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Topic : 1.Diabetes? FMS? CFS? Chronic PAIN? Your WLC Home

Number of Replies: 547
New Messages This Week: 0
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Created on : Wednesday, July 06, 2005, 01:01:07 pm
Author : dataimport
For those of us who struggle with Chronic PAIN, DIABETES, FIBROMYALGIA, Chronic FATIGUE, or who take MEDICATIONS that work against your efforts to exercise or lose weight, this group is for you. Please join in and share your struggles and your knowledge. We need and can provide that special kind of understanding, empathy and help that traditional groups do not.

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August 19, 2005, 10:31 pm CDT

An interesting site

I found this site which is for Chronic fatigue and fibromyalgia, and thought it was interesting - especially if you are near one of their centers (I'm not). So I thought I'd post a link. 

  

http://www.fibroandfatigue.com/index.php 

  

karen 

 
August 20, 2005, 6:52 am CDT

Nomi -- don't know if you will see this before you go...

Quote From: nominatio1

 It is almost that time. We are leaving tomorrow at 2PM. and yes, we are taking our 6 y.o. with us. It is our first trip together. Our destination is only 2 1/2 hrs away. It is a famiily oriented place where everyting is included on the premises. I planned it this way. Also, we did not want to be too far away from our cats, in case there is something. A friend is house and cat sitting for us. Otherwise we would not go, either. We do not want to take them to the kennel or such place.
anyway, keep up the good work and I'"see' you when I get back in one week. Nomi

but hope you have a great trip.  HOw long are you staying?  The last tiem we went away was only overnight cause we had a wedding to go to so my Step daughter watched our two year old daughter and four year old son in the motel and we joined them after the wedding.  Next day we went to the shore for the day cause the wedding was down the shore.  BUt it was nice to go away and do something different.... 

  

Also, we have two dogs AND two cats so my mother in law stayed at our house to feed and care for them.  I don't like kennels either -- our dogs were upset enough that we left and they were in their own environment -- could you imgine if they went to a kennel? ;-) 

  

Marie 

 
August 20, 2005, 7:00 am CDT

Why women crave chocolate....

Quote From: wildjoy1

Marie, You are asking the wrong person about chocolate cravings. I used to blame my cycle for them but now I'm through with that and I still get cravings so strong that I would rather eat chocolate instead of real food. Yesterday was one of those days. Because I cleaned out my environment (once again) of chocolate and most other goodies, I sometimes pace the floor wondering how I'm going to get a fix. I live in the country but I have been known to drive all the way to town just to buy a brownie.  

  

Yesterday, I found a box of bakers chocolate and some pecans so I toasted the pecans  and covered them in the melted chocolate. It made 16 drop candies that were so wonderful that I ate all 16 of them by this afternoon. Now I could kick myself. I was just getting to the point of not craving sugar. Now I'm craving sugar and chocolate!  

  

Actually when I was in graduate school I learned a few things about why women crave chocolate - and it has to do mostly with our hormone levels and fertility. The part of the brain that controls our desire for chocolate is the same part that controls our sex drive and our anger (maybe that is why we get so angry when we can't get a chocolate fix. :)  So we have a choice, 1. eat chocolate 2. get really angry or 3. have good sex, to relieve the tension.  <font color=blue>(My husband travels a lot so I eat a lot of chocolate.  :)</font> 

  

I have tried a lot of things in the past that have worked for a while, like fat free fudge cycles, tootsie rolls (they are fat free) and the chocolate viactive (calcium chew candy). All of which i get tired of after a while, but they do get me past a craving while I'm able to rely on them. Only the viactive (available at Walmart or other pharmacy) is really OK for diabetics but I figure as long as I don't over do the other two I'm OK. (I'm good at rationalizing too.) 

  

More on next message. 

Karen 

interesting so I have to have chocolate ot have sex?  hmmmm...both are soo good... hehehe 

  

I guess I will have to break the news to hubby as with sex there are extra benefits besides the obvious...it is exercise too and burns calories whereas chocolate gives you calories....Oh honey...... 

