Hi Chronic Pain board -
In December of 2005 I was diagnosed with mono. I never seemed to get back to my old self. The pain would not leave. I kept going back to my doctor without any results. He kept saying I was depressed due to a recent custody battle. I was still going through so much pain that I felt like I was dying. I finally went to diagnoseme.com and answered 500 questions to see if I could get any answers. It came up with Fibromyalgia. My doctor told me I did not want that diagnosis on my record because it is a broken brain disease. When I still didn't get any better, my doctor finally said it was fibromyalgia.
I have been back for mono tests which keep coming up positive because I can not get enough sleep. I am constantly saying, "I'm tired." I was on short term disability for Mono. But they only allowed me two weeks to get better. I am currently working 35 hours per week. I have no sick time or FMLA time left. And I have been denied for the second time on continuing my short-term disability. Their response is that mono doesn't last this long.
My husband has been dealing with this okay. He gets frustrated about the messy house. I could use more rubs. My kids are totally on left field. My mom teters on supporting me and being mean. My employer really doesn't understand. I am on the verge of being fired. That adds more stress to my life and causes my symptoms to be even worse.
There are days I just don't want to live with this anymore. I can't count the tears I have cried over pure frustration. I can't even do the things I used to enjoy. I get so stressed just going into a parking lot and thinking about walking into a store. My legs do not function the same anymore.
Taking a shower is tough. I have to nap after I'm done. I don't drink, but I feel like I wake up hungover on a daily basis.
Right now my biggest frustration is everything my family has lost out on with my illness and that my short term disability insurance is ignoring my diagnosis. I pay for that insurance, and my family shouldn't have to suffer almost losing our home because I am too ill to work.
There are so many days that I don't know how I'm going to make it to work. I cry at my desk. And the pain is unbearable. My body feels like a giant bruise. Every little touch is so painful. Thank goodness my doctor has been liberal with pain medicine.
I see old people with more energy than me and it's so frustrating. When I walk in the door from work, my kids are so excited to see me, but I go right to my room and lay down. They want to tell me about their day, but I'm so exhausted that I can't listen.
Once in a while, I will have a good day or even a good couple of days. I start thinking, "Maybe I don't have anything wrong with me!!??" Then there will be a weather change and I'm back in bed.
I wish there was a test that could diagnose my condition.
Cheryl