Topic : 06/28 Silent Darkness

You 2 parents are absoultely amazing! The man is truely a Hero, not many men would do what he is doing, you will be rewarded, and please stay strong, and remember life on this earth is just the beginning of eternal bliss, the harder it is for you, the better you will be rewarded.

Maybe they havn't got to that point in the show yet...but why aren't these kids receiving special education services...intensive services.  Where is the social worker???  Delta Gamma services???  Sp/lang services????  Occupational therapy services to treat these kids sensory needs???  Oh my goodness, I feel like I need to pull a team of therapists in this home and help these kids.  No one (or two people) are capable of caring of three children with these types of disabilities...the parents aren't helping themselves or these kids.

And that mother-in-law needs to learn how to interact with special needs children.....

I have worked with people with disabilities, both mental and physical, for over ten years.  Many of these people have touched my life and changed me forever; They have so much to offer the world.  I want parents and families to know that, even though it may seem that your child doesn't understand your love, that they do!  It doesn't matter if they can't hear or see, or if they act out in rage, or whatever the circumstance might be.  They know.  I have mainly worked with adults with disabilites, and I can tell a difference between a person who came from a loving home compared to a person who came from an institution or residential placement away from family.  There is an incredible difference that is hard to put into words.  They respond to touch better, they smile more, they laugh in their own unique way more.  So, please keep loving them and tell yourself over and over, "they know."  Because they do.  It is changing their lives! 

Love to you all, Theresa

Liz......I have a son who is deaf-blind. He is now 14 years old but wasn't expected to make it this long into his life. He is totally dependant on me for all of his needs....he cannot walk, talk, toilet himself, feed himself, dress himself, brush his teeth etc. I understand exactly what you are going through...and George is a godsend for you. My son's biological father has almost no interest in his son at all. That being said, his mother and father will care for him while i am at work, but ONLY while I am at work! Now, you might think I am crazy but here goes....I have a full time and a part time job at two agencies in my area ( I live in Canada) who provide services to individuals with disablities!! I know I know...."what is that woman thinking?" I LOVE my jobs, and wouldn't trade my son for anything in the world....but I know how hard it is to find and pay for services. Who do you trust? Will my kid(s) be happy? Will the caretaker get frustrated( as I have gotten frustrated many times) and hurt or neglect my child?? Those are questions that pop into my head every time someone mentions respite care. I work with a great group of staff at both of my jobs...BUT would I trust them to care for my child?? maybe....some of them are absolutely awesome whilst others are just there for the paycheque.

I just want you two to know that you are not alone, there are others who struggle daily with continuous care children. I don't get much time to myslef as I work almost 7 days a week....and when I am not at work, I am caring for my son, but if I can find an hour in my day to do ANYTHING for myself.....you can bet I do it! although this is rare....it does happen!

My marriage didn't work out and I do not blame either of my children...( I have another son who is 16 and completely healthy). I blame myself for not spending enough time and energy on my husband.....but I just couldn't find the time and he found someone who DID have time for him.

It's hard every single day, I know.....but keep fighting and someday when you are not expecting it, you will get your reward!

If you would like to chat drop me a line at lisaj28@hotmail.com