  

Seriously, I had gotten some chocolate bars when I was on Adkins which are Maltitol (You have to be careful not to have too much cause it can act as a laxative...) so I plan to try them this month <have only been back on UWC for three weeks now so soon will need something...>  I don't like the fat free or sugar free candies...just don't taste the same.  I would rather not have it then eat something that doesn't taste good (I feel the same about soda and mayonaisse as I have not found any that don't have an aftertaste...) 

  

Marie 

 
August 20, 2005, 7:12 am CDT

Well first of all, as far as sleep goes

Quote From: wildjoy1

Hi again Marie, 

  

I guess I do have a few questions for you regarding CFS -  

  

How many hours do you typically sleep at night?  

  

Do you ever take a nap? How does that effect your CFS?  

  

Do you have an out-of-the-house job?  

  

When I used to work full time (up until 4 years ago) I had to be at work by a certain time and so I would force myself to get up and get going. Once I was up and out I was able to function just fine all day (and sometimes into the night - I worked very long hours), but by the time I got home I was worthless. I often missed church on Sundays because I was so exhausted. Now I only work part time from my home and I plan a day in between workdays to recoup. And I no longer work full days. Sometimes I feel a little lazy for not pushing myself like I used to but I also really enjoy being at home and not having to work all the time. I'm finally getting back into some of the crafts and hobbies I used to enjoy before I entered the full time work force.  

  

I have a really hard time getting to sleep at night sometimes and I often sleep 12 hours at a time. But lately I've noticed that my total hours of sleep are averaging about 9, unless I've had a day or so with less - then a recoup day can include up to 14 hours straight.  I can't nap without struggling at night to get to sleep and I hate that. My first rhumatologist told me not to ever nap during the day for that reason. Anyway, you are the first person I have really communicated with who also has CFS so I'm curious if your symptoms are similar.  

  

How much weight have you lost recently? Have you noticed any improvement in your symptoms? 

  

I noticed a huge improvement in my fibromyalgia after loosing weight with the WLC. Now that about 20 lbs has come back (in the last 5 months) I'm needing more pain meds again. Although I'm determined to keep them at a minimum.  

  

Well I'll let you go, Take Care, 

Karen 

I have a two year old and a four year old (he gets up with daddy for work most mornings).  I am just starting to get on a schedule with sleep and have decided that though I can stuff done while they sleep that then the next day I am no fun to them cause I'm tired so now I sleep when they sleep (last night I was in bed at 8:30 and got up at 6 to wake hubby for work.  I went to go back to sleep but it was too late our son was up and ready to face the day so I am hoping that both kids take a nap as the older ones are at their mom's this week so no break til hubby comes home.  If they don't nap I think I will be sleeping early tonight too.) 

  

I nap when I can which isn't often as my son gave up naps (except on rare occasions) when he was 2 1/2 years old.  What I do on bad days or if I am just tired, I lounge around on the couch while they play on the floor in the livingroom or they sit in their chairs and watch tv.....if it is nice out I have a hard time doing this cause they wanna go for a walk or at least go in the yard... 

  

No I don't have an out of the house job -- just in the house -- taking care of the kids and the house! ;-)  I have tried to work and on good days it works fine but bad days forget it!  I have to find a job in which you can either work from home (so no one sees me on bad days and so I work as I feel good through the day) or a job where you can make your own hours.  I haven't found either or them yet so I spend my good hours with my family enjoying them! ;-) 

  

I have only lost 4 pounds this time but I will say that eating healthier makes me feel better.  Don't know if that is all attitude or not though! ;-) 

  

I plan alot.  What I mean is if I know a busy day is coming I don't do anything the day before (so I am not tired that day) and don't do anything the day after (cause I am shot!)  Two days in a row is pushing it...I know my limitations now though so I try and work with them. 

  

Marie 

 
August 20, 2005, 7:28 am CDT

THanks -- I checked it out...

Quote From: wildjoy1

I found this site which is for Chronic fatigue and fibromyalgia, and thought it was interesting - especially if you are near one of their centers (I'm not). So I thought I'd post a link. 

