt as if I had lost him completely, as if he wanted nothing to do with me anymore.  He just sat there quietly, and watched TV.  He continued to seem distant and absent.  Finally, with silence all around us, I decided to go to bed.  About 15 m inutes later, he came to bed.  To my surprise, he responded to my caress, and we made love.  But I still felt that he was distracted, and his thoughts were somewhere else.  He fell asleep - I cried.  I don't know what to do.  I'm almost sure that his thoughts are with someone else.  My life is a disaster.
 
 

HIS DIARY:

Harley wouldn't start today, but at least I got laid.