  

http://www.fibroandfatigue.com/index.php 

  

karen 

I'm not near a center either (NJ) but I did read interesting stuff like hormore imbalance theory which seems to have some credence for me as my sysptoms are worse at that tiem of the month and I never felt as good as when I was pregnant!  <I know sounds crazy but it was true!> 

  

I also requested information int he mail so we'll see what I get. 

  

My doctor is in NYC and the only thing bad about seeing her is that it is  an all day venture and I pay for it the next day but she is worth it as doctors in NJ are ignorant (in my experience) to CFS... 

  

Marie 

 
August 21, 2005, 1:53 am CDT

CFS etc.

Quote From: puptent

I have a two year old and a four year old (he gets up with daddy for work most mornings).  I am just starting to get on a schedule with sleep and have decided that though I can stuff done while they sleep that then the next day I am no fun to them cause I'm tired so now I sleep when they sleep (last night I was in bed at 8:30 and got up at 6 to wake hubby for work.  I went to go back to sleep but it was too late our son was up and ready to face the day so I am hoping that both kids take a nap as the older ones are at their mom's this week so no break til hubby comes home.  If they don't nap I think I will be sleeping early tonight too.) 

  

I nap when I can which isn't often as my son gave up naps (except on rare occasions) when he was 2 1/2 years old.  What I do on bad days or if I am just tired, I lounge around on the couch while they play on the floor in the livingroom or they sit in their chairs and watch tv.....if it is nice out I have a hard time doing this cause they wanna go for a walk or at least go in the yard... 

  

No I don't have an out of the house job -- just in the house -- taking care of the kids and the house! ;-)  I have tried to work and on good days it works fine but bad days forget it!  I have to find a job in which you can either work from home (so no one sees me on bad days and so I work as I feel good through the day) or a job where you can make your own hours.  I haven't found either or them yet so I spend my good hours with my family enjoying them! ;-) 

  

I have only lost 4 pounds this time but I will say that eating healthier makes me feel better.  Don't know if that is all attitude or not though! ;-) 

  

I plan alot.  What I mean is if I know a busy day is coming I don't do anything the day before (so I am not tired that day) and don't do anything the day after (cause I am shot!)  Two days in a row is pushing it...I know my limitations now though so I try and work with them. 

  

Marie 

Thanks Marie for sharing. It sounds like we have fairly different ways of exhibiting our symptoms. I also have fibro which causes physical pain every day - but worse if I don't get enough sleep or have been too physically active. Tomorrow will be a bad day, I already know it because I'm up again tonight - not being able to sleep for some strange reason. So once again I ripped off my mask and said to heck with it! I'll sit here at the computer until I'm sure I can fall asleep. I'm soooo tired, but for some reason my body just won't let me sleep. I really detest nights like this one.  

  

Well I hope your night is going better than mine, 

  

Take Care, 

]Karen 

 
August 21, 2005, 7:57 pm CDT

Karen

Quote From: wildjoy1

Thanks Marie for sharing. It sounds like we have fairly different ways of exhibiting our symptoms. I also have fibro which causes physical pain every day - but worse if I don't get enough sleep or have been too physically active. Tomorrow will be a bad day, I already know it because I'm up again tonight - not being able to sleep for some strange reason. So once again I ripped off my mask and said to heck with it! I'll sit here at the computer until I'm sure I can fall asleep. I'm soooo tired, but for some reason my body just won't let me sleep. I really detest nights like this one.  

  

Well I hope your night is going better than mine, 

  

Take Care, 

Karen 

My night was better than yours in that I wasn't in pain -- but I didn't get much sleep.  I woke up at 1 because I thought our car had been hit but it wasn't -- it was just some idiot looking for an address that didn't exist and he kept beeping his horn...Then he leaves and I go back to bed to my dog crying and whining.  I finally figured out which dog it was (we have two and she'd stop as soon I got up but start as soon as I laid down!) and figured out that she was upset cause her brother was sleeping in her spot at the foot of the bed! <She is in the new picture... <<<<<  Then I fall sleep and my daughter wakes up crying -- I changed her diaper, cuddled with her, went to the bathroom myself, gave her a new bottle and went back to bed for an hour and then my son was up at 6AM for the day!  I took a 3 hour nap today since hubby was home but I didn't feel refreshed when I woke up especially after I saw what the kids had gotten into under his watch! ;-) 

  

I hope since you are not on that you are having a more restful sleep tonight.  The mask must be a royal pain sometimes... 

  

Well I am gonna try and sleep as I am home all week with the little ones by myself while hubby is at work cause the older two are at their mom's house this week.  See you later. 

  

Marie 

 
August 21, 2005, 9:59 pm CDT

Cute dog!

Quote From: puptent

My night was better than yours in that I wasn't in pain -- but I didn't get much sleep.  I woke up at 1 because I thought our car had been hit but it wasn't -- it was just some idiot looking for an address that didn't exist and he kept beeping his horn...Then he leaves and I go back to bed to my dog crying and whining.  I finally figured out which dog it was (we have two and she'd stop as soon I got up but start as soon as I laid down!) and figured out that she was upset cause her brother was sleeping in her spot at the foot of the bed! <She is in the new picture... <<<<<  Then I fall sleep and my daughter wakes up crying -- I changed her diaper, cuddled with her, went to the bathroom myself, gave her a new bottle and went back to bed for an hour and then my son was up at 6AM for the day!  I took a 3 hour nap today since hubby was home but I didn't feel refreshed when I woke up especially after I saw what the kids had gotten into under his watch! ;-) 

  

I hope since you are not on that you are having a more restful sleep tonight.  The mask must be a royal pain sometimes... 

  

Well I am gonna try and sleep as I am home all week with the little ones by myself while hubby is at work cause the older two are at their mom's house this week.  See you later. 

  

Marie 

Dogs are great aren't they. I have one very spoiled dog and 5 cats. Actually 3 of the cats are mine and the other 2 are my son's - we are taking care of them until he finds another place that takes cats. He moved out of his place last December and moved in with a friend temporarily until he could save some money; but he was supposed to get his own place again last January. Here it is August and we still have his cats. He comes up to visit them every few weeks, so that is a nice way to get him to come up - hold his cats ransom.  

  

Our dog is a border collie/Sheppard mix, with several bits and pieces of other breeds in the mix. She is a very happy, loving and smart, premadonna. She sleeps on the floor next to my husband - that sounds strange - no my husband doesn't sleep on the floor. :) 

  

Today has been a really bad day fibro-wise. Typically after a night or two of poor sleep I flair, but today was really awful. I've been in nearly unmanageable pain. Tonight I'm hoping to get to sleep early (for me) - so as soon as my drugs kick in I'm going to bed. Maybe part of the reason for the bad flair is because of the chocolate I have been eating the last couple of days. I swear, one of these days I'll realize that the payoff for a poor diet just isn't worth it! 

  

Tomorrow is a recuperation day but I'm hoping to be over this flair enough to treadmill some.  

  

I hope you are doing well, Take Care, 

Karen 

 
August 27, 2005, 11:07 pm CDT

In my hammock

hi outthere. I'm doing better now but I had a difficult week. Right now I'm writing from my hammock chair in the backyard . Because we have a wireless internet connection I'm able to cruze the internet on my pda outside. No heavy computer to mess with. Anyway I was just hoping to find someone here. Maybe tomorrow. Take care, Karen
 
September 6, 2005, 11:10 pm CDT

anyone out there ?

Well I'm sorry to think that this board might be deleted due to no one posting anymore. I've been hoping there wood be some new people once the new season starts. I do hope everyone is well and happy. God bless all of those who have been effected by the hurricane and its aftermath. I'm considering flying out to help with the therapeutic needs of the survivors. I'll let you know if I'll be gone for a while - that is if there is anyone here to tell. P.S. If you would like to stay in touch, copy my email before the board is closed. Take care, Karen
 
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